1. Community
  2. Gut, bowel and stomach
  3. Ulcerative Colitis

i was diagnosed yesterday with uc

Posted , 6 users are following.

denise94793
denise94793

i have been prescribed asacol can anyone tell me what they are for .they have only beeen prescribed for two weeks. have been given no other imformation other than my biopsy will take two to four weeks tobring in a result,,,,,,what now...feel so alone

 

0 likes, 10 replies

10 Replies

  • jill18833
    jill18833 denise94793

    Posted

    Hi Denise,Asacol is an anti inflammatory med containing Mesalazine and has properties similar to aspirin. If ulcerative colitis is confirmed through biopsy you are likely to be on these or similar long term.An enema may be prescribed also to aid remission. Asacol or similar is often taken for life to stop flare ups. Don't worry you soon get used to taking them,good luck x
    • denise94793
      denise94793 jill18833

      Posted

      thank you i left hospital in a bit of a daze yesterday,,today i feel i have no imformation ..good to talk to someone

       

  • sebtucknott
    sebtucknott denise94793

    Posted

    Hey Denise,

    Sorry to hear you've been diagnosed with UC. I've had UC for 7 years now. Yes it's not fun at times but actually it's changed me for the better and in a strange way I'm glad I have it now!

    Things will get easier I promise. Seek help online is a great start, it really helps to speak to others that know what you're going through.

    In terms of Asacol, its a non-steriodal anti inflammatory. In theory its meant to traval through your digestive system slowly releasing anti-inflammatory medicine where you have inflammation. Think of it a little bit like putting a cream on a rash.

    I've been on Pentasa (the same form of drug, mesalasine) for the whole 7 years, it works quite well at making me less senstive to things.

    It's isn't very strong though so some people don't always see amazing results from it but I feel they're expecting too much of it!

    It's really worth look at things not just in medicine, my UC has been better than it's even been since massively changing my diet and lifestyle.

    I hope that helps

    Seb x

  • alison23639
    alison23639 denise94793

    Posted

    Hi Denise, sorry you are feeling rotten. UC is quite horrible but you are in the right place to get help and support.

    There is a link on this site which gives lots of information on asacol https://patient.info/health/aminosalicylates

    Basically its an anti inflamatory that will hopefully reduce your symptoms and get you in to remission.

    Good luck and keep talking.

    • denise94793
      denise94793 alison23639

      Posted

      thank you fora speedy reply,,i feel a bit abandoned...go home take pills for two weeks....then what...hayho fingers crossed

       

    • alison23639
      alison23639 denise94793

      Posted

      there is slot you can do so dont feel helpless. The asacol should start to make you feel better and your UC should calm down. Have you been incontact with an IBD nurse. There should be one at your hospital. Give them a call they are full of really useful help and advice. Hopefully you have got an appointment to go back after the 2 weeks. If not make sure you get one. You may have to be quite proactive about this. Do some research online and find out all your options. Information is the key here. take care.
    • denise94793
      denise94793 alison23639

      Posted

      thank you so much not heard of the ibd nurse and have no appointment to return...will make a few phone calls

       

    • alison23639
      alison23639 denise94793

      Posted

      Hi Denise, I meant IBS nurse, not ibd, tying on phones is mot so easy!
  • missey_woo
    missey_woo denise94793

    Posted

    I had a very similar experience, told at my sigmoidoscopy literally just as he removed the scope I had Uc given medication and a leaflet, advised not to trawl the Internet and see you in 6 months!!. I was initially so relieved I didn't have cancer but by the next day I was in shock, I had been diagnosed with a disease I knew little about and no discussion or anything. I went to see my GP and she explained a fair bit but largely what I have learnt has been through forums and my own research on the Internet. I felt very alone.
  • millie1986
    millie1986 denise94793

    Posted

    Hi Denise im so sorry to hear you've been diagnosed with UC.

    Please DO NOT feel alone.

    This takes its tol on you physically & mentally.

    I have never had asacol but it will be for inflammation in your system.

    I was half diagnosed in January after a flexible sigmoidoscopy & was have a leaflet and like you felt like I was just to get on with it. I was devastated.

    The crhones and colitis website is great I wouldn't bother too much with any other websites. It's such an unknown vowel disease and if one more person tells me I can't eat a curry I'll scream.

    After my first appointment I was appointed an IBD nurse who was very full on and a bit extreme. I was terrified of her even though she was being nice she was just too intense.

    Since then ive had numerous doctor and hospital appointmenta. The first time I was gave a suppositries I nearley had a heart attack. Now it's just a routine with medication. You must take it I feel better

    I had my colonoscopy last week and it's literally almost confirmed its 100% uc bit waiting on biopsies.

    The people on this forum are fantastic and I always feel like ive someone to talk to. Keep on top of your appointments make sure you attend them all.

    I have said since January if u can get your head around what's going on inside that's half the battle!

    Do you have anymore questions?

    Stay strong. Millie, 29, female. X

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.