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I've got colitis and was wondering what medicines other people are on for it

Posted , 5 users are following.

helen_73491
helen_73491

I was diagnosed with colitis two years ago and am having a bad flare up at the moment and so have had a course of metronidazole which haven't settled it down,also I'm using mesalazine 1gram suppository every night however I've just been prescribed asacol 800 mg one three times a day and was just wondering if anyone else is using them and how they are finding them as they seem to have a lot of side effects which is worrying me about taking them,can anyone please advise or help me thanks

1 like, 5 replies

5 Replies

  • claire-mar29574
    claire-mar29574 helen_73491

    Posted

    Hi Helen.

    I'm 32 and have had colitis for 16 years.

    I had bad flares on and off for the last 3.5 years-since my dad died I think

    I'm on asacol 4 a day. Aziathiaoprine 100mg a day. Predniselone for 6 weeks. Calcium tablets.

    I've had steroids on and off for years. They are brilliant but boy do they keep you awake etc. Terrible in that sense.

    I've always found my asacol and aziathioprine to work well together-when I'm not flaring and have had suppositories in between.

    The trouble is that everyone is different and what works well for one doesn't for another.

    That's what makes colitis and chrones disease so evil...I don't have side effects that I know of with my normal tablets.

    😃 x

    • helen_73491
      helen_73491 claire-mar29574

      Posted

      Thanks so much Claire for your reply,this illness is so horrible and really gets me down at times as you can be fine for months and feel great and then all of a sudden it starts up again,I find when it's bad it really effects my social life to as I'm frightened to leave home in case of an accident,I've been running a temperature on and off as well which makes me feel worse but the doctor has already given me metronidazole in case it was a bowel infection,ive been eating a much healthy diet as well but it seems to make no difference atall when your having a flare up, I'm releaved to know what's wrong with me but the illness when active is horrible and very tiring I could sleep for a week xx
    • claire-mar29574
      claire-mar29574 helen_73491

      Posted

      I know what u mean...lethargy is awful..every day I different..we are all here if u need to talk day or night..x
  • rj69947
    rj69947 helen_73491

    Posted

    tried pensata supps got bad side effects now on steriod supps and day 6 no bleeding smile x
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