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I was diagnosed with LS May 14th I have no symptoms worried it's something else...

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lmh8203
lmh8203

Hi friends, my gyno found spots he was concerned about and sent me down to a speciality Dr. They diagnosed me with LS and gave me steroid cream and i go back Aug 18th for follow up. Everything i have researched and read i have nothing of. I still use my cream so they know i tried bit i don't see any changes. Has anyone had anything similar and what were your outcomes? My hubby thinks the Drs are correct but has not touched me since. Its so hurtful... he says its not me its him and what he's dealing with but it still hurts. I feel so unwanted in so many ways 😭

0 likes, 8 replies

8 Replies

  • sarb73328
    sarb73328 lmh8203

    Posted

    what are your symptoms? seems a bit drastic to diagnose LS by a few spots.

    • lmh8203
      lmh8203 sarb73328

      Posted

      I have zero symptoms... I went in to see my gyno one last time before he retired and talk to him about my endometrosis and how i thought that was flared up. He did his exam and that is when he found sores is what he explained them to me or really described them, he said some looked like white spots some looked like canker sores. So he referred me to a specialist. This is all happening while the state was being shut down because of covid. Finally in May, 2 months later I finally get in. They said they see now canker sore looking spots and what they thought the other spots were LS. I knew nothing was down there until my dr told me. So i litterly have nothing, no itching, no burning, no symptoms like i read LS patients have. They didn't think doing a biopsy was the right choice at that time and gave me steriod cream to use for three months and see what it looks like when i come for my follow up Aug 18th... I have so many mixed feelings and don't know what to think or do....

    • sarb73328
      sarb73328 lmh8203

      Posted

      feel for you. Anything questionable in our vulvas is alarming especially if you are totally unaware of it. I agree with Patricia, use the steroid and try to find another doctor for a second opinion. I was diagnosed without having biopsy because I was fusing, but it took a while before I got diagnosis despite me having itching and then 'buzzing' and telling doctors I suspected LS. I hope your husband comes round. Mine is kind and supportive but has said sex is less inviting as has become 'medical' which is off-putting which I agree with. I have lost a lot of sensation too, but we still manage! Take heart.

    • lmh8203
      lmh8203 marie55894

      Posted

      After having along i mean very long conversation with my husband, we thought it would be best if I saw someone else for a second opinion so I go in a few weeks for that so I will keep you posted!

  • patricia22367
    patricia22367 lmh8203

    Posted

    I had barely any symptoms either except for appearance and some cuts, that appeared but healed quickly

    this disease is famous for being misdiagnosed, I think it's okay, try the cream and at your follow up ask about a biopsy and tell them you need to know for sure what it is

    can you see a different doctor? I had to see three before I got a biopsy, and the third time the doctor took one look and said she wanted to do a biopsy and did it right then and there

    sorry about your husband, I wish he was more supportive for you

    • lmh8203
      lmh8203 patricia22367

      Posted

      Seeing a new one in a few weeks. Fingers crossed i get more answers!! Thanks for your message! Nice to have others who know!

  • lmh8203
    lmh8203

    Posted

    Ladies thank you so much for your support and just telling me your experiences as well. This is all so new and I know NOTHING about it. I have been doing my cream since they gave it to me May 14th, I see no change but then again I didn't really know what it looked like before or what its supposed to look like, lol..

    I got the 18th and she told me that if I wanted a biopsy then she would do one. So we will see! Just seems so far away.

    And the husband thing.... we just celebrated our 17th wedding anniversary, been together 25 years total, high school sweethearts. I love him but he is so tired of all my medical issues that he just can't take anymore. And this all being during covid has not helped at all...

    But I am a strong person and will get through this. Just wish I knew more. From the biopsy is that how they tell if you have LS or not??

    Thanks again for chatting with me. I feel so alone but having someone else to talk to about this helps!

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