I've been in pain for 23 years, think I'm dying now, need some support!

Hi I'm going to be 55 on the 10th of January, if I live that long!  Can't find any good Drs here in SW Florida, I'm in constant pain, sleep only 2 2 1/2 hours a night!  I am so exhausted!  I was diagnosed with Fibromyalgia at 32!  I am totally disabled as I am allergic to all.Meds that are suppose to help. I am on pain Meds mostly and they hardly touch it, Xanax for panic attacks! Then 18 months ago or so I woke up in even more pain, excruciating pain in my hips upper legs lower back neck shoulders arms shin bones feet top and bottom upper back just below shoulder blades all the way up to top of neck into head, my skin even hurts!  I was diagnosed with PMR about 18 months ago by MD!  Put me on 40 Mg cortico Steroids, didn't help but kept taking by injection.  Told him I could not take steroids by mouth make me very ill.  Anyway they almost killed me!  My throat was swelling up, couldn't breathe well, heart racing!  I should have been in hospital, but didn't go!  I moved to Florida from MI in 2002!  Found a wonderful Dr. That helped me in every way he could!  He moved away about 3 or 4 years ago.  I cried like a baby!  I have been searching for a good MD ever since!  I have a pain Dr that gives me my pain Meds, but desperately need a good MD and Rhemotlogist!  Went to one, waited 3 months to get in, hour drive, nurse did vitals heart was beating at about 149.  Dr came in, I was in wheelchair couldn't walk hardly at this point, had no strength at all!  Anyway she bends down to look me in the face and says I am not a heart Dr. You must have EKG right now!  They rushed me downstairs to this facility and sat my wheelchair with everyone else!  Told them my name and so forth!  My MD had diagnosed me with PMR see rate 49!  All I wanted to do is find a good Rhemotlogist to take care of me!  Make sure his diagnosis was correct because the steroids didn't help pain at all!  Anyway I asked my husband whom was with me Thank God, to ask them how long to wait!  They said 30 40 minutes!  Told husband lets go!  The Rhemotlogist was not going to see me due to heartbeat! Which had been going on for years, and no one seemed to care!  I had been in and out of Hospitals with what I thought might be a heart attack, always same answer, must be Fibro! I just wanted someone to help me, as now I am too weak to even get to my 2 Dr appointments a month!  I am a smoker, I know, that it is bad for FMS and PMR and actually everything in your body, I am so far gone now, Emphazema, after 7 years of oxygen at night have been on for 24 hours a day now for about a year!  Can not can not sleep, ambien flexed il, pain Meds oxygen now so depressed and weak out of energy to even try anymore!  Praying to go to sleep and not wake up!  Which that is trying to happen too!  Waking in the morning not able to breathe!  Pray daily for strength to quit cigs!  Did quit twice once for 5 months then again for 3!  Helped me so so much with a little tot of my health problems cause haven't began to tell about all of them!!!  Am waiting now for in Home sleep test!  I was diagnosed with sleep apnea years ago, but not put on a cpap machine!  Cousin says he had a lot of same symptoms and sleep apnea ran in my family!  He's on me to get in right away for test because he got so much better after on cpap at night!  Know what, to exhausted and weak to type or tell story!  No appetite, don't care if I eat! I was about 132 when moved here, was up to 179 back down to 140!  I just don't know what to do anymore!  Liver enlarged, Dr did nothing, bladder problems, IBS, herniated disks in neck and back!  On walker and oxygen , I am paralyzed with where to turn or what to do, can't seem to keep fighting anymore!  Should have been in hospital at least 3 times in last 18 months!  Always get same answers, must be Fibro, although I had a oh crap can't remember what called, oh yeah heart cath, heart dr said muscle in back of heart not working properly!  On heart Meds for several years! Then was in again for something and had heart checked out again!  They find nothing and a younger heart Dr reads heart cath report, he says it is normal, go off heart meds, no good for you anyway!  I can go on and on!  Need throat scope had surgery since in FL for my vocal chords had pollops!  Have macular degeneration, wet in one eye dry in other!  Back on eye injections!  My MD never never had touched me not once!  He sits on his stool and types!  He gives me sends from his computer to front desk, if wrong, after just walking up front, have to make new appointment, won't rewrite scripts!  These are the kind of Drs I am running into where I am!  I have never seen such a poor bunch of Drs in my life!  All my Family back home in MI, so so lonely, can't go in sun anymore can't take heat, well now can't because can't breathe!  I am all in and figuring out how to just let go!  I can't even type anymore, nothing does any good!  Ty if you read this, I just pray for sleep, no pain, or a lot less, and some word called RELAX don't know what it means haven't for years!!!  ANY LAST HOPE HELP........

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