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I’ve done it - I’m off propranolol

Posted , 5 users are following.

pew
pew

im on day 6 off propranol and im finally starting to feel ok ish - had to push through terrible shaking and feeling wobbly but im coming through the other side- i can recommend gritting ur teeth and keeping going to get off it - still having horrendous headaches and feel if i could describe it as delicate but im so happy im sticking it out @

2 likes, 8 replies

8 Replies

  • davhill
    davhill pew

    Posted

    Just coming off it myself. I was on 80mg of the sustained kind so my GP gave me 40mg ordinary, which I've been using for a week. Next, I'll take one every other day for another week.

    It says clearly that immediate cessation is a bad idea so a taper is needed.

    • pew
      pew davhill

      Posted

      i was on 120mg for two years and after my psychiatrist apts i have gone done to 80mg and then 40mg and then tapered off to none which has all been under medical supervision.

  • Kermodesmum
    Kermodesmum pew

    Posted

    Hello

    why came off Propranolol in the first place? I am interested as i have been on 40mg twice a day, (slow release) for years and cannot imagine life with the dibilitating headaches again...but do question the amount of drugs and chemicals i put into my body each day, along with the paracetamol and ibruprophen .....you are a very brave soul indeed

    Kate

    • pew
      pew Kermodesmum

      Posted

      i just got so fed up of being on this medication i had the shakes and headaches and other side effects. under medical supervision i tapered down and felt ok - i just had a feeling of weakness and terrible shaking when i came off but after the week of pushing through i do not have any more headaches which is brilliant and i feel so much better and alert off it. i think because i was so determined to get off it to give my body chance to recover from this medicine i did it and dont regret it at all - so far - good luck if u have a go - its worth it for me feel back to my old self again x

  • davhill
    davhill pew

    Posted

    I'm going on to 40mg every other day, after dropping from 80ml XL to 40 normal for a week.

    No negatives at all but I've noticed my hair is waking up. I have 'baby hair' . . . it was lifeless and I was seeing a lot in the brush. Luckily, I've a non-balding family.

    • pew
      pew davhill

      Posted

      i was fine cutting it down it was just when i stopped altogether i started with the the shaking but honestly i feel like my old self much more its worth it though

  • ian82869
    ian82869 pew

    Posted

    I was on propranolol 40mg for 14 years, the last 10 of which I also took 10 Citalopram in combination. I withdrew from Citalopram first in 2017 and then Propranolol in October 2018. I then over time found I was having headaches when waking so asked my doctor if I could substitute my blood pressure medication, Losartan, with propranol 40mg. I understood that propranolol lowered blood pressure and helped with headaches also. I restarted 40mg propranolol on 9 January 2019 which was soon increased to 80mg. Blood pressure was OK.

    February and March were not good for me. Sweating, anxiety, insomnia..... Horrendous. But I was delighted to notice that the aches and pains and cold feet and cold hands disappeared. Good news bad news!

    I asked to be put back on Citalopram 10mg and started them again in March 2019. Gradually the anxiety and sweating went

    but the cold hands and feet returned!

    So I am now in the process of gradually tapering off propranolol 40mg. I am now down to 30mg then 20mg alternate days. I will be on 20mg each day this Saturday.

    I find that taking 5-htp has helped me immensely in sleeping. I do not wake every hour as before.

    I also think that 5-htp is helping with withdrawal from propranolol. But time will tell when I finish them completely.

  • deborah301080
    deborah301080 pew

    Posted

    I tried to come off mine from being on it 20 years and I couldn't stand or get out of bed due to raised blood pressure and being tachycardic but it's making me feel a zombie and like my body is jelly now and weak knees

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