I was off azathioprine for a few months and began to fee...

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I was off azathioprine for a few months and began to feel much better, I didn't suffer so many of the colds and viruses which I did previously. Due to yet another flare-up of ulcerative colitis I was immediately put back on azathioprine and as a result I am suffering with continuous colds etc.. I know that I have to balance the advantages with the disadvantages of living with the disease and facing surgery or taking the medication and constantly suffer from other illnesses. I would love to hear of others who are in the same position as I am, it makes me miserable sometimes and I get fed up listening to myself moaning!!!sad

[i:c66777191f]This message was automatically imported from the original Patient Experience[/i:c66777191f]

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  • Posted

    I was taking azathioprine for over a month and I started having secondary effects. Everyday I would wake up and not know if I would develop a fever or an infection. I ended up with mouth sores, infected hair follicle, and one day I was not able to wake up; with a fever. I have been taken off the drug and am still on prednisone. I would like to stop the prednisone. I know exactly how you feel. I have UC.
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  • Posted

    I was diagnosed with UC dec 2006 at the age of 18. I'm 21 now and to be honest haven't had any sort of life from any medication.

    I've been on Azathioprine since middle of November this year due to no long responding to Prednisoline tablets from of 80mg/day then ultravenous 400mg/day. I'm also on Ciclosporin for 3 months until the Azathioprine kicks in so i've not yet felt the benefits as I was told it takes 3 months to kick in.

    I have been on a test dose (50 mg/day) so to speak and 10 days ago was put on the higher dose that is meant for my body weight (150 mg/day). I take it at night as I really suffer from the side effects - terrible headaches, constant nausea and loss of appetite.

    Since i took the higher dose my stomach and abdomen has been in awful pain along with severely amplified side effects i usually have but due to it being the holidays and all my specialists are on holidays themselves i went back to the lower dose as i did not want to be readmitted just to be around useless 'on call' doctors who know nothing of my illness and treatment (i've had a LOT of trouble with this in the past 3 years)

    The night before last i tried the higher dose again and spent all day yesterday in pain...i missed the dose last night and i'm fine today. To me this proves its the higher dose causing the problems I was told any pain could possibily be a sign of Pancreatitus caused by Azathioprine so i'm having blood tests in the morning which was scheduled from 11th december to check how my body was coping from the higher dose but won't get told the results until 5th jan when my specialist is back!!! So i'm just staying on my lower dose until then.

    I hate this medication i just feel sick all the time sad

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  • Posted

    Ive joined this forum tonight as im due to start taking Azathioprine pretty soon, i am absolutely petrified of all the side affects, the cancers, and low immunity is worrying me sick... i have two young children and know i need to do whatever i can for them as well as myself, i dont want them to have a poorly mummy who is feeling sick and achy all the time...

    My crohns is in my terminal illeum and is active following a sample result showing inflammation levels of 448 (normal is 1-60) so im guessing mine is pretty high.

    I feel 100% fine in myself which is why im so scared to take something when i feel 'normal'

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