I thought I was getting better.....

Posted , 5 users are following.

Hi everyone and you have my absolute sympathy. I am a 57 year old female and was diagnosed with Shingles recently. I think it started long before the small rash came out. I have taken the anti viral drugs and thought I was getting better. Now a month on, I feel worse than ever. The fatigue is awful, I also have left rib ache which seems to be associated with constipation, bloating and upset stomach. I have a painful right knee which is numb to the touch. My long standing tinnitus is much worse now. I have just been signed off work for another 6 weeks. Dr believes it's post viral fatigue. Does anyone else have these symptoms ?

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17 Replies

  • Posted

    hi julia 

    i have had another bout of shingles this morning next to my last one which was only two weeks ago ūüėü this is the 6th time this year .

    i am age 51 .. i only use cream on the blisters ..

    i seem to get a headache for two days before the rash these last two times.

    have you had your Vit D levels checked .. as i discovered i was Vit D deficient in May and have to boost up on vit D.

    also i am post menopause and wonder if this is all connected ( no HRT) 

    so sympathise with you .. ūüėü

    jay x 

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    • Posted

      Hi Jay 

      thanks for you reply and support. It must be awful for you having so many episodes. I think sleep is the key for me but it is my enemy at the moment. I am not menopausal anymore but will have my Vit D checked. I keep thinking I have something far more sinister as I feel so awful but bloods and urine have come back negative so far but are being repeated on Thursday as this is my fifth week! Thanks and take care

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  • Posted

    I took shingles 1st April this year. It developed into post herpetic neuralgia and I have just returned to work on a phased plan. My left hand side ribs still ache I get tired if I sit down to relax. Pain management advised could be up to 12 months before back to full recovery. Continue to take low Gabapentin, amatriptaline, lidocaine patches at night and paracetamol. 

    I find company is the best cure. 

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  • Posted

    Hello Julia,Kevin

    I have been on the forum for quite a few months now, having had all the things you talk about . If you look back on this discussion group, you might  find some of the information useful. I did.

    I've had shingles and Post Herpetic Neuralgia (PHN) I was told I could be left with it for life.  With reocurrences either regularly or far apart. 

    I'm currently suffering, but it seems to be quite common in my area. Many of my acquaintances have the same experience recently. 

    I live in a village in Essex and know most people here, it's quite a close community.

    Hope you both feel better soon

    Pauline

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    • Posted

      Hi Pauline

      thanks for your reply and advice. It appears everyone gets different types of symptoms. I took the anti vital tablets too late, so even though I thought they were helping they weren't . I just feel as if I am back to square oneūüėĒ and so miserable. Take care

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  • Posted

    i will repost as last one needs modification ..

    when my first outbreak began the doc here gave me daily B12, B1 and anti inflammatory injections..

    with all these outbreaks i feel i need some answers .. its worrying why.

    had lots of blood tests loads ..

    my vit D was low deficient ( vit D is a hormone we need ) 

    also B12 abit low ..

    i am just about to have some B12 also Vit C daily is a must with shingles and Vit E .. 

    this may interest you .. i just reading this below ..

    The best cure for a shingles attack is Vitamin B 12 injected IM 0,5cc 3 times a day until the lestions disappear.  

    As a nurse, I was able to do this at home.  If your doctor won't prescribe this, I have recommened sublingual B12 2,000-5000 mcg. sublingually until the lesions disappear and then continue once a day as prophylaxis.

     20 friends have been cured with this recommendation.  

    Could it be possible that Shingles is a B12 deficiency disease just as Scurrvy is a Vitamin C defficience disease?  Or Beriberi, Vitamin B deficiency.  

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    • Posted

      if only we knew why ūüė©

      i too get aches and the post pain of shingles - menopause has similar effects on the body - its knowing which is which ..

      jay x

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    • Posted

      Interesting theory! I've had low B12 count before but not Shingles prior to this! I take D3, B vits and Selenium with Vit C regularly any way. I might up the B12 a bit but I was informed that the liver does not get rid of excess of this so I'd be interested to know how long and how much I can keep this up for! I'm also taking L-lysine and slowly feeling better but still feel very tired and have to pace myself these days. Maybe it's part of the ageing process as some Doc's are fond of saying, after all I'm 72! lol  lol

       

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  • Posted

    Hi Julia, Sorry you're suffering. I know exactly how you feel. I had my first diagnosed attack in April this year at 72. Several patches followed on for about 2-3 months. I think I may have had some mild ones in my scalp previous to this though. I've been taking L-lysine as some people on this forum have recommended. I also take Vit D3, have been for some time before Shingles!Fingers crossed and all that, so far I've not had another bout recently but still have PHN and terrible fatigue. Doc prescribes Amitriptylene to help this but still feeling very tired although I sleep better now. Being retired I can rest when tired and can sleep for England during the day! rolleyes I have an audio book and listening rather than reading helps me relax more and doze off. I also have OA so used to pain. It'e the fatigue I find worse, not used to sitting around being "lazy" but I believe the body tells us what we need and I listen these days! Hope you feel better soon. Best wishes Ellie X confused
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    • Posted

      Hi Ellie

      Thanks for advice. I've only had a few spots on my which gave me no problems all really . It's the nausea and lack of appetite and losing weight which is giving me most problems. I have a good day followed by two bad ones. After a walk out yesterday with my husband I am now laid up all day! Thanks for listening. Hope you get better soon. Julia x

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  • Posted

    Hi Julia,

    I am so sorry for your suffering, as well. You don't mention exactly the location of the rash.

    Remember, Shingles is a Herpes Zoster Viral infection, and therefore, you are experiencing a viremia in your entire body.

    There are three stages.

    The predromal, which is much like the onset of the flu, consists of FATIGUE, mild fever, generalized aches and pains, headache, and malaise.

    The onset of pain usually precedes the vesicles-blisters, which come in crops, which crust over.

    The last and one of the most dreaded sequelae is post herpetic neuralgia, in which the excruciating pain of Herpes Zoster is chronic.

    The actual viremia, or disease process last weeks, and depending on your age and other conditions, can impact those diseases, as well.

    It is much more than the rash, agonizingly painful as it is. It can recur in some of us with maddening frequency.

    If you are immunocompromised, and you will already know if you have SLE, Psoriasis ITP, Rheumatoid arthritis, Sjögrens Syndrome, take corticosteroids, or have cancer, you are at higher risk for recurrence.

    Please know we are here for you, and to help with support, emotional and educational. I am an NP stateside with recurrent Herpes Zoster Oticus in my right ear. I understand what you are going through.

    Merry Juliana

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    • Posted

      hi Merry 

      i just read your post - thanks for the info ..

      my blister crop is always on my butt cheek - 2 weeks ago i had it it dried and now today i woke with another crop on the way an inch away from last ones ..

      i do worry the doctor is missing something 

      headache terrible right now 

      thanks again 

      jayx

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    • Posted

      Hi Merry

      Thanks for your support and reply.

      I have never really suffered and pain just aching around my rib cage . The rash is so small on my lower back it almost got missed! It's the malaise lack of sleep and appetite which most concern me. I have lost weight which I can I'll afford and just keep taking two steps forward and three back . More blood tests this week . Thanks again . Julia

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    • Posted

      Hi Jayneejay,

      As I have experienced Herpes Zoster-Shingles for so long, I just factor it into my life now. I must add that it started at age 44 years. I have been immunocompromised for over two decades. I was just diagnosed with breast cancer, although with an excellent prognosis as the tumor is a non agressive type, only 7 mm, and with no lymph node involvement. I believe if one has recurrent Zoster so frequently, ie every 3-5 weeks in my case for 19 years, something is amiss with one's body. Make certain you rest, eat well, and receive the analgesics you need to stay well.

      Merry Juliana

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    • Posted

      Thanks Juliana

      I have even more break outs this morning - thank goodness your BC is non aggressive - hope all goes well for you - i get a well woman check annually here in Spain ( private ) and 3D breast scans - i am Vit D deficient trying to boost it only found out 3 months ago - thanks for reply

      Jay x

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