I too am suffering

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I have also been recently diagnosed with cfs. I have been unwell for over a year now and have had swollen glands in my neck,and a reacurrent sore throat for all of that time. From january my symptoms have got worse to the point now that I am in constant pain (neck,shoulders,elbows,chest,knees etc) not sleeping properly,dizzy all of the time and fainting quite often which has stopped me from driving at the minute. I cannot take my children to school or look after the house as i used too which i find very frustrating and most of the time I am bed bound. I have always worked full time but now I am off sick and unable to go and nobody seems to be able to give me any advice as to what I need to do to get better. If there is anyone who could give me any tips please please respond.

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  • Posted

    Hi - I am new to the forum, although I often read through the posts made. I am so sorry to hear how you are suffering. I have had CFS for over 2 years now. It started with tonsillitis. I was on the verge of collapse one day following the tonsillitis and my husband took me straight to hospital where I had extensive tests which came back negative. I know exactly what you are going through. I haven't been able to drive for over 2 years now because of feeling so unwell most of the time. I never have a day when I feel really well but do have times during the day when my symptoms aren't so bad. I too have pain in various parts of my body, particularly chest and back with very heavy legs a lot too. It is a very frustrating illness. I cannot even walk to the end of my road very easily now and before the tonsillitis I used to walk everywhere. All I can suggest to you is to try and remain positive - even though that seems extremely hard to do at times. I used to have a lot of muscle weakness which made me feel dreadfully ill but that seems to be improving so I am thankful for that. I am afraid that with CFS it is just a matter of time. Try and eat well and when you are feeling a little better, just take a small walk perhaps round the garden. Just rest as much as you can. I find it very encouraging to come to this forum and read everyone's posts. Good luck to you and stay positive.
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  • Posted

    Hello to both of you, nice to see you and welcome to the forum.

    I hope you get the support you need here. smile

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  • Posted

    Hi there

    As Alicia says, welcome to the forum - we are a friendly group with varying degrees of the illness - but we all fully understand and sympathise with each other and offer support whenever it is needed.

    You both sound as if you are severely affected with this wretched illness and I really feel for you. I would say that I am mild to moderately affected - but have recently had to give up work, which although has helped me in that I am able to pace myself far better, has made me realise now just how much I am missing it and exactly what impact ME has had on my life sad

    One of the great things about this forum is that when you are feeling really low sad or really angry :evil: you can say just want you want - and, as well as 'getting it out of your system' you will also be guaranteed a reply!

    Take care and hope to hear from you again soon.

    Katie smile

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  • Posted

    Many thanks Alicia and Katie for your kind welcome to the forum. It is so nice to be able to talk about this awful illness with people who know what we are all going through.
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  • Posted

    Hi Juliedee & Everyone Else touching base with ME forum today!

    Dont panic too much Juliedee about feeling isolated here we are all in the same boat with varying degress of symptons! Take the time to read through some of our postings - if you have the energy!

    Donna x

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  • Posted

    Thank you for all of your replies and encouragement :D. Its nice to know that I am not going crazy and that there are people out there going through similar things to me. I feel as if I am loosing grip of my life at the minute, I cant drive, I cant work and I feel like a terrible mother to my children as I seem to be in bed ill most of the time. From reading postings on the forum I know that I am not alone but I am finding it so frustrating :x. And my husband tries to understand but I dont think he really does. I am alone most days and by the time he comes in from work I am either in a foul mood or completely exhausted. I hope you dont all think I am a moaner :roll: its just I need get things off my chest and you are all probably the best people to understand what I am going through as you are all suffering from the same debilitating condition. Hope to hear from you all again soon and take care lv Nix :wink:
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  • Posted

    Hi Nix - and everyone else

    Don't worry - we would never think you are a moaner - you can vent your feelings and frustrations as much as you want to on this forum. We can all identify and sympathise with you.

    I think I can safely say, that all us 'girls' have problems with husbands not really understanding exactly how awful we can feel at times - I've said so many times, that I would love my friends and family just to actually experience how I feel, just for say, ten minutes or so - they really would wonder what the hell had happened to them. My husband just cannot seem to understand that my degree of feeling unwell can vary literally from minute to minute - it's just as if someone has flicked a switch. The number of times he has said 'well, you seemed fine this morning' :roll:

    It must be so hard for you with children too - if you have chance to look through some of the earlier postings you will find several postings of mine describing my feelings when I first had ME in my early thirties and I was bringing up a young daughter. Twenty one years later, I am still haunted by the way I feel I failed her at the time. This wretched illness takes so much from us. My daughter is fine now though and I'm sure your children will be too - please don't be too hard on yourself. In one of the postings Donna (who is a child behavioural consultant - ? I think that's right ) - describes so well how to explain to your children and help them to understand your illness.

    Take care and keep in touch with us.

    Katie smile

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  • Posted

    Hi Nix

    Not sure how old you are and the age of your kids but there are plenty of ways of helping the kids to understand. If you want to send me a private message then dont be afriad to do so?

    A little about me, Like you I am married, aged 31 with 2 kids, 2 cats a pony and a full-time job! Crazy eh but I am SO stubborn and battle constantly to make choices about my life - such as work.

    Donna x

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