I was diagnosed with Achalasia in October 2006 and it's ...

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I was diagnosed with Achalasia in October 2006 and it's taken me this long to find other people with the same condition! I've had the major symptoms for around 2 years but like many others just put it down to stress! My GP suggested Gaviscon at first then on moving house and changing GP's I was referred to the hospital. I cannot fault the consultant, from my first endoscopy he knew what the problem was but still had to refer me for the mametory test at a London hospital where it was confirmed. I have since met with both my consultant and my surgeon and have decided to go for the surgery straight away.

As always with the NHS there is a waiting list of months (they're not sure how many months!). However I do have a form of private health care who can help and am waiting on the paperwork!

I have never had any form of surgery before and am obviuosly extremley worried about every aspect of it! Having read other peoples comments it seems worth while and although I wouldn't wish this condition on anyone I am glad I'm not alone.

[i:53a69ed3e1]This message was automatically imported from the original Patient Experience[/i:53a69ed3e1]

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4 Replies

  • Posted

    Hi, I am in the process of being diagnosed with Achalasia. Had a barium swallow 5 weeks ago at Royal Free Hospital London and going to see specialist on Friday. Which hospital were you refered to in London? Did you have your op yet? On the NHS? Sorry just want to know how long I might have to wait. Thanks in advance.
  • Posted

    Im 17 i have this problem as well. and i was checked at royal london hositpal in whitecapel. i had a test where they put a wire through your nose and they check the pressure. after that it was confirmed i had this illnees. after a month the doc booked me a apiont for operation. soo should take like one month
  • Posted

    hi my name is Eilidh and i'm 11 years old and have had Achalasia for about a year. i've stayed in yorkhill sick childrens hospital for about a fortnight. i had 1 op to get a camera down my throat and into my gullet to see what exactly was happening and i was shocked to find out that i had to be fed through a nasogastric tube ( thin tube that goes through my nostril and into my stomach) on 13/11/08 i will be getting another op to stretch the narrowing of my gullet and hopefully be abale to eat for christmas ! it feels good to know that alot of people are going through the same pain as me. [/b]
  • Posted

    hey guys,,

    wanted to say that i know how you all feel

    I am 30yrs old and i was diagnosed with achalasia late april 2006,had myotamy in june that year, dont worry too much about the opp.My experance was a good one. the surgen was at royal surrey county hospital by Dr yenn soung.highly recomended!!!!

    i too was extreamly worried what was wrong with me but as soon as i was in the hands of the mattu team there i knew id be fine..

    was in hospital overnight!!!!so only there 2 days!!!

    recovery was ok i was sighned off work for 6 weeks(involves heavy lifting)

    i was a bit stiff for a few weeks after,but the main thing was that i could eat again..

    still to this day i suffer with acid reflux from time to time(once every 4-6 weeks) but eatin well outweighs that!!!

    hope all goes well with you all



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