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I was diagnosed with copd in 2010. Now I have been diagnosed with Osteoporosi.

Posted , 13 users are following.

anjay62
anjay62

i have been on oxygen since 2012 16 hours a day for my copd I have a lung capicity of 21%. I had severe back pain from November 2013 to March 2014 two x Rays showed up nothing was wrong then I got a mri scan done I had to be sedated to lie down flat that showed my whole lumber spine had collapsed  and two vertabrae's in the middle of my back had collapsed too. I have now been diagnosed with Osteoporosi and the pain is unbearable. My gp prescribed oral morph but the consultant I see at hospital put a stop to it because of my copd. I have been prescribed tramodel  pre-gabilin paracetamol and a few other's which do absolutely nothing. My go has now prescribed diazepam three 5mg a day. And this does help. I am getting so down and depressed with my back. I can't even lie down flat in my bed and I am up most nights I have had bone density scans and this shows thinning of the bones. I am only 52 by the way. My hubby does everything like housework shopping etc. I have also started getting pains in my legs & feet when walking and am praying I don't go off my legs. Am now scared the doc I see at the hospital for my copd now stops the diazepam. It has eased my back abit but not totally. Does anyone have any ideas for me as I can't take much more I am so depressed and don't want Ma husband under anymore stress. Thankyou for taking the time to read this. X 

0 likes, 22 replies

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  • AmesburyAbbey1
    AmesburyAbbey1 anjay62

    Posted

    Gosh, I am very sorry to hear about your state of health...a friend of mine has COPD and is always depressed...As far as I can tell, this is normal. I hope there is someone out there who can help you with more advice.
    • anjay62
      anjay62 AmesburyAbbey1

      Posted

      Thanks for your reply. The copd I can handle as I have all my inhalers and 4 nebulisers a day then 16 hours on my oxygen. But this back pain is driving me nuts. I hope you are in good health. X 
  • iamowen2
    iamowen2 anjay62

    Posted

    When i disslocated and broke my shoulder I was given opioids, but they did not help with the pain. Oramorph just allowed me an hours sleep then I would wake up in agony and remain that way for the next 23 hours. Doctor realized that opioids don,t work with me and tried me on non opioid painkillers but the side effects were undesirable and it never really killed the pain anyway. Years ago when ibuprofen was first released my doctor gave me some big pink pills, one of which would kill any pain dead. Today I think we are not on the origional ibuprofen but some generic substitute. It may be worth asking your doctor for non generic ibuprofen and trying them. Hope this makes sence and that it is of some use and releif to you.

    Owen

    • anjay62
      anjay62 iamowen2

      Posted

      Not allowed ibuprofen makes me wheeze had them at the start of this back spine problems. Just sick of all meds I have tried are no good for my copd they all effect the respiratory system apart from pregabalin and tramadel which are no use for my pain. 
    • iamowen2
      iamowen2 anjay62

      Posted

      Sorry to hear that, have you tried naproxen, gave me pallpitations but may be ok for you

       

    • anjay62
      anjay62 iamowen2

      Posted

      Yea on them this now don't find they help.sad x 
  • Nanny1086
    Nanny1086 anjay62

    Posted

    I'm so sorry to hear of your problems,,,but I'm sorry ,,,I can't add anything to this discussion ,,,,but I wish you well ,best wishes, 
  • kathy70567
    kathy70567 anjay62

    Posted

    I wish I had words to tell you that will make you feel better but you did one great thing you found this site and the people on here will help you greatly...I am still here to talk if you need a friend.
    • anjay62
      anjay62 kathy70567

      Posted

      Thanks Kathy I only found this site tonight so glad I found it. All replies have been nice and thoughtful. Hope we can have a good chat soon. X 
  • DawnDedee
    DawnDedee anjay62

    Posted

    Anjay62, you must be an incredibly strong person to endure what you are enduring. And your husband too. I have a couple of thoughts.

    Have you taken anything for actual nerve pain? Has any doctor offered you a way to improve your spine like laser surgery or rods or something? I can see why diazepam helps and you need to stand up and firmly demand that the diazepam will not be taken away and reinstate which ever other medication that helped you was already taken away.

    This is not a time to worry about addiction because you NEED relief from an extreme condition which is medically documented. Stand firm! You live in your body, not the doc and while he sleeps at night, you cannot!

    Perhaps it is time to shop for a different doctor? Also, there are other forums on here that discuss back pain and spinal problems where you will find others with similar challenges and more information.

    My heart goes out to you and I pray for a solution is just around the corner!

    Dawn, US

    • anjay62
      anjay62 DawnDedee

      Posted

      thanks Dawn before I got my mri scan my husband bought all these back machines from chemists and when I used them it was like shocks to my back. Am also on three lidocaine patches on my back twelve hours on and twelve hours off. I am waiting to see a specialist about cement injections but again I need a general anaesthetic for this and because of my copd I am a high risk so don't know if he is going to help. I didn't know there was a forum for back pain I will need to find it. Thanks you are so kind. X 
    • DawnDedee
      DawnDedee anjay62

      Posted

      Well it might bring you some measure of comfort to know that I have been functioning at only 30% lung capacity since my early 30's and am now 56 with about 8 surgeries under my belt and while it is an extra risk for us COPD patients, extra precautions are taken and I am still alive and kicking! I pray you will come through wonderfully!

      Hugs

      Dawn, US

  • sherylbceroc
    sherylbceroc anjay62

    Posted

    Hello, so sorry to hear of your health problems and the amount of pain you are having to cope with on a daily basis.  I have only recently been diagnosed with COPD and am now slowly coming to terms with this and trying out new med's/inhalers to see if my lung function can be improved at all.  I don't have osteoporosis, but I do suffer with pain on a daily basis as I have Fibromyalgia.  I have tried various medications to ease the pain, but nothing helps it consistently.  I have also tried something called auricular acupuncture (where tiny studs are inserted into the ears) and this did alleviate some of the pain.  I have now come to the conclusion that I need to fight my ailments with a healthy eating plan and havre been researching which foods to eat and which foods to avoid in order to reduce inflammation within the body, which also will hopefully benefit my lungs.  Many of the foods we eat on a regular basis, make the body more acidic, whereas the natural state of the human body should be alkaline.  Apparently, the more acidic the body, the more likelihood there is of inflammation and, therefore, pain caused by inflammation.  I am 3 weeks into an 'anti-inflammatory' diet and have noticed a reduction in pain levels, as well as improved lung function - ie, I seem less breathless than I was previously, although that may partly be due to the new inhaler I am using.  It may be worth having a look at anti-inflammatory foods etc and opting for a healthy eating regime, incorporating less of the foods which are thought to cause inflammation, just to see if there is any improvement in your symptoms.  Even if the pain does not reduce dramatically, maybe your energy levels may increase ... anything is worth a try when you are feeling so awful.  Good luck to you.  Best wishes, Sheryl xx
    • david1942
      david1942 sherylbceroc

      Posted

      sherylbceroc - A very good post from you, which underlines the need on continuing health education for all of us, particularly in respect of this dreadful condition. The holistic factor is a crucial element when comprehensive examination is needed in combating the disease. Medications are a necessary starting point -- especially adequate oxygen -- but a point has to be reached when we have to encourage the body's repair (immune) mechanism to kick in.

      I shall write a piece tonight as evidence is beginning to show; measures taken are showing results.

      anjay62 - I was very upset last night to read about your situation. Chin up.  

    • DawnDedee
      DawnDedee sherylbceroc

      Posted

      I agree and have been adjusting my diet to include more alkaline foods because too much of acidic foods cause all kinds of problems.

      Dawn, US

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