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I`ve been prescribed Lyrica for fibro pain ,and feel dreadful ,anyone else experience this?

Posted , 3 users are following.

sara50549
sara50549

first i`d like to say hi ,and introduce myself as i m new to this forum.I`ve been dxed with chronic ocd/ddd/fibromyalgia/tinnitus.Back/joint and severe muscle pains since my mid teens ,but was only taken seriously after my pain became significantly worse after my 3rd child was born.I`ve had numerous tests & proceedures ,and after discovering the damage to my lower spine and hips ,plus the fibro ,i was put on Zomorph and diazepam for pain relief. The dose has increased ,but my pain levels had mostly remained pretty high.Now my pain specialist has said it`d be beneficial to wean me ,Sowly ,off the morphine and prescribe a nerve med ,such as lyrica.I agreed and have just started this new drug ,but oh boy ,does it come with some nasty side effects. This is what brought me here ,as i`m wondering if these will subside ,or wether this medication is not for me.

I`m getting severe migraine type visual disturbances./Flashing lights/distorted vision.I also feel somewhat "high" yet don`t sleep well.When i do sit down ,totally shattered i crash straight away.Not that bad you may think ,except i`d just made a cuppa ,and came too with it pouring down my legs ,scaulding myself!!.I feel "out of it" .,cannot sit still (not helping with my ocd)..and my pain has increased! Horrid  stabbing pains and severe cramping in my lower back and legs.Again if i thought this would be temporary i`d keep going ,but i`m concerned that these symptoms won`t go away.I`d be extremely grateful for any input.advice any of you may have! many thanks! sarah..

0 likes, 7 replies

7 Replies

  • tina1966
    tina1966 sara50549

    Posted

    Hi Sara I haven't actually posted before so its my first time too so hello smile I also take lyrica at the moment I take 450mg aday for back /facet joint pains also use morphine patches I have been taking this around 10 months.I also suffer from migraines so severe I feel sick I have to close my eyes snd lay still till it goes, I never sleep yet again sounds silly id I sit down and woop im gone head falling forwards /backwords jumping my self awake , only two nights ago again fell asleep with a cup of tea in my hand !!! I feel spaced. Forget most things I do talk rubbish when im dozing off too.not always sure what's real or not as well .however I do feel my ocd has been helped massively with these but I am worrying over massive gain this is well known with lyrica I have constantly kept my eyes on it till now but I cant get my jeans on or my coat done up this worries me because extra weight will mean more pain for my back and my arthritic knees .so every symptom feels thesame except tge stabbing pains and cramping im notsure these symptoms do go away really but for
  • tina1966
    tina1966 sara50549

    Posted

    Sorry posted before I was ready so hope this messages continues after mine so as I was saying I don't think the symptoms do stop but those are better than the pain I have without them just my feelings but I am thinking of going to ask if they can be changed as the weight gain is a no go for me and I have heard there is another tablet similar to this which is better so its worth asking for sure Tina xx
    • sara50549
      sara50549 tina1966

      Posted

      Thanks tina ,i`ve been back to my ghp ,and now am trying gabapentin and citralapram.I`m still on zomorph ,albeit a lower dose ,.but mynpain is mostly manageable.obviously there are still the "off" days ,when i wish i was taking the oral morphine!!

      take care ,hope you have a great xmas and much healthier happer new year ,sarah xx

  • susan07920
    susan07920 sara50549

    Posted

    Hi Sarah, I have been prescribed pregabalin as an alternative to gabapaentin for nerve pain. Due to some symptoms of feeling " drugged and out of it" and also losing sensation throughout my whole body, a feeling like being in a hot bath, an out of hours GP said to get off it fairly quickly over 6 days, as he believes the symptoms I am experiencing are drug related and not symptomatic of my returned cancer in my liver . I have felt numb and had singing in my ears for 36 hours.  

    I also drop asleep without any power over staying awake usually whilst already resting on a sofa, but this is not the normal feeling of dropping off but more like the feeling of going under an anaesthetic, something due to my cancer I have a fair experience of. I have no medical knowledge but I would rather choose to cope with my pain from my liver with other pain killers such as paracetamol, and I have access to morphine when I need it. As I am a bit anti medication generally I have only used the oral morphine two or three times in the last three months or so. It seems to correct one problem I have made myself less comfortable. I am awaiting a decision for surgery. If you can avoid this drug safely, you are supposed like many to run it down before you stop I would, but please consult a GP. The drug was prescribed to help with nerve pain caused by my operations 2 years ago, now a scan reveals the pain is in fact a repeat cancer it is not necessarily a correct choice, but with on going diseases medications get in a bit of a muddle as you bounce back and forth between various health professionals. Good luck, Susan

    • sara50549
      sara50549 susan07920

      Posted

      Hi Susan ,many thanks for your message .I`m so sorryto hear your cancer has returned ,and ,hope by now that you`ll be doing much better ,and kicking t5his dreadful disease.

      my mum had colon cancer over 7 years ago ,but was given the all clear just over 5 years ago now.here s praying you`ll hear some positive news  and soon

      Thanks for the advice  re lyrica .i`ve now returned to my gp and been given another medication ,so ,heres hoping!

      you take care ,best wishes and good luck ,now and in the future ,sarah x

  • samantha80735
    samantha80735 sara50549

    Posted

    hya ive been on this med for some time now and never had those effects id go back to your gp to be on the safe side hope you sort it out .
    • sara50549
      sara50549 samantha80735

      Posted

      HJi Samantha ,

      I`ve been bqackl to my gp ,as i just couldnt get used to the pregabalin.Now i`m on gaba[pentin and citralapram ,which helps for the most part.

      thanks for your input ,best wishes ,.sarah x

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