I was diagnosed with glandular fever 4 months ago. I am still exhausted.

Hi there. Thanks so much. It's going on 8 months but starting to have better days. Still not out of woods as sleep is still not great and brain fog still there. Half days at work and starting to feel hungry again at times. Energy not great and headaches.....takes time. How are you and what month are you in..

I am feeling all good. Touch wood I think I've recovered. Liver scan shows no Inflamation thank god. Am waiting for blood test results.

All the best to you all and speedy recovery x

Hi Rolane,

Well it was a good few years ago that I had glandular fever but thankfully managed to make a full recovery. But after 8 months I was in a very similar position to you, and by probably 11 or 12 I was feeling a good bit better so hopefully you are well on the road to recovery.

It's great to hear you are feeling much better Becky. Fingers crossed for you both I'm thinking about you and believe in your recovery.

Take care

Craig

Hi Craig, thanks for all your support. I've improved drastically and my recent liver results have been good. I have good days and bad days and am still nauseous from time to time. I'm still exhausted most of the time and experience brain fog occasionally but most of my symptoms have now gone.

Hope everyone else is doing well and has a speedy recovery.

Hang in there Heidi, I'm glad to hear you have improved and liver results are good. It's normal for them to be slightly off during glandular fever, so don't worry too much about that and it sounds like it's returning to normal anyway. Yes you will still get periods of feeling tired, just be sensible about your activity and things gradually come back to you.

Take care and hope you continue to feel better!

Craig

Hi Craig, thanks for checking in I've made only very slight improvement but its better than no improvement at all. Its a long waiting game. Fingers crossed the next couple of months bring big improvement! Im almost at the 8 month mark.

Hi Aquin,

It must be soo frustrating I know, just wish I could take your pain away I really do believe that you are over the worst at this stage, even though it might not feel like it. At 8 months I do remember feeling the same as you, only with very little improvements, but there was a time by the 12 month period where I felt a more positive step forward, where I started to feel a bit more in control of things again.

Hang in there, there's a recovery happening now and it will manifest itself in how you are feeling sooner than later I believe. Keep me posted as to how you are doing.

Craig

Hi Craig,

It is extremely frustrating, you're right. Your posts give me hope though and for that i am extremely thankful. I can't wait until this is hell is over! I've started having some ok days but the bad days are still quite bad. Im hoping to start seeing decent improvement in coming months as i don't know how much more i can take. I miss my life

I agree, I miss my life also.  I have been resting at home for 5 months.  I occasionally go out to the doctor or to the store but that seems to tire me out and then I spend several days recovering from the activity.  My tiny improvement is that now I can do a craft project while resting.  Before now I could not even think of doing anything, so I can see a slight improvement.  I also occasionally fix dinner, nothing fancy!  But I can throw together a crock pot meal or  fry hamburger for tacos.  Then I have to lay down and rest because of the abdominal pain it causes.  Since I have had to quit work, my husband is working extra hours, so I try to cook to help out.  My husband is still doing all the house work--he has been  so supportive during my illness.  I am thankful that he has gone with me to the doctor each time and understands my illness.  Keep on keeping on, Aquin--I will also!

Yes. This stuff bad. I'm now left with no appetite, gut issues, fatigue and brAin fog! Going on 8 months....when will it end?

So this is "odd". I have gained weight!  Ugh!  The 3 courses of prednisone my doctor put me on caused me to gain weight and now because I am not active at all I can do nothing about it.  My doctor says this is just temporary and not to worry about what I weigh.  But because of the emotional distress/brain fog this EBV is causing me, it is hard not to worry about dumb stuff.  I feel like I am on a roller coaster.  I did have 2 days last week that I did not feel horrible!  However the last 3 days have been rough with migraines and lots of nausea.  Any activity causes me abdominal pain and nausea.  I am sooooo thankful I have this place to express my symptoms--I know my friends and family are tired of hearing that I am not improving.

Hi Gerbear,

Glad to hear you've seen some improvement too, if only slight! I appreciate you sharing your experience. Every story helps to reassure. This is a very alienating illness.

Keep in touch

Hey guys,

I know you are having a really hard time just now I just want to let you know I'm thinking about you. It feels like life has been taken away and the bad days are just extremely difficult to deal with. The mental side of this illness is nof often spoken about, but the longevity of it and the frustration and constant feeling of 'brokenness' in your body gets to you and can bring on a real depression and mental health problems.

To help, try and do small things that help. Continue to get out for fresh air and to see friends and family or do things you enjoy if you can. But just be sensible about these things and not overdo it, and make time for rest afterwards and before if possible.

There will be an end to this horrible virus for everyone reading this post. I truly believe that and do ask God for help, because God sometimes lets us go through challenges and hard times but then He also promises to restore us. Just hang in there, most of you have been through the worst months I believe. It probably won't happen overnight but there will be real steps forward soon. There IS hope and there IS a recovery for you, Gerbear, Aquin, Rolane. Without any doubt in my mind! And the wonderful thing is you will be so much more grateful for your good health when it returns again - this much is for sure.

Take care and thinking of you

Craig

 

Thank you again Craig! Question...did any of you guys get Heart palpitations, feeling like passing out? Loss of appetite?

Yes to heart palpitations--be sure to check with your doctor.  Mine said it was no problem.  But it does feel weird and a little distressing. I do have the sensation of passing out when I have what I call a "mono flush". My face gets bright red, I get a head ache, weakness, nausea and feel like I am going to pass out or have a heart attack.  This usually happens when I get stressed--happy or sad. It happened at my doctors office last week because I was exhausted and stresses about what we were discussing. I am glad my doctor saw this happen to me so he could tell me that it is nothing to worry about. He said it is my adrenal glands being confused about how to function because of the EBV virus. I have to try to stay calm and not be too active.  I still cannot carry the laundry upstairs or any house work without getting ill.  Does anyone else get the red flush?

Yes I get flushing when I feel like I'm going to pass out. I have been to cardiologist and all ok. Feels virus attacked my ANS or Vegus nerve. My heart would race and i would get low BP. Was diagnosed with pots. Since then hr bp better. Getting better slowly. On adrenal supplements, but D, b12, magnesium, l-lysine. Still have brain fog , insomnia, fatigue and faint at times. Going on 8 months

Gerbear, Rolane,

I remember getting those feelings of horrible flush running right through my system constantly. It was like a tap ongoing and you just wish you could switch it off. I think this can easily cause things like heart palpitations, this is the kind of virus that can do so many things to upset your system so try not to worry too much if you get strange feelings that you haven't had before, the effects can change too from one week to the next. Check with your doctor through if you are concern but it sounds like he recognises it's part of the virus too.

You're doing all the right things by the sounds of it Rolane, taking good supplements. Siberian ginseng is a good one I've found really boosts the immune system too,

Hang in there folks, it's a terrible long slog I know. I used to worry because I read everything on the internet that said this virus lasts 4-6 weeks or 6-8 weeks, and say well why is it going on for so long for me? It is post-viral for sure but don't confuse that with the other things you read about Chronic Fatigue Syndrome, that's the other thing the doctors are willing to write you off with if it's been going on for longer than a few months. It's NOT the case for most people for that to happen and it IS normal for the virus to take a year or longer for some people to get under control in your system. So don't worry that it's being going on for 8 or 9 months - I had exaclty the same and was tearing my hair out but I did make a full recovery and I can assure you that the next 8 or 9 months will be nowhere near as hard as the ones you have just experienced - the worst is most definitely by and improvements will start to manifest themselves in how you are feeling very soon! Hang in there!

Take care

Craig