I was diagnosed with glandular fever 4 months ago. I am still exhausted.

I've been thinking of you aquin. I'm almost three months into mybpost diagnosis and I'm still also having mental health issues relating to it. If you ever need someone to talk to day by day message me. I could use someone who understands what it feels like. This has been tough and you know this all to well. Remember we have a full life ahead of this and this can't break us!

Aww thanks for that Jeffrey! Are you still having anxiety issues or are you doing alright? Would definitely be up for a chat. I've started prozac as i realised i can't do this without some help from medicine. Every relapse i have my anxiety and depression gets worse and worse. Fingers crossed this med works for me!

Hi Aquin,

Just want you to know I'm thinking about you also, this sure has been such a rough ride for you by the sounds of things. I still believe you will get there even though it's been so harsh so far, this illness is bound to affect anyone's mental health and I really truly believe that the second year you will see much more progress and happier days. Just sorry to hear things have been so harsh lately, thinking of you - you most definitely will beat this without any doubt in my mind.

Craig

Thanks Craig ?

HI Aquin and everyone,

thank you to all of you who post!  Even when I do not respond I do read every post--it helps me to hear about your recovery.  I refuse to call this mono(GF) as something I have, instead I say that I am recovering.

I figure that I am back to 50% of my normal activity level.  I was diagnosed  9 months ago.  It was a dark and lonely winter, but now I can actually say that I am enjoying life.  Yes, I do have to rest often and my emotions are not stable yet.  I am struggling with wanting to do activities, but knowing that it would be too much for me.  Social activities still make me feel overwhelmed so I avoid these.

Good news--I am working one day a week!  I have not been well enough to work since December 2015.  My friend has a four month old baby.  I have been taking care of the baby while Mom works as a nurse.  It is perfect for me!  The baby is easy to care for and when she naps, I can take a break and rest a little.

Right now, my husband and I are camping at the ocean in our travel trailer.  First time to be camping the year because I have been too ill to go.  This trip is a wonderful blessing for both of us!  We sat outside last night with a fire and watched the stars, it was magical!!!  Although, I did get so tired that I then slept for 14 hours, but that is OK, the benefit of being out with my husband enjoying the beach is worth it!!!  And we even had one day of sunshine and warm enough to sit outside--that does not always happen this time of year.

Blessing to all of you!  Keep on keeping on through the relapses and ups and downs of this nasty virus!

 

Hi Gerbear (and everyone),

It's great to hear you are back working one day a week and feeling some progress even though it may not always be as quick or as much as you'd like. It's such a hard virus to deal with mentally as well as physically, but after 9 months I really believe you are through the worst of the storm and slowly your body will begin to see its recovery manifest. 

Thinking about you and everyone who is feeling low and weak and weary and anxious with this illness - I still most definitely believe in recovery for everyone reading this, no matter how hopeless you are feeling or little progress you are seeing - this is just temporary and you will get through it and feel fully better again. I felt the same and healing happened when I least expected it when my hope was low and felt weak and weary.

Thinking of you all - you WILL get better and not feel this way forever and return to a full and active life again - and I mean that for you Gerbear, Jeffrey, Aquin, Georgie, Rolane, Heidi, Becky, Andrea, Susan, Forgetmenot, and everyone else reading this messaget today. There is hope and you will get there even if you don't feel that way now, I really firmly believe that without any doubt in my mind.

Take care and hang in there

Craig

I am at home feeling sorry for myself.  After my positive last post I now am having a 4 day mono (GF) relapse.  My husband is on his way to our best friends 40th wedding anniversary party.  I am too weak to go.

I am so exhausted and have that horrible fatigue feeling like I have had several months ago.  This is discouraging because I have been making slow but consistent progress.  Now I have taken a large step backward in how I feel.

i am sooooo thankful for this place to post my feelings. I feel like going to bed for the rest of life, but I know that is just a feeling.  I am depressed and am having a lot of anxiety.

Im really sorry to hear that Gerbear. Thank you for sharing. You are not alone. I just woke up to a panic attack after having a fairly good week all last week. Im extemely fatigued now. We've been through hell with this virus. Life will be extra sweet when we recover. I have a feeling it might take me longer than average for recovery. Maybe 1.5 or 2 years to be totally back to normal. As long as I get there.. i can't wait to feel normal again. Xx

Hi Gerbear,

I just want to say don't beat yourself up about the relapse, we are all human and one steady progress is near enough impossible, so don't feel down and beat yourself up!!

I know that exact feeling of wanting to sleep forever and kinda not talk to anyone ever again but just know that you will will will get better!! A positive mind is key I've found! We are all becoming stronger people.

Stay positive xxx

Hi everyone,

Sorry to hear Gerbear and everyone about the relapses, it's not uncommon to feel like you are making progress one minute and then feel like you are back to square one again. The good news is even though it feels that way you are most definitely not back to square one. It just seems to be this process your body goes through when dealing with it, when it goes forwards at times then backwards at others. It doesn't mean that you are not recovering overall even though it doesn't feel at all that way - in actual fact is probably means you are recovering in a strange way because every mini relapse that happens means that your body is getting control of another area of the virus in a strange kind of way if that makes sense.

Thinking of you all, it's hard to be patient I know that for sure - try not to feel discouraged even though I know that's really really difficult in the circumstances - there is hope today and you will get better, and I mean 100% better not just some kind of way of coping. In the hard days and relapses just do your best to take extra rest and remove as much stress as possible - much easier said than done I know.

Hang in there - you most definitely will get there everyone even though it feels impossible and unlikely at times.

Craig

Hi all,

It's nearly 11months now...a year. ! Can't believe a year of he'll has almost passed. I'm getting there slowly and yes ....relapse remission and so on. Brain fog, insomnia, memory issues and anxiety are lingering symptoms. I have about two really good days a week. The rest vary widely. Makes you feel as though misdiagnosis because how could something so "common" be so wicked. But I try to stay strong. Have fun on good days. Make it through bad. I'm back working 3o hrs week. Eat healthy try to sleep.

We all will get through this horrid time.

ROLANE

Hi rolane. Your words both scare and comfort me! Im just entering month three (dxed) and dealing with the brain fog and fatigue mainly. Went to an infectious disease Dr who offered minimal comfort but scheduled me for another slew of tests. I also understand the feeling of feeling as though there is more wrong then just the mono... having had minor anxiety since my Iraq tour, this has taught me that no matter how bad I get, the body is a robust organism and can deal with many things. However, I have realized too that our brain hasnt evolved fast enough to deal with the pressures of modern day life... So for me, and something I now recommend to others, take the pressure off your brain so it helps the healing process. Best wishes to you.

Hi guys,

Rolane it has been a horrid time for sure, it's good to hear you are back working this is great progress but remember not to overdo it too. Please be assured that the second year will be NOWHERE NEAR as bad as what you've been through this last 11 months - I absolutely beileve that and that you have conquered the worst of this - the lingering symptoms will fade over time until the point when you don't feel them at all, I really believe that. 

Jeffrey, I know it's been a really tough time for you. Thinking of you (and everyone) of course. It's hard I know but do your best not to compare time lengths of how long it takes for people recover, because whilst it might have taken rolane 11 months, it could take you much less time. I noticed a real change around 9 months for myself, but again that's not the same for everyone. The good news is there is plenty of hope and although it's hard to ride through the initial period and be patient and keep upbeat, it won't be this way forever!! Rest assured in that.

I'm not sure how right or accurate it is but I read somewhere about the virus something that seemed to make kind of sense....if you imagine the shape of the virus in your body is a square, so your body starts to make antibodies which will catch the square shape, but the thing that makes this virus go on for longer is that the virus is capable of changing shape, so by the time the antibody for a square has been made it might have changed to a triangle, and then your body starts to work on making an antibody for a triangle and so on. Anyway...whilst this might sound like a hopeless case....the real hope comes from that the virus eventually catches itself out, because at some point it turns back into a square again and at that point your body already has the antibody made and can catch the square. So sometimes that's why a vast improvement can happen fairly quickly, you can go from feeling no progress over a long period of time to quite a bit of progress in a short space of time.

Anyway....I'm not sure how true that is but it always stuck in my mind and thought I would share it with you anyway. It may be completely false but it's an interesting way to think of it!

Thinking of you all and hang in there - you will get through this - yes that's you reading this right now!!!

Craig