I was diagnosed with myxodoema(underactive thyroid) in S...

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I was diagnosed with myxodoema(underactive thyroid) in September 2005, I'd had palpitations, sore throat and felt generally unwell, felt faint at times had weight gain and now realise me being snappy and depressed were all part of the disease. My doctor told me that my blood test showed I had this problem and to look it up on the web and gave me levothyroxine 25mg to take, after another blood test the levels were fine so he has left me on that dosage, but I still feel ill, at times I think I'm going mad, have hot flushes, I'm anxious, think every illness I have is serious, which is not like me I used to be,I'm nervy, have headaches and about 6pm most days feel nauseous and wobbly. I used to eat healthily and exercise daily but now just don't feel well enough to do any form of exercise which again is depressing as I'm still not losing weight. Is this really all I have to look forward to now. I'm female and 54. Is there anyone else that feels as I do. I don't feel my Doctor realises how bad I feel, he has given me no advice and hasn't mentioned seeing a specialist at all should I ask to see one?

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  • Posted

    Hi, I was diagnosed with myxodeoma in April '06, I am 29 years of age, what you have written is me, i feel awful, sore throat, ear aches, headaches, triedness since christmas, i went to see my dr just after christmas to tell him how i felt and he told me to 'relax more', purely by chance i became poorly and a different dr gave me a blood test, my dr has given me 100mg levothyroxine to take, and left it at that, and told me to 'check on the net'., I have 2 small children too, under 3 years of age, I really don't think the my dr cares much. I just feel heady and foggy , but just have to get on with things.

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  • Posted

    Hi i have been on levothyroxine for three years the dose increased initially from 25mcg to my current dose of 125mcg ,i am 56 years old .I too suffer all the symptoms you describe and think i am worse off taking this drug,i have got to the stage now where i sweat constantly my skin is clammy and it runs down my face in rivers,my life is a nightmare i can't stand any form of heat or the sun,i can't wear any clothes other than cotton t-shirts.my work colleagues are concerned for me and my family are worried.Add to this the not sleeping cramps and foggy head palpatations wobbly legs and nausea and every day is a nightmare but apparently my blood test is now just within the normal range.I am seriously considering stopping this medication as i can not get any sense out of my G.P.

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  • Posted

    Hi Everyone, I am 42 and a Type 1 diabetic and have had all the problems that you are describing for over a year. My GP told me that I was menopausel but I disagreed. I had severe headaches, fatigue, depression, ear problems, dizzy spells, severe night sweats, poor concentration, foggy head, joint and muscle pains and generally felt awful. I kept thinking that nobody was taking me seriously, I thought I had cancer or that I had dementia at a very early age. But I now know that I have M.E or Chronic Fatigue Syndrome as it is more commonly known as. This is a real illness and is only just be recognised by the medical world. I have been given Levothyoxine 25mg to be increased to 50mg over the coming months. Although M.E doesn't have a cure there is help out there for you if this is what you are suffering from, mine started after a flu like virus just over a year ago that I basicly didn't recover from. If you can pinpoint when you started to feel ill and it is around the time that you had a virus it may be worth speaking to your doctor about it. Also read up on the internet about it, some of it may sound scary but not everyone suffers all the problems associated with the condition. I hope that this helps as I know how desperate and isolated I felt when I didn't know what was wrong with me. I still feel very unwell but at least I know that I am not dying!!!

    Kind regards, I hope you all feel better soon.

    Jane

  • Posted

    Twenty years ago I had a total thyroidectomy and have been on Levothyroxine ever since. BY FAR the most problematic thing was getting the correct dosage and this took the best part of a year, a nightmare year!. I settled on a daily 200mcg eventually and that was fine - I stopped having to sleep in the afternoon (not that acceptable when you're at work!) Then I moved to a different area and my new GP suggested that 200mcg was too high, so we agreed to drop to 150mcg. He told me that I should expect slight heart problems associated with long-term use of L+Thyroxine and he was right - palpitations and arrhythmias began to cause concern, so I was prescribed Atenolol to deal with this. Fortunately I have had no side-effects with this combinations apart from hyperhidrosis (excessive sweating) which I was always a little prone to anyway,and an inability to lose weight, which is not an excessively serious issue for me.

    However, I am interested in finding out whether any other long-term users of L-Thyro have found an effective non-chemical solution to either of these medications. All comments gratefully received!

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