I've had vertigo for 6 years.

Posted , 9 users are following.

I am going for a neurology appointment tomorrow. Have any other vertigo sufferers been to one? What can I expect and is there anything I need to bring with me? Did anyone find it benefical for vertigo?

Thank you. 

0 likes, 13 replies

13 Replies

  • Posted

    The neurologist I saw I'm afraid was not very helpful.  I wish you success with your visit.  I believe it was the doctor and not the profession of neurology that failed me.  I did some nerve conduction tests though him.  My vertigo was finally dianoged as ear crystals by a balance doctor.  My biggest help has come three years later through a chiropractor (she has done more in 3 months than the combination of doctors helped in 3 years).
  • Posted

    I certainly hope that you mean that you have had vertigo occasionally for 6 years?  Or are you referring to general lightheadedness/dizziness as opposed to violent spinning sensations?  At any rate, my neurology appts. have been pretty much a waste of time/money, and I agree with Kathie that chiropractic treatment has been the most helpful.  That is provided that the chiropractor is careful about not doing any damaging rough manipulation on your neck.  Read about cervical vertigo and see if you see yourself there. Good luck.

     

    • Posted

      To build on that - my chiropractor does not do bone cracking.  It's a very gentle manipulation but has been very effective.
  • Posted

    I I have had vertigo for 1.5 years. I have just been to a vestibular neurologist  for the first time ( I have been everywhere else over the year..)

    He has gone down the drug path which I didn't want to do but I haven't improved,  I feel I have no other option left so I am giving it a go. The drug is an antidepressant (even though I'm not depressed) called CIRPAMIL.

    the neurologist ran all my tests again (all with same result as before but through different lab) I have proufound hearing loss (deaf) and 100% loss of vestibular nerve on one side from a gone wrong surgery.

    it is more than difficult!

    After 6 years I'm guessing you have tried everything else? 

    VRT -vestibular retaining therapy ?

    It's to soon to say if helping. I had to take all my MRI results and any other tests done over the time. He was thorough and definitely worth waiting to see..he gave me hope.

    He gave diagnosis of vestibular migraine and mal de Desembarquement 

    syndrone. He seems to think it is possible for me to 'come back' and stop rocking with the right Meds by kick starting my brain????

    good luck tomorrow ..I hope you find hope

     

  • Posted

    Dont expect,too much fm a Neurologist!  the deal,with brain damage and tumours mostly. I saw one and it was very disappointing. She didnt hardly examine me, just passed a pen back and forth in front of my eyes amd asked some wuestions.  They ar not trained in the Vesrublar system so cant help,people like us !!m What, or who you should see is a NEURO Otolgist, big difference.,
  • Posted

    I did see a neuro-otologist 
    • Posted

      So didi! But if you've got a difficult  case sometimes even they can't help much, i know . But for people,seeing a straight neurologist they will,not benefit unless they have brain injury or tumour etc. 

      Like You Lynne i was prescribed drugs, all of which neither helped,,or made it worse.  some i refused to take, period! Even the VRT has t helped.

    • Posted

      Hi gillian!

      do you mind if I f I ask you.....

      What have you found to help you the most? 

      How long have you had vertigo?

      Has any professional suggested they can help you?

      How long did you take drugs for before you decided they didn't help?

      Lynne

    • Posted

      Ihave had it 5 years plus. Seen lots of professionals, ent,audiologist ,,physios,,neuro,Otologist. I am diagnosed as 'Chronic Disequilbrium'! 
    • Posted

      Sorry page froze couldnt enter more script! Both drugs, the one that begins with P? Long name cant remember, and the Amiltrypaline, made me feel,worse so Imcouldn't continue taking them. My vertig symptmns are not spinning they are swaying type and i am constantly  'off centre', but because i am not one to give into anything i keep,pushing myself to,keep,going. I also had an eight week course of sessions for CBT.  Because i get exhausted with it all i take plenty of,good qualitysupplements etc.
  • Posted

    Hi Jackie - I have two neurologists.  One is a regular one and the other is a headache / migraine specialist.  Ive had MAV migraine associated vertigo now for 3 1/2 years without stopping.  Was worse in the beginning but have improved and got rid of some symptoms.  Tried about 9 meds, none have worked with the dizziness and thats the bit I cant stand,  Dont mind the occasional migraines, they go with ibuprofen in a couple of hours.  Had them all my life.  But the dizziness and crap started after I came off HRT and had a bereavement where I cried for a full week.  That played havoc with my sinuses and the splitting headache came but with vertigo.  And its been there ever since.  Im on botox now and has seemed to have stopped the jumpy eyes when Im driving.  Still get jumpy eyes in stores.  Very light sensitive and sound sensitive plus scalp hurts.  Stiff neck, cheek and jaw hurts from time to time.  Left eye watery.  Migraine.  My eyes did feel they were being pulled out from the front and a cheese grater was at them from the back.  Head thick and muzzy, pressure on forehead, pain at back of head. 
  • Posted

    I saw a neurologist...helped little....was referred over to a headache specialist.........Question any meds if any they may want to put you on...aks about side effects and if you can come off of it quickly........do your own research
  • Posted

    Six years is a long time to have this! Sorry about that. You don't need to do anything in advance, but maybe I would recommend not eating a big meal beforehand, in case they do some tests that might make you dizzy. 

    The first neurologist I went to got angry that the ENT doctor sent me to her because she insisted it was BPPV (positional vertigo that comes and goes), and was going to have me get an MRI for spite to prove it to him! I said no thanks and got outa there.

    That was one of the problems I had, the BPPV, but I also have some sort of central problem (brain-related) that they can't pinpoint but ENT/ENG tests showed that I have a deficit somewhere between my inner ear-eyes-body feedback to the brain, so they sent me to an otoneurologist.

    He is very good, and not only is he looking into whether my continued imbalance (not vertigo) might be related to migraines, damage from a small stroke, or nerve damage from diabetes, but he also fixed my BPPV! He did the Epley maneuver to get the crystals of CaCO3 back into the right place in my inner ear, and that took away my vertigo instantaneously and completely, after having it for over a year.

    Good luck and I hope you find one that is as thorough as mine is.

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