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I've had an unknown problem for years that is getting worse and worse. Any idea what this may be?

Posted , 5 users are following.

bridgesyd
bridgesyd

Hi,

I feel as though I've exhausted all hope in getting to the bottom of what is the problem with me. I've lost hope in doctors as I feel they look for one particular diagnosis they have in their mind and if they find out I don't suit that diagnosis via testing, the subject is dropped and I'm left with nothing.

Here are my symptoms, most are cognitive:

*Feeling "out of it", as I call it. Like a zombie.

-- Expanding on this, I don't recognize myself in the mirror, I can't concentrate, it is EXTREMELY difficult to process new information, numbers sometimes I can't comprehend their meaning. Basically, I feel what I imagine it would feel like to be heavily sedated. It is a special kind of hell.

*Dyschronometria -- Essentially, I can't comprehend time. Minutes literally feel like hours to me, so I have to constantly look at the clock to understand the amount of time it has taken me to do something. For example, if I'm doing something, I often have to put an alarm on so I understand "okay, it's been thirty minutes". Otherwise I'm scared I'll be cleaning or working or watching TV for hours and not realize. This must sound ridiculous, I know, but it is a real disorder.

*Short Term Memory loss -- Due to having very little short term memory now, similar to the alarms but a bit different, if I think of something important or something to remember later, I have to tell my husband then and there or text him because I just know I'll forget. It feels like I'm not in control of my own life

I'm 25, this has been hell for years. I don't remember my wedding day. I could never be so selfish as to bring a child into this world when I'm walking around like a zombie, even though my husband and I want a family. Work is extremely difficult. Especially as I've swapped from a physically stressful job, to a very mentally stressful job as a recruitment coordinator.

Because no one can help me, I've gone to extremes to try and help myself. This consisted on years of different extremely restrictive diets. The first one consisting of cottage cheese, flaxseed oil, and fresh bananas or frozen pineapples. Day in and day out, this was my food. A few years later, I had this fear maybe carbs could be causing inflammation in my body. At this point, I lived off of hummus, salads, soya bacon bits and berries. Day in and day out. Naturally, this left me very underweight.

During this time, I discovered, by accident, that Prednisone helps my symptoms. Dramatically. I had been prescribed prednisone for an unrelated skin disorder. But my god, it felt like I was waking up from a coma. But my hair started falling out, my face was swelling and I eventually got to the end of my prescription. So I was back to living in hell.

Things are continuously getting worse. If someone has any idea what this could be, please let me know. I don't have a regular doctor I see as, to be honest, I feel doctors have failed me so many times I feel embarrassed and vulnerable telling another one my story all over again for the same cycle to take place. But, at the very least, if someone has an idea or has experienced similar, I would have the courage to take that information to a doctor and ask if they think it could be what I suffer from.

Sorry it is so long. But my life is in shambles.

0 likes, 2 replies

2 Replies

  • yan50450
    yan50450 bridgesyd

    Posted

    We need more information.

    When did this start happening? Think back! You were not born this way. When did it start? Roughly?

    When did you first notice something was wrong?

    Are there any circumstances in which you feel better? for example, if you are on a vacation, did you feel different?

    So you don't remember your wedding day, okay, but do you remember last week? What about what you had for lunch yesterday?

  • Marina_Dee
    Marina_Dee bridgesyd

    Posted

    Yan seems to be thinking the same as me. When did this start? A traumatic event in your life that you didnt deal with? Has anyone suggested some in depth counselling for you ?

    You may say you are not depressed and dont need counselling but as all else has failed it may be the answer.

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