1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

I think I may have fibromyalgia what should i do?

Posted , 4 users are following.

AliBear
AliBear

I think i may have fibromyalgia and im not sure what to do about it. I dont want to go to the gp and say "I think i have fibromyalgia."

I noticed after the birth of my now 7yr old that when i got up of the sofa i was in pain with my back. At first i thought it was just the fact i had given birth but the pain hasnt gone away. It has in fact got to the point where somedays i dont even want to get out of bed because i know it will hurt. 

I went to my gp when the apin got so bad i couldnt walk somedays and he diagnosed polymyalgia but ive since been told this diagnosis is wrong and now im back to square one with what is wrong with me.

I suffer from achilles tendonittus so walking is really painful, my job doesnt help as i am on my feet for 5.5hrs aday, When i finish work i come home and if i sit down when i get in i fall sleep almost straight away, in fact it doesnt take much for me to fall sleep anywhere. ive never tried it but i could go bed at 6 somenights and sleep till the following morning. but other nights im still awake at 2 and then spend the night tossing and turning and nodding off before waking up again. My back, neck, elbows and hips hurt constantly and i get pins and needles in my hands. i get eh same pins and needles in my right thigh but that feels like its burning and i cant touch it without it hurting.Although i walk alot with my job in comparrison to the amount i used to do outside work i dont do any now because i get tired so eaily and it hurts. im over weight and i thought at first this was why i feel the way i do but it cant be the cause of the pain in my elbows or neck. The only way i can describe how i feel 24/7 is as if i have been to the gym and done a good session and i hurt afterwards badly, like an ache. when i ask people, family mostly, to massage my neck i have to tell them to stop because it hurts so much but i do feel like i still need that massage.

All i want is to feel normal like i used to feel instead of like im falling apart at the seams. What do you guys reckon?

1 like, 6 replies

6 Replies

  • caroline271
    caroline271 AliBear

    Posted

    Hi Alibear, what you're experiencing could be fibromyalgia; there are so many signs and symptoms to fibro, some of which you have described. When you were first diagnosed with polymyalgia did your bloods show a raised inflammatory markets such as ESR? If not, then that will be why polymyalgia has been ruled out. Try to be positive, which can be very difficult, I know, especially when we grieve for the life we had and the person we used to be. Stay on this site, we are here to support each other.

    There is advice under various headings regarding medication and supplements, pacing yourself and to approach doctors and ask for treatment.

    Caroline

  • christine26761
    christine26761 AliBear

    Posted

    Sooo many symptoms to Fibro, I was going to a local GP for years with differing issues, however..i took my health into my own hands..done lots of research..went back to dr..with all the printed info.,he then referred me to a Rhumotologist who diagnosed it immediately...unreal, but sometimes we shave to do that...lovely GP he was but just wasn't knowledgable on Fibro etc...so go for it AliBear...thinking, feeling and praying for you..be blessed...:smile xxxAustralia
  • jeanne81532
    jeanne81532 AliBear

    Posted

    Hi Alibear, yes I agree with everything Caroline says, and Christine's posts always make you feel like you've had a 'gentle' hug! I know exactly what you mean about your neck, I have the same. And I think we all know the feeling you describe, like having been to the gym, and hurting all over. You could ask your GP to refer you to a pain clinic. I was diagnosed with fibro at mine, after a couple of years of asking GPs, a physio, and a rheumatologist if they thought it could be fibro, and all saying no. Good luck and let us know how you get on. x
  • AliBear
    AliBear

    Posted

    Thanks Ladies

    I have decided to take the bull but the horns and go to my gp. i need to have an answer the not knowing is annoying me now. I feel like a hypocondriac with all these aches and pains, im 43 going on 83. Today i was talking to one of the ladies at work and she thought because of the pain and the fact i cant lose weight it could be my thyroid, my mum had an underactive thyroid but not sure if its hereditory.

    My inflam markers were normal on my test which was why they dismissed polymyalgia but when i suggested fibro they dismissed that too(my old doc not the new doc).Fingers crossed i get an answer soon.

    • caroline271
      caroline271 AliBear

      Posted

      Hi Alibear, I wish you well at the GPs.

      Your weight gain could be caused by stress hormones, principally cortisol as well as lack of mobility. It can also be very stubborn to shift. Let us know how you get on.

      Caroline

    • christine26761
      christine26761 AliBear

      Posted

      You go girl.,yay...well done you..you deserve a proper diagnoses..so you can move on informed....hope and pray all goes reall well razzfor you AliBear- cute name...:-) xxx
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.