I was Diagonoised with Chondromalacia Patellea 12 Yrs ag...

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I was Diagonoised with Chondromalacia Patellea 12 Yrs ago. I am 30yrs old and am in constant severe pain. I have also have Knees that turn inwards and my hips do the same which causes them to also hurt as well as my Back. I was wondering if anyone else has this? I am told that my condition will never get better and there is nothing more that they can do. I 100% sympathise with anyone else who has this problem and would really like to hear from anyone who does.

[i:be5c019a83]This message was automatically imported from the original Patient Experience[/i:be5c019a83]

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  • Posted

    I really understand what you have written, I have since devolped Depression because of it all, I also have found other people do not understand especially at our age (im Just 30) I am really glad that i have found this site, This sounds horriable but it is nice to know that other people have this problem!

    [i:7b616c08b2]This message was automatically imported from the original Patient Experience[/i:7b616c08b2]

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  • Posted

    [color=blue:2c3c21e990][/color:2c3c21e990] I know exactly how you feel i call my right knee a shopping trolley as it has a mind of its own i want to go one way and my leg wants to go another way, i also have osteoporosis in my left hip and lower back so i suffer with them to and it to makes life uncomfortable and like you feel alone as i said in my blog bit dated 21 feb here i have suffered since i was 9 and im now 38 this year.

    look after yourself take care Paula

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  • Posted

    It is interesting to hear of this at 30. I was diagnosed with this at 32 - having been told by a previous GP that \"it was all in my mind\" - and had it in both knees, something I was told was unusual. I found surgery gave good relief, though not a complete cure. Physiotherapy does not work - I have had increasingly recurrent problems over the years since - but have found that McTimoney Chiropractic helps.
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  • Posted

    Hi there, Ive just come across this thread, a bit late but better late than never. I have had chondro for around 12 years now. I went to physio today and had my knees 'taped'. It feels great when coming up and down the stairs now but the plaster is already coming unstuck!! :roll: Cant imagine doing this for the rest of my life. I wanted to send my best wishes to everyone with chondro because it HURTS!! Nobody knows how bad the pain is and because you cant see it I sometimes think people just dont get how painful it is. Its a sad, hard to come to terms with fact that it wont get better. Its such a worry. I have tried every knee support going,every pill, and nothing helps. Very depressing..anyways, as I said, good luck all and keep smiling :lol: , stay strong, I know its hard but we have no choice in it..

    Byeee

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  • Posted

    Hi, I have had the same problem since I was about 13, now 35 the GPs first off said it was growing pains then they had a look around and decided it was Chrondo P, I had the left kneee cleaned up the right at the time was okay, now I have sever pain in left knee and right and well as the back and my hips.

    I know how fustrating :evil: all this is and I have seen another Consultant who was useless, so I asked my GP to send me for a second opinion which he is but in the mean time he is sending me for a gait analysis assement to see if anything else can be done to help other than resorting to surgery. I have had load of physio and now have a knee brace to wear when out and standing for a long time or going up and down loads of stairs.

    Itd be good to hear from anyone that wants to chat about this now and again so we do not feel alone :lol:

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  • Posted

    i have read all the notices here and i fully sympathise with all off you, last year i was diagnosed with chondromalacia patellae, although i have had this problem since i was aged 7 and i am now nearly 20, i am now in so much agony that i can hardly walk, and my hips are also getting affected now, i went to the doctors yesterday to request my patellas being removed, but they refused me.

    In my life i have had two lots of physio, seen a total of 13 doctors at 2 different doctors surgerys, and i have also been at 2 different hospitals.

    I hope that you all have better look than what i do.

    x

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  • Posted

    Knee pain sufferer chronic for seven years with no diagnosis but I have started apos therapy private treatment which aligns gait to. Alleviate knee pain anxon website it says regarding this problem.

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  • Posted

    Hi all, after seeing my gp today, he advised i check out this site for more information on my condition, as by sharing remedies that appear to work for one may help another.

    I was diagnosed with grade 3 chondromalacia patellae in both knees three years ago now (at the age of 17) most likely cause is sprinting competitively through my teenage years. After 2 years of physiotherapy, seeing consultants for mri scans and various practitioners, i found what worked best for me was ice - no matter what i had been told by previous consultants. I found the physio exercises to strengthen the muscles around the knee a huge help temporarily - so much so that i had been able to jog a comfortable 5k since with no pain. I have tried shoe inserts to correct the alignment of my legs, tens machines on my knees and even ultrasound treatment - none of which seemed to make a difference to the pain i was suffering back then.

    I just wanted to ask if non weight bearing exercise like swimming has proven to help others in the long run? I have been advised by physiotherapists in the past to keep my knees strong on bikes and by swimming, however due to exercise on the bike my knees have now flared up to the point this week where i cant put my body weight through them. This may be as they are no longer aligned or maybe that exercise only aggravates the condition, I am conscious that it is important to stay healthy however if exercise will only cause discomfort due to the chondromalacia then it wont be worth the pain in later life.

    I have so many questions that the hospitals and doctors may not be able to answer.

    I would be grateful for any suggestions as even reading the previous comments offer a little comfort.

    xx

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  • Posted

    Has anyone here tried, or is familiar with, "prolotherapy?" It takes various forms. I've read about the use of glucose (sugar water, basically), as a base, and then mixed will all manner of other substances. Other forms include the injection of the patient's own blood, or "platelet rich plasma" which separates out and concentrates the plasma before the injection. Some forms even use adult stem cells.

    Advocates of the methods swear to thousands of cases with positive results, include the regeneration of cartilage behind the kneecap and between the leg bones (and other areas). The theory behind it sounds compelling enough...the irritant solution induces the body to regenerate and heal itself. I've talked to people online, who I take to be honest, who swear that prolotherapy has helped them overcome pain and return to sports, both "runners knee/jumpers knee" and various stages of chondromalacia.

    Of course, the majority of these studies, reports, online testimonials and youtube videos all come out of a single medical practice in Chicago. Google "prolotherapy chondromalacia" and you will find videos and articles by a Dr. Ross Hauser.

    Has anyone ever tried these techniques? Or know of evidence that contradicts their claims? I have both chondromalacia patella (both knees) and lately, what appears to be patellar tendonosis in the right knee. Doctors are recommending cortisone shots, despite telling me there's very little inflammation in my knees. I know that even if this works, it will be only temporary, and the long term effects of multiple cortisone shots can be further degradation.

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    • Posted

      Hi ignatius21, 

      I know you wrote this post a year ago. But did you get any of your questions answered? I am actually were you are a year ago, and i appreciate if you could share your experiece with me. 

      Thank you very much

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  • Posted

    I was diagnosed with this at 10 years old, I'm now 16 and it's not got any better like the physio said it would, they gave me useless exercises. When extending my leg back and forth, it crackles loud as hell and playing to much sport literally kills. So I'm not to sure if there's a way to treat this but hopefully will fade as the years progress.

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  • Posted

    Has anyone tried stem cell therapy? how was experience?

    Please share.All the best

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  • Posted

    I've only recently begun research on the topic but everything I've found would lead me to believe a few important things.

    Traditional recommendations coming from the majority of practitioners include everything I've already tried: RICE, NSAIDs, Cortisol injections, PT, weight management, activity reduction, etc. None of them have helped since my symptoms developed nearly 19 months ago. Things have gotten progressively worse, but only recently has my condition seemed to deteriorate more rapidly. I can't know why for certain, but I suspect it has to do with cycling around the city most days, my primary means of transit here in Washington, DC. They don't take especially good care of the roadwork in the city proper, which has resulted in a slow attrition-like degradation of my remaining knee cartilage. The last step would be to have a knee debridement or knee replacement surgery, but those seem like such extreme measures and I've ready too many horror stories about things going further astray following the procedures. I can't imagine risking the possibility of further exacerbating my plight given how agonizing it can be now. 

    Prolotherapy has been further studied now and there is a very prominent study published by the National Institutes of Health (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3937178/#!po=90.2985), which has promising results for patient outcomes. While insurance carriers are most likely to consider these "alternative medicines," that doesn't mean it's nearly as risky as conventional methods. I'm trying to find make way into a local clinic that performs prolotherapy and should I be able to begin the process, I would happily share my recovery here to help others. 

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