I want to say thank you

These disorders suck to be honest.  Its crazy how it changes.  I started with rocking/swaying sensations thru my entire body for 10 months, it started to get better after starting VRT in March, then the sensations changed to a leaning, falling backwards, bobbing up/down, and i have all these feeling wether I'm sitting, laying down or standing, I also feel the floor moving when I walk, feel like I'm being pushed forward when walking sometimes, dropping feeling when standing, headaches, nausea, ear fullness and popping, neck pain, fatigue, dizziness when moving my head or keeping it in one position for to long, there are so many differnt dizzy sensations and they do change. 

I had BPPV in 2009 and was treated successfully but then when this started I had it again about a month ago, it was awful.  Also had the falling from the sky feeling during the VNG testing so they stopped the test.  It makes no sense to me,how one day be fine and all is normal,then bam dizzy, can't eat certain foods anymore, feel anxious, nauseas and off balance all the time.  The food thing really make no sense to me, I've eaten chocolate, cheese, wine all my life with no problems, now I'm afraid to eat it, because I could a dizzy headache for days, its totally crazy to me.  

I know when i do things like vacuuming, mopping and bending forward a lot I get dizzy off balance and that last for hours.  Showering is a problem also, so I actually bought a shower stool so I don't have to bend forward to shave my legs, good Lord I sound like a 90 yr old and i"m 54.  I feel like I"m aging so fast, but I don't look that way, lol.  When I have the head, shoulder and neck pain I get dizzy before it and then all of it will last for 3 days.  

I guess I'm lucky I still drive, go to work. But I battle everyday in some way with dizziness.  The other thing that is weird to me is the anxiety and panic that comes with it.  I've alway had anxiety but normally only in situations but this is different and I hate it.  I'm really hoping this propranolol works for me.

Have you tried any meds?  I know I hate meds and they scare me with all the side effects, but I realized I can't live like this, so I had to try.  I took amitriptyline for about a week and it stopped everything, but I had a reaction and some vision problems on it so the ENT stopped it.  He said I could try nortriptyline which is the cousin to ami but has less side effects, but I just couldn't take it, all i could think about was how the ami was and it scared me.   

2 mg diazepam used to help. Now it does nothing. No other meds for it. Same here with triggers. Seems tho everything sets it off. Working on me and my wife's cars sets it off. Especially if I have to get under them. Turning my head all different directions. Why at first I figured was the bppv again. But this time I didn't do anything. ENT thinks it is menieres. It kinda fits to. Have family history if it. So must be my turn.bad thing us they all have money and don't work. I am the poor side of the family. Lol. Sometimes I wish it would go jump all over someone else.

I know this disorder sucks to put it bluntly. I'm sorry your having a hard time, but I know how you feel. I was so terrified of this for about a year. Every tiny little thing would send me right into panic and anxiety. It's hard to not know what each day is going to bring, for that matter what each hour can be like. I know I have weakness at times, were I just feel like I can't move and I'll just feel so tired I can't stay awake. Then I start to think oh no something else is wrong now and yup that anxiety poors out. If course with anxiety we get a managerie of symptoms, I know I do. Also having the anxiety makes the dizziness worse so the visious circle starts and go can go for days or hours.

Lately I'm having falling backward and sinking feelings when I sit, especially in certain positions, what is that I have no idea. It's just makes me crazy. The dizziness is ever changing. So of course my brain has bad thoughts that it's something new and shoukder I go running to a doc. I stopped the docs I just can't keep running to them.

Your not crazy and your personally is fine, it's this crap, when your scared you just can't help but be angry and sad at the sane time.

I hope you fe better

If I could get rid of the dizziness my anxiety would be much lower. I've had anxiety for many years started when my thyroid went out of whack, I'm hypo thyroid. But sunce this started 16 months ago I the anxiety has been awful. I never had it when going out, like shopping or dinner but now I have it everytime, thankfully I have Xanax I can take. I just started propranolol a few weeks ago and I hope it helps the dizziness, it has helped the anxiety some tho.

What diagnoses do you have? What symptoms do you have? Is it daily, does it come in less dizziness at times? Are you on any meds? Sirry for all the questions.

It started over 2 years ago while driving. I went numb in mouth and hands and feet. Vision got strange. Was trying to just drive to get lunch thought blood sugar was low or something. Pulse all over the place. Blood pressure all over the place. Wasn't hyperventilating. Called ambulance which was almost embarrassing at 32 years old perfectly healthy. Never been the same since that day. Sweating. Palpitations. Dizziness that never ever lets up. Nervousness. Can't stay awake. Can't sleep at night. Can't remember anything. Feel like my body is always sick and always ready to jump out of stupid situations. Like cars in car washes. Persistent head pressure feeling. Its like I have been stuck in a permanent trip for over 2 years. Never completely here anymore. Numbness in hands and feet and mouth at times. Used to have strange scalp sensations. Can't stand around too long feel like I can't cross parking lots or walk far anymore without worrying. Sudden rushes of scary dizziness. Haven't passed out yet. MRS,MRAs, CT scans of head neck and back including abdomen. ENT found abnormalities that they can't pin point. Found out through rheumatologist antibodies sky high for hoshimotos disease but thyroid labs too normal for all 5 endocrinologists to care. Blurred vision double vision. Headaches. Neck aches. Back aches. Skin itching and boils. Hair was thinning but comes back thank gosh. I used to be a healthy woman who never thought about death or my health at all. This has changed my entire life and the personality changes freak even me out. Memory gone been meditating and using oils and calming techniques as well as chakra work. Acupuncture and acupressure. Tried paleo for few months. Gluten free too. Just constant irritability and fear for the fact they are missing something but you know..... After 2 years I kind of just realize what I've been accomplishing despite this and rest when needed and calm as much as I can. This is horrendous as we all know but oneday I keep hoping it will just lift and my head will be clear again. Lol. We can hope can't we? But hoshimotos is my only diagnoses. I've also been doing vestibular therapy from the techniques I've learned from Youtube. The diets are said to produce results possibly after a year. Give me a break please im a sick busy scared working single mother. The strict diets don't always stick well.

After you've had it for years you start to notice more , or remember more symptoms.