I was off azathioprine for a few months and began to fee...
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I was off azathioprine for a few months and began to feel much better, I didn't suffer so many of the colds and viruses which I did previously. Due to yet another flare-up of ulcerative colitis I was immediately put back on azathioprine and as a result I am suffering with continuous colds etc.. I know that I have to balance the advantages with the disadvantages of living with the disease and facing surgery or taking the medication and constantly suffer from other illnesses. I would love to hear of others who are in the same position as I am, it makes me miserable sometimes and I get fed up listening to myself moaning!!!
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Aly-D
Posted
I've been on Azathioprine since middle of November this year due to no long responding to Prednisoline tablets from of 80mg/day then ultravenous 400mg/day. I'm also on Ciclosporin for 3 months until the Azathioprine kicks in so i've not yet felt the benefits as I was told it takes 3 months to kick in.
I have been on a test dose (50 mg/day) so to speak and 10 days ago was put on the higher dose that is meant for my body weight (150 mg/day). I take it at night as I really suffer from the side effects - terrible headaches, constant nausea and loss of appetite.
Since i took the higher dose my stomach and abdomen has been in awful pain along with severely amplified side effects i usually have but due to it being the holidays and all my specialists are on holidays themselves i went back to the lower dose as i did not want to be readmitted just to be around useless 'on call' doctors who know nothing of my illness and treatment (i've had a LOT of trouble with this in the past 3 years)
The night before last i tried the higher dose again and spent all day yesterday in pain...i missed the dose last night and i'm fine today. To me this proves its the higher dose causing the problems I was told any pain could possibily be a sign of Pancreatitus caused by Azathioprine so i'm having blood tests in the morning which was scheduled from 11th december to check how my body was coping from the higher dose but won't get told the results until 5th jan when my specialist is back!!! So i'm just staying on my lower dose until then.
I hate this medication i just feel sick all the time
adelelisa1981 Guest
Posted
My crohns is in my terminal illeum and is active following a sample result showing inflammation levels of 448 (normal is 1-60) so im guessing mine is pretty high.
I feel 100% fine in myself which is why im so scared to take something when i feel 'normal'