1. Community
  2. Infections
  3. Infectious Mononucleosis

I think I have the diagnosis for some of us.

Posted , 4 users are following.

Frecoman2000
Frecoman2000

Hi, In Oct. 2000 I was told I might have Mono and prescribed a couple of rounds of different antibiotics. They didn't work, ruined my last year of university. I did not recover until May 2001. Here's the thing, my Mono test was negative. Since then I have had a recurring wide range of illnesses with no diagnosis. Now my doctor thinks I am crazy. As a last resort I have done some research. Mono usually lasts 2-4 weeks. Lupus can mimic mono. When I get these attacks I get ulcerated sores on the roof of my mouth. Almost like burns but they do not blister. I think I was misdiagnosed with Mono in my thirties. I have not had it confirmed yet because Lupus is hard to diagnose. I looked at images of the Lupus mouth ulcers online and they are a perfect match for the ones from my last attack. And yes men also get Lupus. I hope this helps someone get answers. Sincerely: John

0 likes, 5 replies

5 Replies

  • Frecoman2000
    Frecoman2000

    Posted

    When I get the test results I will post an update.

    • Excitedforgoodh
      Excitedforgoodh Frecoman2000

      Posted

      Any update. Since your post I've been curious about my new symptoms after two months of health. Low-grade fevers, hair falling out in clumps, painful joints. I am also freaked about lukemia. Uch, these fevers just won't quit. I had two days of a break and now back again. ☹️ it's been 5 weeks since my surgery that triggered this.

  • Excitedforgoodh
    Excitedforgoodh Frecoman2000

    Posted

    Good luck to you. I am also getting further tested because of possible misdiagnosis. It's scaring the hell out of me. I hope you get answers and it's something that can be treated or managed. I'm thinking of you.

  • lob12506
    lob12506 Frecoman2000

    Posted

    ive had high rheumatoid factor and anti ro antibodies (found in lupus and sjorgen) also I have sebborheic dermatitic and rash on cheeks. the rash does not spare the sides of nose as it does with lupus though. However during crash my lips and eyes get insanely dry, so I think I might developed sjorgens. maybe its secondary and will disappear if I ever heal, maybe its primary and Ill have it till the rest of my life. getting further testung on wednesfay

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.