I think I might have CES please help.

Posted , 4 users are following.

Hi there

I wondered if anyone can help me. I'll try start at the beginning. I went on a 2 hour horse ride whilst on holiday and haven't been on a horse for over 10 years. Half way through the ride I started to get severe pins and needles in both feet and my back started hurting so I requested the ride was cut short and we returned to stables. When I got back I could not lift my leg to dismount (I eventually did) but had very shaky legs. Upon my return home my back was really painful so I visited GP who diagnosed me with a prolapsed disc. He put me on codeine,naproxen and diazepam for the pain. I went back to the doctor as I started getting constipated very badly and was struggling to pee. It would take an age to start and then when I thought i stopped it started again. The doctor put this down to the codeine he did a pin test as I could still feel the pin prick he wasn't worried. However since then my bottom has got feeling bit feels very strange. And my legs are very shaky still. I have been signed off work but getting pressure from my boss to return. 

Could I be suffering from CES. I am really scared. I  hoping someone might be able to offer me some advice. 

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13 Replies

  • Posted

    This sounds like CES, a medical emergency, and the longer you delay, the worse the nerve damage. So you need to phone NHS 24 (Scotland, call 111) or NHS Direct (England and Wales, cal l0845 4647. NHS Direct is in the process of switching to 111). What needs to be done is an MRI scan. My GP did the pin prick tests etc. spoke to a consultant, who said it was a medical emergency, and they operated that same day. Even then, I still have CES, and have nerve damage down both legs, complete damage to the nerves controlling the detrusor muscles which push urine out of the bladder, and I have to manually evacuate my bowels. I have some erectile dysfunction, but I can still get an erection and ejaculate, thank God. My walking isn't fast anymore, and I don't have control over the calf muscles, so running is impossible, though if I have to, because of dieting, I'm light enough on my feet to do a speedy half-run half-walk if the green man is about to disappear when I'm crossing the street. Anyway: this sounds like an emergency, and your life will be turned upside down and inside out if you don't do something about this. Phone NHS 24 / Direct and insist!
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    • Posted

      Many thanks for your speedy reply. I'm sorry for what you have been through. Glad you can make it across the road though lol. 😊. Do you really think I could have this as doctor does not seem convinced. I have been on bed rest for three weeks as I cannot sit down. could that not be the reason. I scare myself silly at times. The only reason I'm concerned is that I do not. Normally have a bowel movement for 3-4 days. But this is ridiculous as it's now been 7 days and it's really hard and painful. Also my legs are terribly shaky. Which doc puts down to the codeine. I don't know what to do. I can't go to a & e as it's 10.40pm 😔
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  • Posted

    Hi 

    Sorry to hear about your pain. When ago did this stuff? Just to be on the safe side please request your GP to send you for an immediate mri scan like asap. Most gps are reluctant to do so. It might be a case of you going to A&E and not leaving until you get an MRI. In the end I did that because I could not walk anymore and was numb and not going to the toilet. Still when I went to A&E they signed for me to be discharged but I refused to get off the bed till they admitted me. However I received no treatment for 4 days other than just painkillers as they kept insisting there was nothing wrong with me and trying to chuck me out all the time. I was only saved by a pain specialist the only person to actually listen to my pain and immediately she ordered an mri. However that was late and a year now I am just trying to get on my feet and being made redundant as I am no longer the person I was before. I had never heard of CES and you are fortunate to know this now. Act fast. If possible go to A&E now. Every minute matters as you will undoubtedly find out soon.

    All the best x

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    • Posted

      OMG. I'm really frightened now. I cannot drive to a & e as kids are in bed and husband snoring. I will go tomorrow. Doctors or hospital? 

      Please tell me I'm not in trouble. Will the hospital even give me MRI. What do I say to them?  

      Excuse me for asking bit the outlook for suffered does not look promising and my boss is already pressuring me to go back to work. I'm so worried now. 😞

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    • Posted

      Go to a&e call an ambulance. Tell them you cant walk and do not walk. Let them carry you. Describe the pain. Tell them about non bowel movement. When they run their fingers on legs tell them out of 10 you feel 2. Problem is they never take anything on board until you have full blown symptoms of which it will be too late by then. Demand an mri, be vocal, scream and shout in pain. I was the opposite, I was in pain but I was being strong.  I spoke politely and softly and no one took notice. I often blame myself that if I had screamed and thrown a tantrum maybe I would have had the mri sooner. However I can't change that. I didn't know about CES. If I had know there is this deadly condition and my symptoms are indicating that I would have been dramatic but I had no idea.

      Please tomorrow morning do something. If its not CES then you know. You cant afford to acquire this syndrome,  believe me and everyone here your life will become a silent nightmare that only you can feel and others wont.

      I hope to hear from you tomorrow. Hope you sleep well but tomorrow do yourself a favour and go to A&E and do not leave. Dont be persuaded don't be bullied. The doctors and specialists who all said there was nothing wrong with me are all living their lives while I live a nightmare 1 year down the line 😕

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    • Posted

      Jasmine thank you. You have been such help. I really appreciate it. I will go tomorrow for sure and let you know. I do hope you recover soon. 

      I am a lot like you I'm not very vocal. I came on here after researching prolapsed disc on google. As I am worried this is taking a very long time to heal. I cannot thank you both enough for helping through this. I feel very alone right now. Xxx

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    • Posted

      Hi

      Had an MRI and thank The Lord I don't have it. It is however pressing on some nerves but not the ones that they would be concerned about. They have given me plenty of drugs for the pain and the other symptoms should subside soon. Thank you for everything. And I truly hope you start to feel well again soon. Xxx

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  • Posted

    Hello!

    This sounds really serious, you should go to A&E like jasmine suggests and request an MRI scan. It sounds like the disc is pressing on the nerves and the longer you wait the more nerve damage there will be.

    I am so anti-doctor since CES as I was given a range of painkillers as I went numb and lost all feeling, you must trust your instinct and demand to be seen to by a professional. I have realised since being seen to by the NHS that most doctors cannot be trusted, you must look after yourself. high doses of drugs doesn't heal anything, they just cover up.

    Don't be afraid of being demanding, look after your body and foloow all instincts. 

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  • Posted

    I actually had severe sciatica for three days. I couldn't sit down, lie down, or stand still because of the pain. But I was so used to GPs fobbing me off with misdiagnosis after misdiagnosis that I tried to battle through it. Then over night I felt the loss of sensation creeping over me from the waist down. I didn't know what was happening, but it such a relief not to feel any pain that I just went to sleep lol. I woke up the next morning, hoping that it had just been a bad dream, but the legs were even worse. So I caught a bus and walked to the hospital, but it turned out they had relocated the entire hospital! Phoned by parents and they took me to the A&E and described the situation, but the nurse said it's not an emergency and that I'd have to see the GP. I saw the GP, who did pin prick tests etc. and spoke to a consultant at the hospital I'd just come from, and the consultant said yes that's an emergency, and they operated the same day. Two discs had prolapsed. But the surgery didn't go smoothly. The surgeon, Mr Lee, only removed the less damaged of the two discs. Two or three days went by, and with things worsening, they did another MRI and realized their mistake, so operated again and removed the second fragmented disc. If I hadn't been operated on, I could have been completely paralyzed from the waist down. If they had operated without any mistakes, I might have still kept my bladder function. But that was nine years ago, and my life is back on track. Lost more than 8 stone in weight since last May, Urovalve-Ingenion are releasing this year an alternative to catheters which will give people with nerve damage in the bladder area much more freedom and dignity. So the journey from injury which destroyed my career, my looks (er..lol) my life, has been tough, and it'll continue to be challenge. But I've lost a lot of weight just through healthy eating, reduced calories, and the gym, and I'm going to qualify as a librarian. But in short: Delay=Bad. The sooner you act, the less chance your life, career, looks, health, freedom will be ruined. If you have to see a GP again, ask to see a different GP from the last one you saw.
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