I think I need therapy

lovely suggestions here jules.

how are you feeling now? so sorry you've been low ...me too.

i'm not keen on medications but if you are someone who likes a bit of natural help...i've heard that the herb rhodiola is very nourishing and uplifting and that it can work within the hour.

do hope this helps and that you'll come back with an update. xx

Hi Jules sorry to hear your so down, everyone on here has felt the same at some point.  It WILL get easier to accept and deal with, at some points you will even forget you have it.  I have flare ups every now an again and its literally a pain but then I have times when everything seems normal.  I think groups like this one and reading about other peoples experiences helped alot as I didnt feel quite so alone.  

Sorry for your troubles and I am glad you are reaching out.  That right there is Good.  Knowing you are not alone and that we understand some of what you are going through.  I have LS of course and hate it too, but I learned alot ten years ago when I had cancer the first time. Crying, scared, angry, hateful to loved ones - which is really bad!  But one day my neice who was in Medical school and my oldest neice 12 years younger than me -  came to me and said Auntie, we are going to do what the doctors say to do and you are going to beat this!  That's it!  You must think positive and get on with it. Your kids and husband and all the rest of us who love you are with you on this and the doctors know how to beat it - so they will.  She said this to me privately and VERY STRONGLY!  It was like she slapped me out of it and I thought about it a different way.  So after operations and treatments I am still here kicking along.  I follow the doctors orders and get all my checkups.  I am in Texas and Medicare provides good coverage.  

     Now comes LS.  It us painful and interferes with life, and why me?  The doctors help, Biospy, meds and then they tell me to read this site!  So I learn from the Doctor's video and the info from all our friends and it gets better.  Some days with no flares you can almost forget about it, and then a few days later the problem is back.  Learn about the diet changes, the protective ointments, the bi-carb bath and wash, the stress lowering activities, and hook into your will to live as well as you can, and try to find some peace with it.  I hope there is a cure, but I have not heard about that yet, but the doctors can help with dialation or such even if you want kids it is possible.  

So do not give up.  Cut yourself some slack for being a scared human being, but there are lots of us who want to help each other, so remember that.  There are some things you can control and some you can not, but you do get to choose not to let that get  the best of you.  It can get better and you can feel better, you really can.  I am an old - 69 - but I am not done yet, I have grandkids I want to see grow up as long as I can.  One is 15 and one is 6 months, so I try to mind my diet and exercise and not give up.  I have had diagnosed depression and am off my meds now and still doing well.  My husband helps keep me busy and takes good care of me, so I am really blessed there.   Hope this helps.  Wish I could hug you and listen to you more, but we do what we can.  

  

I am glad to help you.  We do all need each other.  My first was in my breasts.  Three operations they removed parts and they all were benign.  Good!

Then they took my uterus and ovaries and they were full of cancer, malignant, and had to send it to the university to get studies on it to define it.  Good surgeon, lots of good care, bed rest for six months with wound pump, and eventurally I healed.  Then after years of watching it, my throid was removed and it was malignant.  This required radioactive treatment, but the checkups every six months and it is gone(so far).  Thank God for Medicare!  I am 69 now and they check for the cancer, but nothing else for 6 years now.  I am relatively active, do my gardening, some housework, some walking, so I can hope for more years to see my grandbabies grow up and be with my two kids and husband.  I think the LS is part of me losing all my lady parts inside.  I take synthroid of course, but I can not take hormones because of the breast issues.  So the result of all this, is for me, that you can endure many problems and you can keep going.    I think I have had LS for five or six years before I went to the doctor  about it, trying to use over the counter products for problems.  Doctors saw me for pap tests etc. but except for the Premarin cream, no one tried to help me or saw the LS.  I did have the biospy and proved the LS.  So now we deal with it.  My husband has been frightened for me many times, but he has been a prince supporting me and caring for me when I needed the help.  He is retired now too, so he shops and cooks and cleans the house for the heavy jobs I can not do.  

     We can beat alot of things that are frightening and are painful and we can continue.  That is one of the things I want you to learn from me.  You are fighting back now and I think you are learning and are not as scared as you were at first.  I think it will get better for you, because you will learn to handle it better, and find what works to help you.  Pray and stay positive, and love your people who support you.  I love alot of nurses and doctors now, even the techs who take the ex-rays and MRI s of me are friends now.  Take good care and love yourself!