I've had PMR for 2 and a half years
Posted , 10 users are following.
I have an unusual case of PMR so my doc says. Rather than pain I have everyday periods of just feeling terrible in various parts (tummy, upper back, lower back, or entire upper body) of my body. I want to emphasize it is terrible. My doc had me on prednisone 2 years ago but did not want me to continue with it. Now I just take a strong dose of Oxycodone on a as-needed basis. I don't over do it. Thinking back I think my deceased father had PMR even though it wasn't diagnoised and my niece has it so it apparently runs in the family. I'm hoping it will just go away but it doesn't look so. Any comments appreciated.
0 likes, 11 replies
tina-uk_cwall Edulm
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Edulm tina-uk_cwall
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EileenH Edulm
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Add to that the fact that painkillers of the normal variety don't usually provide relief in PMR - the pain is due to inflammation and only reducing the inflammation will work, oxycodone is not an NSAID.
As Tina says - I wouldn't hold my breath! I've had it for 12 years. Only pred makes life livable and having been on it for 6 years I can't see any major downsides to be honest. It isn't a case of pred is bad, no pred is good: as long as there is unmanaged inflammation rampant in the body it is causing damage, predisposing you to other nasties, in the form of cardiovascular disease and even cancers.
Edulm EileenH
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oxycodone which helps. Ed
Daniel1143 Edulm
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i would storngly recommend a second opinion
Edulm Daniel1143
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ptolemy Edulm
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Edulm ptolemy
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ptolemy Edulm
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EileenH Edulm
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And if pred works I'd accept the risks of that long before I'd take opiates.
iellen32 Edulm
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I have GCA there are three years.
As I see you are out of any steroid (!) following your doc advice.
We need the steroid though. It is not our enemy it helps the inflammation which keeps running behind regardless the results of the blood tests and you symptoms are an evidence of that.
I would look for a second opinion as soon as I could.
Stay well, do the best you can!
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