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I think I have MS but no one will listen to me!

Posted , 4 users are following.

El94
El94

Hi,

Basically from around 8 years old (im 20 now) I have suffered from spasms in my right arm and leg and last year I was diagnosed with Paroxysmal Kinesigenic Dyskinesia last year. I take carbamazepine for this. 

Since Jan this year I have suffered from extreme dizziness, fatigue, pins and needles,  pain in my arms and legs,  ringing in my ears, I cant concentrate and sometimes find it difficult to speak and its got progressivley worse. The doctors have continued to blame it on my carbamazepine so I was advised to reduce my dose. Its been 3 weeks now with a reduced dose and im still the same.

I went to see the neurologist and after a quick 5 min exam he still blamed it on my meds. 

Im at my wits end! I strongly think I have MS but no one will take me seriously.  What do you think?  

0 likes, 5 replies

5 Replies

  • El94
    El94

    Posted

    Some cases of PKD may be symptomatic secondary to multiple sclerosis (MS)
    • mariat63
      mariat63 El94

      Posted

      Hi, if your neurologist didn't refer you for an MRI, ask your GP to do so. The road to diagnosis for many Neuro conditions is long and frustrating (trust me, I am on it now!). Just try not to scare yourself by self diagnosing, tempting though it is. There are many conditions that present very similarly and the task for the medics is to discount conditions and see what's left. Good luck and let me know how you're doing. Maria
  • mariat63
    mariat63 El94

    Posted

    Hello, if you
    • El94
      El94 mariat63

      Posted

      Hi Maria your comment hasnt come through properly 
  • denners
    denners El94

    Posted

    I feel your pain, I have many symptons but drs send me away now, I feel like some hypercondriact, so frustrating, just need to enjoy the good days hun till they do listen, or go private
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