I was just diagnosed with Bronchiectasis

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I'd never heard of this.  I was coughing up dark red blood.  At the ER they took a CT scanand said that's what I had.  I am now in my 3rd "cycle"....... Every two weeks I'll get a bad pain in my lung, at least one cold sweat, a lot of fatigue to the point I can't even go grocery shopping, and I sllep about 11 hours for a night or two. I start to cough a little more than usual; Then my lung bleeds.  Thats my cycle.  So far I have not been able to regain any kind of strength. That's my main question. Does anyone have a fatigue problem?  Did you get help for it?  and my next question; Have you had cycles like this?  Did they "stop" for a while? (Like give you a couple months off?)  Thank you in advance for sharing!

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  • Posted

    Hi there,

    Unfortunately we all seem to suffer with tiredness, it comes hand in hand with BX.

    We have good days, but the tiredness is always there, sometimes a little less.

    And cycles come and go too.

    When you sleep, do you sleep on the 'good' lung side? I've been told as it's my right lung that's the problem I should sleep on the left so it helps the sputum/mucus drain better?

    I have days that I can sleep 12 hrs + then the rest I'm lucky to get 4. But that could just be me.

    Gail.

     

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    • Posted

      Here’s my difference; I don’t seem to produce mucus or sputum until the blood vessels have a rupture and then.... out of nowhere I’m choking/gurgling on a bunch of bloody clots.  And that only happens about every 2 weeks for the last 2 months.
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  • Posted

    Oh bless you.

    That must be scary as hell.

    What does the doctor say??

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    • Posted

      Hi! I just saw your post. Even though I clicked on "notify when I get responses"..... it doesn't.   I havent gone back to the doctor. He basically told me that's my life from now on. My GP has to take over and give me antibiotics unless I get a fever. Or bleed more (lots more). Then he'll get involved again. Which I understand. As there's nothing he can do!

      He's a dear man and I know if there was anything he could do, he would.  It's been 2 months since your post and I havent coughed up blood since.  Lung pain, coughing, easily tired. But no blood and no bedridden fatigue. THANK GOD!

      May 2018 see us through much needed periods of wellness!

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