I was diagnosed with guttate psoriasis in april this yea...
Posted , 16 users are following.
I was diagnosed with guttate psoriasis in april this year just after my 21st birthday after having my third bout of tonsilitis in as many months, was put on Alphosyl which didn't really do anything and then Dovobet. I was lucky then in the fact that it was coming up to Summer and so it seemed like it was working and although it didn't disappear completely it was good enough for me to feel confident wearing short skirts and shorts etc..
It then progressed to the plaque form towards the end of summer and through Autumn and so i was put on Dovonex as well and given Epiderm to moisturise with.
I have the plaques all over my body, ( i think its moderate?) especially bad on my lower legs and top of thighs and my arms and back of hands - i even have some small ones on my face and ears.
Usually i try not to let it bother me but its really itchy and sore today so i kind of needed an outlet!
Does anyone have any herbal suggestions that might help? anything that can stop the itching would be soooo good! I take Omega 3, 6 & 9 and eat flaxseed because i heard they were good and am trying Milk thistle at the moment -no effect yet but its early days i suppose.
I've cut dairy out and drink Aloe Vera but am not sure what else to try?
To everyone on here i hope you are coping ok, especially those of you who've had it for years-you're an inspiration!
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1 like, 15 replies
Guest
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Guest
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I've been having a bit of a bad week this week too-most of the time i'm fine but sometimes it just gets sooo depressing and it either seems to be really sore and red or really itchy.
I'm planning to go to the doctors this week to ask to be referred as it seems like all the stories i've read from people, their skin gets a bit better after a visit or that now they feel like more is being done for them because they can go to someone who knows what they are talking about.
All i say is bring on the sun! Perfect excuse to move to a hot sunny country!
If you need an outlet don't hesistate to reply-its nice to know of someone who is in the same boat!x
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xXhaylz87Xx
Posted
i want something done about it but all the doctor has done is give me cream for exma and it doesnt seem to be workin what so ever.
maybe i should go back to the doctors this week and ask to be tranfered up to the hospital because i have even been off work for nearly 5 weeks and i do miss work.
Guest
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cabernet
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Ive suffered with psoriasis for 28 years so i know how you feel, the past 6 years ive had guttate psoriasis 4 times all over my body mainly from throat infections, ive tried all the creams you've mentioned they dont work and like you say it seems to make the spots worse and grow in size so ive turned down any cream treatment for guttate psoriasis because of this and now have uvb light treatment 3 days a week for 6 weeks, the psoriasis totally went. good luck.
quill-drill
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I have had all the other ointments and they are useless. Dovobet only takes the itch away. I use Diprosalic for my scalp which can be really itchy but it helps a lot....that and using Nuetrogena shampoo.
I have found Aloe Vera to be absolutely useless and a waste of money for me. I am interested to read about Omega formula and will try some of this. Do any of you feel that stress leads to this condition and the more stress you are in makes the condition even worse.
crawf
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anne_marie71512 Guest
Posted
My daughter has had guttate psoriasis for 20 years, removing her tonsils put her in remission for 9 years, at the first sign of a sore throat she needs to take penicillin to avoid or abort the attack. PUVA or UVB clears her psoriasis. Its a battle with GPs to prescribe antibiotics so have to go private. Am totally depressed with the constant battle with GPs to prescribe what a consultant dermatologist is recommending. Aparantely the NHS doesnt give the same treatment as the private sector, a quote from a NHS practice manager, even though they did when she first was diagnosed. So I guess its all about MONEY.
Cabernet61 anne_marie71512
Posted
I too have had trouble with my GP on getting antibiotics so know how you feel. I was seeing a professor at my skin clinic, NHS, and he told me to do exactly the same as you have been told for your daughter. At the time i was working for the hospital where i had my UVB he said if i had any problems with my GP, to pop up and see him and he would prescribe me some antibiotics, unfortunately i dont work there now and i have the same problem as you.
It would make sense if the hospital skin clinic communicated with GPs so that the patients dont have to go through 6 weeks of UVB 3 days a week. I know GPs dont like to give out antibiotics a lot, but shouldnt this be left to the patient or the patients carer to make the decision. I dont know if your daughter does this, but it is reccomended you take probiotics with antibiotics to put back the good bacteria in your stomach.
anne_marie71512 Cabernet61
Posted
The private consultant has written to her GP to tell them to prescribe antibiotics on the start of a sore throat to either prevent or abort an attack of guttate psoriasis and the GP is refusing to prescribe them saying if we want them we should go back to the private consultant to get them. I have a meeting with them on Monday and to be honest feel intimated by them. I can get the antibiotics from the private consultant but obviously have to pay for them. My point is that she shouldnt have to pay for them because she is entitled to NHS treatment. We went private to get her some PUVA because her skin is so bad after her sore throat (which the GP refused to give antibiotics for) which caused the outbreak. Its like banging your head against a brick wall..... its not just her condition thats upsetting its her state of mind when her skin is bad that effects her also. She has been prescibed antibiotics in the past as she has had it for 20 years and all of a sudden they wont do it. She has had long periods of remission by doing it this way. I will try to take things further by putting in a complaint but I dont feel very confident and we are coming to the realisation that we will have to pay for all her treatment which we can ill afford but dont have much often. Thankyou for your recommendation about probiotics as she does get an upset tummy when on them, thankfully she doesnt have a sore throat that often :-)
megan55828 Guest
Posted
I'm just looking for something I can do to avoid their rapid growth across my body. They now heavily cover my arms, chest, stomach, ankles, legs and scalp. & lightly scattered on my thighs, private area, back and hands.
Good luck to everyone, and it's nice knowing we're not alone
Toejam237 Guest
Posted
I have suffered from psoriasis since I was 15 I'm now 44..nothing much works for me..
But for my day to day moisture cream I use aveeno which uses oatmeal as the main ingredient.
Give it a go.. It helps me a bit.
snowycat Guest
Posted
I've had psoarsis since teenager was mainly on my scalp and elbows... around aged 30 it developed onto arms and other areas .. shortly after having my tonsils removed after yearly occasions of bad throat infections.
trauma/stress developed skin psoarsis early 30's and during this time has had tried puva, steroid creams and lotions/ointments for scalp nothing really worked although sunny holidays did help (live in UK!).
Fast forward to age 40 (now 45) developed psoartic arthritis and been on methotrexate for over 4 years.. max dose up to 25mg..A few issues with joints but this drug is to try and avoid development of rheumytoid arthritis.. Over past year drug been reducing when skin went from say 60% psorasis to 5%.. drug dose 12.5 mg and stress through pain full joints skin is back up to say 25% and very large guttate so dose whizzed back up to 20mg!
So this drug does reduce skin psoarsis it's not a cure and I'm only on it to secure joints for my old age but having better skim certainly helped.. my hubby always wondered why they didn't give me it for just skin psoarsis but it is a very potent drug with much complications.
However worth anyone discussing with their doctor or consultant even if only for a year of relief.
I know it will take a few months to get my skin sorted as the drug works slow and side effects nasty once a week but worth it I'd say!
Take care.. if anyone wants to discuss please contact me.
Xxx
amy34335 Guest
Posted
Just wondering what's the best creams that would sort psorrises out
theholygrail Guest
Posted
It’s triamcinolone acetonide 0.1% small tube, disappeared in a week