I've been reciently diagnosed with hyperparathyroidism. Was also diagnosed yrs ago. But over the yrsIhadforgo

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Reciently diagnosed with hyperparathyroidism

Several days after I remembered I was diagnosed years ago. Had low calcium years ago. Have high calcium now. In changing drs my memory getting worse, I think it was before 2000. My doctor is going back into her storage to find records of diagnoisis, labs etc. I know its gotten bad. I'm constantly hurting . I have bone pain in places I never hurt before. My bone scan was definately worse. Im not myself. I am short tempered and just not nice. My kidneys have gotten worse. I have bladder infections often. My hair is falling out. Bad bad. I can hardly walk my legs and feet hurt so badly. My neck pain is extreme and my back pain is also severe. I get confused and afraid my situation is bad because I havent been treated for this yet and its gotten so painful. Seeing my primary on Tues to tell him about diagnosis years ago and get referal to see endo again but with my case completely changing. Im always so tired. I have Sjogrens, Lupus and fibromialgia, Raynauds, Hypertension but controlled by medication. Its a hard story to follow. Hope someone might know what I should do or any advice that could be offered. Thank you. Its been yrs since Ive been on this forum. Hope I am doing this correctly.

God bless all of you

kristyk

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  • Posted

    hi kristy

    i feel i just read about myself i am sorry you are going through this non existing feeling of life.

    my calcium high an yes all symtoms but high calcium it is definately hyperthyroidism and with knowing this your specialist should now be looking at your parathyroids situated behind thyroid and you will definately have an adenoma on one or more of your parathyroid glands . once this is removed so many women are feeling alive again ..i am fighting a surgeon right now who is not really wanting to take mine out i meet with him next thursday an am so sick of trying to convince him as i have read and learned from other women on youtube that this is the only answer for me to be me again.

    look at hyperthyroidism and parathyroidectomy on youtube an uk women are on there telling you what they have been through an after minor surgery they feel 30 again ..

    i do have an adenoma on my parathyroid an if it does not get removed we only get worse.

    my Australian specialist eants me to have it done yet now i have met the surgeon he is wanting me to have more tests when all the proof is in front of him .

    its the public system ..if i could afford for private i would go elsewhere in a second.

    hoping this info helps you a bit an hey know there are many of us suffering with you..your not alone

    hugs donnalee

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  • Posted

    HI,

    this was me only 3 weeks ago. I had all the symptoms inc brainfog, depression, weightgain, bladder problems, hair falling out etc. I didn't want to live anymore. My Doc kept putting me off, although my PARATHORMONE Levels have been high for over 2 years and due to the wait, I have ended up with all kinds of organ damage plus a heart problem.

    I knew if I wanted to survive, I had to go for the surgery to have the rumor removed. The system wont pay for it, although they should. I found a brilliant surgeon in HAMBURG and am now a changed woman. Try, if at all possible and find the money, to have it done to get a new lease on life. GOOD LUCK!!!!!

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  • Posted

    I had most of your symptoms and did have the parathyroid surgery but it didn't help me. I'm so disappointed the after all these weeks (3/12 surgery) I'm still so very tired and the awful brain fog. Hope you get better result.

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