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I’ve been told it laby and I’m so scared by the feeling

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helen_33917
helen_33917

Hi I been told it labyrinthitis how ever u spell it the doc hasn’t done any tests  just made me touch my nose walk etc looked in ears but came after a virus  so Thts why he guessing this .  He said Friday when I went back for  second time  tht he thought it was getting better but Friday wasn’t to bad then weekend was awful and yesterday was ok ish and today again awful it’s scaring me is this normal for labyrinthitus to have it worse somedays more than others thank you for listening x 

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2 Replies

  • Smitty89
    Smitty89 helen_33917

    Posted

    That's what they told me too back in april. I had swaying feeling and nystagmus(eye flutter ) with it among other symptoms. Fatigue brain fog hated driving all kinds of stuff. I'm still suffering woth the eye issues, but swaying has calmed. Comes and goes really, but my eyesdrive me nuts. I've been to an ENT, 2 eye docs, had mri and ct scan, blood. All came clear. You might be one of the unfortunate ones like the rest of us on here trying to figure it out. It's a terrible "disease"...but there are tons of people on here woth issues like you. Hope you find answers soon. I'm going on 4 months

    • helen_33917
      helen_33917 Smitty89

      Posted

      Yea the horrible swaying feeling and when walking I feel like I’m being pull one way sometime I go sideways I’m like wooooo it’s been really bad today it’s getting me down had a tearful day today . Not been sent for any test yet I’m going to go back again in a week if I’m still like it. X 
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