I've had vertigo for 6 years.
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I am going for a neurology appointment tomorrow. Have any other vertigo sufferers been to one? What can I expect and is there anything I need to bring with me? Did anyone find it benefical for vertigo?
Thank you.
0 likes, 13 replies
kathie37110 jackieannjones
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nanci28940 jackieannjones
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kathie37110 nanci28940
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lynne85105 jackieannjones
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He has gone down the drug path which I didn't want to do but I haven't improved, I feel I have no other option left so I am giving it a go. The drug is an antidepressant (even though I'm not depressed) called CIRPAMIL.
the neurologist ran all my tests again (all with same result as before but through different lab) I have proufound hearing loss (deaf) and 100% loss of vestibular nerve on one side from a gone wrong surgery.
it is more than difficult!
After 6 years I'm guessing you have tried everything else?
VRT -vestibular retaining therapy ?
It's to soon to say if helping. I had to take all my MRI results and any other tests done over the time. He was thorough and definitely worth waiting to see..he gave me hope.
He gave diagnosis of vestibular migraine and mal de Desembarquement
syndrone. He seems to think it is possible for me to 'come back' and stop rocking with the right Meds by kick starting my brain????
good luck tomorrow ..I hope you find hope
gillian76726 jackieannjones
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lynne85105 jackieannjones
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gillian76726 lynne85105
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Like You Lynne i was prescribed drugs, all of which neither helped,,or made it worse. some i refused to take, period! Even the VRT has t helped.
lynne85105 gillian76726
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do you mind if I f I ask you.....
What have you found to help you the most?
How long have you had vertigo?
Has any professional suggested they can help you?
How long did you take drugs for before you decided they didn't help?
Lynne
gillian76726 lynne85105
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gillian76726
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paula59 jackieannjones
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rita52071 jackieannjones
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dee50000 jackieannjones
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The first neurologist I went to got angry that the ENT doctor sent me to her because she insisted it was BPPV (positional vertigo that comes and goes), and was going to have me get an MRI for spite to prove it to him! I said no thanks and got outa there.
That was one of the problems I had, the BPPV, but I also have some sort of central problem (brain-related) that they can't pinpoint but ENT/ENG tests showed that I have a deficit somewhere between my inner ear-eyes-body feedback to the brain, so they sent me to an otoneurologist.
He is very good, and not only is he looking into whether my continued imbalance (not vertigo) might be related to migraines, damage from a small stroke, or nerve damage from diabetes, but he also fixed my BPPV! He did the Epley maneuver to get the crystals of CaCO3 back into the right place in my inner ear, and that took away my vertigo instantaneously and completely, after having it for over a year.
Good luck and I hope you find one that is as thorough as mine is.