I've had Episcleritis 4 weeks back, now returns.

Posted , 4 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Hi all, as above I had Episcleritis 4 weeks ago, but stupidly stopped treatment (eye drops) after a week. It came back 2 weeks later and I did another week of treatment before they ran out. 2 week on, and now it's coming back again. This time Ibe noticed than when I look in the mirror and turn my head my eye "wrinkles" up by the colour ring of the eye. Apart from completing the meds next time, does anyone have any suggestions? I.e why I keep getting it, and what the wrinkling is? And should I go.back to the doctors? Many thanks if you can hell

0 likes, 7 replies

Report

7 Replies

  • Posted

    I started out like that with Epis. Now I have Sclertis, drops do nothing for me, not even when i had only Epis.. I now take 4 advil twice a day to deal with the pain and the redness. Also try ice  packs.You didnt mention if u have pain, when i had Epis. I had no pain. It was only when it turned into Scleritis the Major pain started. Get yourself a really good doctor. It took 12 years for my Epis to turn into Scleritis
    Report
    • Posted

      Hi, thanks for your reply. I don't get pain as such. When my eye goes all red it aches and feels kind of bruised. Nothing intense though, just uncomfortable. But it isn't constant, on and off through the day.
      Report
  • Posted

    I've been on steroid drops every day for 10 years to manage mine. This caused 3 glaucoma surgeries, but couldn't be avoided. I would see a doc about the "wrinkling" for sure. That doesn't sound normal.
    Report
    • Posted

      Im really surprized your doctor lets you be on them that long, my doctor only wants me on them 5 days, thats it. Are you seeing an ophthalmologist?
      Report
    • Posted

      I've seen several including the cornea specialist at Duke and a cornea and glaucoma specialist at the University of TN. There's no way to control Long term epischleritis without steroids. Mine doesn't come and go. It's all the time for 10 years. I can go about 3 days without drops and then it flares again. I've looked for other cases like mine, but I can't find any and neither can my doctor.
      Report
    • Posted

      So sorry to hear that Maria, I belong to a facebook page called 

      Episcleritis is a Total Bitch ,There are many people on it that have Epis. You might want to join the page. People say what they tried and how it works .

      Just put that phrase into facebook search  engine. Good luck to you. This really is a BITCH. 

       

      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up