I've been having a rough few weeks

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It's been over 16 months I've been trying to get my thyroid levels stable, my Dr. subscribed 125 mcg of levothyroxine, but it's too strong for my body, my heart races I get out of breath, my heart flutters in my chest, so the Dr.  has me take 112  then 125 on alternate days, so one day I'm jittery and weepy unstable, then I'm fine with the 112 but 112 daily is not a high enough dose, for three weeks now I have forearm and calf aching and exhaustion like I've never had before, headache also nothing over the counter relieves my aches


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  • Posted

    Did your doctor start you off on the 125mcg?  If so, that starting dose is way to high!!  Doctors should start patients off on 25mcg and then very slowly work their way up to the dose that should keep your TSH around 1.00 or 2.00.  Even at 25mcg.. I had jitteriness, shaking, insomnia and sweating.  It took me almost a year to get to my 100mcg dose and feeling amazing.  it takes some time for our bodies to get used to levo, but I would say that for most people the side effects will go away.  For myself, they did and I feel great!  Now.. I also know that some people do not do well on Levo, so, if you did start on the low dose, slowly worked your way up, and are still feeling bad, then maybe you should talk to your doctor about alternative treatments.  
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    • Posted

      I see.. yes, then you definitely need to look for an alternative treatment.  I'm not too knowledgable about other treatments methods, but there are amazing people on this site, that I'm sure will be around to help you very soon.  They are amazing when it comes to other treatment options, especially natural!  Sorry I couldn't be of much help.  Best wishes..

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  • Posted

    Linda, there are thousands of posts on this site about the side effects an ineffectiveness of levothyroxin. What you're experiencing is not unusual. If it's really been 16 months and you're having that much difficulty, I urge you to find a different medication and try some natural solutions. The fact that you're still having such difficulties after so long indicates this medication will likely never work for you. Heart palpitations are very concerning, as this drug has many side effects, the longer you're on it, the more difficult the recovery. My experience has lead me to believe this is a very dangerous drug, that should never be used due to its ineffectiveness and extremely detrimental side effects.

    Some things to consider:

    1. It takes three months for thyroid meds to fully stabilize.

    2. Artificial sweeteners such as NutriSweet, can shift thyroid function. Caffeine and other dietary habits can also affect thyroid function.

    3. For many people, this medication doesn't work at any dose. I tried for over two years and it got so bad, I became bedridden before I finally got off this crap.

    4. It sounds like your doc is more experienced than most by the fact that he's having alternate days. This technique can be used to fine tune dosing.

    5. Thyroid medication dosing is extremely complex and difficult due to the lag time, and the body's immensely complex feedback loops, as well as the many environmental factors that contribute to thyroid disease.

    6. Many people seem to get better relief from ThyroGold, a natural bovine glandular supplement. The ratios of T3/T4 are closer to human ratios. Although anxiety, heart palpitations, jitteriness are typical issues when dealing with thyroid disease, meds can cause shifts in the natural balance of various types of thyroxins in the body which causes these sorts of anxious symptoms. 

    7. There are many supplements,  dietary, and lifestyle changes you can make to curb your thyroid disease or even get the disease into remission.

    8. Thyroid disease is autoimmune, so consider this when approaching healing.

    Hope you find this helpful. I found I had such bad brainfog between the thyroid disease and this drug that I would have gotten off it sooner, had I been able to think straight.

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    • Posted

      Thank you so much your response was very helpful, I went to a specialist, who diagnosed me with hasimotos, but most of his patients were senior diabetics, so I looked good to him, nothing more that review my blood work. I definately need to try another option, along with being 52, the only plus is I believe that the levothyroxine is keeping my menopause symtoms away, When I'm feeling better I'll will do searches on this forum, but for now my brain fog gives my low attention span, thank you again, Linda

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    • Posted

      Do you have any links are websites I can research, did you need to find a holistic healer for this or a MD. , here is my experience with Md. .... I can get any anti anxiety or Anto depression meds I want , but when I asked for a b12 shot she said "we just don't give b12 shots out to anybody who asks, this was in the same convo , thanks for your replies it means more than you will ever know , Linda

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