I've been diagnosed with crohns in my small bowel

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Hi everyone, I've never been on a discussion before. After being ill for 8 months I've finally had a phone call off my doctor to say the c.t scan has shown crohns disease in my small bowel only. I've not had any other details so was just wondering if anyone on here can give me an idea of what I'm facing. I'm a 30 year old woman with 5 children to look after. Ive been having awful pain and been back and forth to doctors and A and E and im scared now of what my life is going to be like!!! Any help or insight would be very much appreciated. Thank you

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  • Posted

    Now you know what you have it is a starting point.  They usually try different tablets to get your crohns in remission - dont panic if the first couple do not work for you.  They will Im sure find one that suits you  Crohns is a very individual disease and you will learn to deal with each issue as it hits you.  I wanted to know as much as I could about the disease - if your like that then have a read up on it.  Whilst doing this you will also come across the things you have read about during your journey to find a medication that works for you.  Good luck and ask lots of questions that will ease your mind take care xxx 
  • Posted

    Hi Kerry,

          I've had Crohn's for 52 years since 14 and yes it Crohn's cannot be cured.It has only been in my small bowel and no where else. I know when I have flares I go off food and stay on liquids after a calming down I start with the white of the egg for protein, mashed potatoes anything very soft. It's not easy with children but if husband and family can help that's a big  plus. Crohn's will be there for the rest of your life but with medication it can be maintained and go in remission. Keep your chin up and good luck.


  • Posted

    Hi Kerry don't no if you still come on this discussion cos I can see your message was entered a while ago now,well I've just been diagnosed with Chrons in my small intestine and am awaiting a op after seeing my specialist on the Monday teatime I was at a local Chrons surgery by the Wednesday dinner time and told that I need the op to take about 3ft of my bowel away I'm really nervous but cos mines been misdiagnosed for nearly three years now it's taken its toll so surgery my only option but there are other treatments and it sounds as your doc has found yours quite quick so loadsa other options for you I can tell you more but will wait first to see if you reply to my message OK Jane🙋

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