I've suffered from this distressing condition for almost...
Posted , 6 users are following.
I've suffered from this distressing condition for almost 5 years. My doctor was useless and I ended up going private to have it diagnosed.
To make matters worse, my doctor told several people that I was a difficult person.
I have lost all my self confidence and no longer work. My husband resents the fact that I don't work and he still has to. This makes me feel very guilty.
I don't drive any more, as I find distances to difficult to judge, I'm just plain scared! If the sun is bright I find it more difficult.
Sometimes when I am being driven I get very dizzy because of the speed of the traffic. I don't know why this happens, it feels as if I am going to pass out every time.Irritates my husband :-(
The injections I have are the only thing that make this bearable, I feel like a freak.
[i:8f08e04352]This message was automatically imported from the original Patient Experience[/i:8f08e04352]
0 likes, 7 replies
Monal
Posted
What helps you? Have you joined a support group?
carol
Posted
Guest
Posted
Eventually, I had a myectomy on both eyes, I still needed Botox injections for about 2 years.
But the good news is I haven't had any Botox for over a year and my eyes are finally a little better.
Perhaps you need to go doen this route??
elvisfans
Posted
The Botox is not working like it did at first around his eyes. Another Hospital even tried Botox in eyelid (only did one incase his eye stayed open or stayed shut) but didn't help too much. Waiting appointment for it doing again.
Guest
Posted
Guest
Posted
Eventually, I had a myectomy on both eyes, I still needed Botox injections for about 2 years.
But the good news is I haven't had any Botox for over a year and my eyes are finally a little better.
Perhaps you need to go doen this route??[/quote:4d8e32a7de]
ann.c
Posted