I told you all that my PMR had subsided, no more pred, then a terrible fall!

Posted , 15 users are following.

Hi everyone, shortly after my PMR subsided an II was easily pain free without any prednisone, I took a terrible fall, EMTs took me to Sarasota Mem. Hosp.  The pain was excruciating, I had to take opoids.  I was then sent to a rehab for 5 weeks and was discharged Aug. 3, not going to outpatient PT.  I use a walker and a wheel chair for now.......................  My life has suddenly stopped.  My wonderful husband is my caregiver, and I shoud be back to normal in time.l am SLOW.but improving.

Please all of you be very careful, one slip can change your whole life!!!  (PS:  One I had gotten my PMR under control 2 1/2 yrs. ago, I could function in full, not now!)  Thanks for listening to me.        Elinor

3 likes, 28 replies

28 Replies

Next
  • Posted

    oh Elijo, what a shame.  I am glad you are going to be all right eventually, but it must be so hard right now.  Gentle hugs.🤗?

  • Posted

    I'm sooo sorry 2 hear of your terrible news. I am glad however that your home and on the mend! Please be careful and stay well. Sending u cyber hugs!

  • Posted

    Soooo sorry to hear of your travails;  sounds like quite a nightmare, but glad you are healing well, if slowly..

    Also glad that you wrote and reminded all of us about the danger of falling.

    Thank you!

     

  • Posted

    Sorry Elijo, what a bummer! Get on the mend quickly. Think positive and try to smile. ☺️
  • Posted

    So sorry this happened to you. You beat PMR, you’ll beat this.!!!!
  • Posted

    Oh Dear love you, I am so so sorry that you have got to go through this.  Thank you so much (in all your pain and discomfort), for posting and letting us know, what can happen.  Please please rest and take it easy and let Hubby take care of you.  You will rise again to fight another day, so chin up girl and breathe.  Bless You.

     

  • Posted

    I am sorry to hear that Elinor. Presumably this makes PMR look a doddle? Get well soon!
  • Posted

    Hi, Elinor

    So sorry to hear about your fall.   Awful how one’s life can change in the blink of an eye. 

    Sending you hugs and good wishes from the Lakeland PMR club

    (that no one wants to join).  

    Take care!

    • Posted

      Thanx for you good wishes!  You mention Lakeland PMR Club.  Are you in 

      Florida?  I'm in Sarasota, FL.  There are also Lakeland schools in Shrub Oak, Westchester Co., NY where I used to live.  The very best to you!

    • Posted

      No.   Lakeland (near you).     ;-)
  • Posted

    What a total bummer, Elijo.  You are so thoughtful and gracious to share your experience and  insights. I too am learning how difficult it is to balance the need to maintain muscle mass for stability with the need to manage muscle pain. And then there’s soft tissue.....I never knew the MSK system was so complex with all its different types of tissue and requirements. Yikes!

    But with the support of this platform and the wealth of experience here, we’ll each learn slowly but surely how to not only survive but thrive. 

    Blessings to you and yr husband. 

    • Posted

      I sooo agree with you Harrie!! Had no idea about muscle mass, muscle strength, etc. till all this hit! I've never worn so many baggy t-shirts in my life so as to.try and camouflage my torsos! To second your sentiment, thank God for this forum! I learn everday.

  • Posted

    My grateful thanks to all of those who responded to my above letter abut the horrible fall I took.  I just returned from my 2nd outpatient therapy.  Getting in a wheel chair, then getting in the car, then out of wheel chair and into the therapy bldg.  is a "trip" in itself.  But I did it with a smile (Mitchdom!).  Next week are 2 more sessions, plus the exercises my husband helps me with home.     On a very pleasant note:  My son John from Franklin, NC in the mountains just drove to Boca Raton, FL to pick up his delightful lady friend and they came to visit us yesterday and today.  What a joy!!!  After he drives her back to Boca Ratan and spends a few days helping her get organized, he's driving back here to Bradenton and spending a few days with us.  These things in life can make you soooo happy!  My lovely daughter Sharon in Brick, NJ had sent me dresses with zippers up front to make dressing easier, plus so many other things she has done long distance.   Family is so important, especially the older we get.  Thanks again for you kind uplifting wishes, and always do be careful yourself!  One second can change your whole life.   PMR at first was crippling, but a few prednisone pills, and viola I could function! Love to all,  Elinor

    • Posted

      Well good for you girl - there's always a silver lining but I am sure you would rather have not taken a tumble.  But look at all the good things that are happening - your son and his lady friend visiting you and then he is coming back to spend a few days with his wee mum and dad of course.  

      Also your lovely daughter, thinking about what you can wear, knowing that your mobility is limited and sending you dresses with zippers up front.  Well now I am sure you are grinning like a cheshire cat.  Good for you and a day at a time is a day nearer to getting better.  You go girl.  Bless   :-)

  • Posted

    I too have been out of commission from a fall. I slipped and fell getting out of my car on February 6. I broke my left ankle in three places and sprained the right ankle. I had to wair a boot on both feet and was not allowed to put any weight on my left foot for 14 weeks. On May 7 I was told I could walk. It has been a very long and dark time for me. I tried to go to a rehab place like you did but the place I was at was horrible and I told my husband that I wanted to come home. So on my 7th day at the rehab I went home. I had people come to my house to help me with my exercises and showers but I did everything else myself. I figured out ways to cook a few things. But mostly I cooked TV dinners. Luckily I already had a scooter to use. I would not wish that experience on my worst enemy and I'm am sorry that you had to go thru it. I hope your experience was not as difficult as mine was.

    • Posted

      I do think my experience was dreadful, however you must have suffered even more, how horrible, and it's probably hard to believe you got through it so far.  You must be a very strong person.  I actually wanted to die at times.  I have a very supportive husband, and a good cook too.  One of these days it will be all past you and our minds have a tendency to block some of it out as time goes by.  I did not like rehab and while I was there, they shipped me off to the hospital since my sodium and electrolytes were way off and I was sick.  That delayed my discharge some, and it's hard to believe I'm out of there.  I'm always sooo cold. Please continue getting well, you are through the worst.  Hugs, Elinor

    • Posted

      Omg! You guys all make me feel like such a whiny, complaining jerk of a person!! Your stories are truly heartwrenching. I'm sooo embarrassed at my seemingly small issues, ie heavy duty sweating, double vision, gross fatigue, depression etc. I deeply apologise and wish all of you well and speedy recoveries! Thank you so much for bearing w/my posts.

    • Posted

      I can not let you compare yourself and your pain to someone else's and say that yours was not as bad. Everyone's pain is as unique as you are. Your seemingly small issues are your issue and therefore they are important to you and those around you that love you. 

    • Posted

      Thanks for your good wishes.  Don't feel guilty for c/o about your discomforts, just like I did when I became crippled with loads of pain until my MD dx PMR & I started pred..  Hang in there!  by the way, everyone note that pred did have some positive qualities:  My nails were always thin and broke very easily; not since pred.  I didn't have my nails cut for 5+ weeks; they grew quite long and never split or broke.  That's been a plus for me.

    • Posted

      I agree.  I was told that where my pelvic fractures were is one of the worst pains you can have, and I must agree so far.  I would scream and cry when they touched or moved me, it never stopped.  Finally I got off opoids as it improved.  One of the aids said she wasn't allowed to work with me because I c/o  about her ( I don't actually remember that, but I guess it is not important!)  Being on the road to recovery is great, and all of you PMRers will, too! 

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.