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i was diagnosed with nephrotic last september after feel...

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i was diagnosed with nephrotic last september after feeling really rough for about a month,i was hospitalised for 10 days after all the tests you can imagine and they let me go on the friday afternoon and i felt a really sharp pain in my chest by sunday evening.on the monday morning i went to the hospital and was admitted straight into the resuss unit as i was having a pulmonary embolism.after a CT scan i was shown to have massive blood clots on my heart and i had suffered several massive pulmonary embolisms,i was given clot busters and kept in ICU for 4 days,that was probably the most scary point in my life as i had no idea that kidney problems could have killed me in that way.all this has left me with not only nephrotic syndrome but also diabetes

[i:48ba581e07]This message was automatically imported from the original Patient Experience[/i:48ba581e07]

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4 Replies

  • cammy1uk
    cammy1uk

    Posted

    Hi seems you had a very bad time of it , i was diagnosed with this condition and also right after the condition fanconi syndrome , i was lucky enough to be in hospital at the right time as i only went in with chest infection , i had a repirotary arrest due to these conditions at one and only just come trhough it thatnks to the great doctors , im now left with the fanconi syndrome being treated but a scary time it was , hope your well over your oredeal and wish you luck
  • johnboy1954
    johnboy1954 Guest

    Posted

    Thank you for telling me your story. I can't imagine how that must have felt or what the experience does to you. I hope that you are getting good care and treatment now?

    i now know that I am lucky to have been diagnosed relatively early on and to have started treatment which will hopefully prevent such an episode as you had to endure.

    are you managing to keep relatively well?

    johnboy

  • eric31962
    eric31962 Guest

    Posted

    I had very much the same experience in June and July of 2014.

    I was in a cottage hospital for a month. They diagnosed the thrombosis in my legs and put me on Warfarin but didn't know why I got no better. Of course like anything else hindsight is a wonderful thing. Eventually I was sent to a kidney unit had five weeks on Dialysis. I'm still on a cocktail of drugs every day but no tubes in neck and able to function almost normally.

    Don't give up hope on the diabetes, it's early days as yet. We all feel, 'why me?' But people do recover more often than not. 

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