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I was wondering if anyone else has noticed a direct relationship been their condition and the flu.

Posted , 3 users are following.

Patrickgeoffrey
Patrickgeoffrey

I have had 3 relapses in the last 15,15 years ago I had the worse flu of my life,after which I had a relapse that lasted 6 years,in 2012 I came down with the flu and had a relapse that lasted 2 years,in January of this year I came down with the flu I am currently in a relapse of 7 months and doing badly, I am 58 now,the first time I remember getting sick after the flu was when I was 21,the first time I remember feeling nauseous when exercising was when I ran a marathon at 16,the race officials put me on an ambulance and sent me to the hospital,I did recover and did finish a marathon 6 months later,over the years I did drop out of muy races because I felt nauseous at 34 I finished a marathon but felt so nauseous I never went for another long run,at 44 I had to give up running due to feeling nauseous and dizzy spells when running that was the having of the 6 year relapse, I did get to the point that walking 100 metres could make me nauseous and I was walking with two canes, I never feel weak or fatigue,I sleep well and feel rest but quite often wake up feeling nauseous and have sore and stiff muscles like I ran a marathon

0 likes, 11 replies

11 Replies

  • pixie22
    pixie22 Patrickgeoffrey

    Posted

    Yes, there's definitely been a link for me, in fact any virus infection (which flu is) can lead to a relapse for me, even to a lesser extent after a cold or gastric upset of viral origin. Also the "sore and stiff muscles like I ran a marathon" ring a bell with me, I liken it to how I used to feel after the first hockey lesson of the autumn term at school!

    • Patrickgeoffrey
      Patrickgeoffrey pixie22

      Posted

      How long have you had the condition and how long are the relapses,as I get older my reaction to the flu gets worse, I am 58 now, I was admitted to hospital at 17, I did drop out of highschool, I finished highschool at home by correspondence
    • pixie22
      pixie22 Patrickgeoffrey

      Posted

      Mine started 32 years ago, after a flu-type bug, which I just didn't seem to be recovering from, and then the other symptoms crept in. I had two young children at the time, so it was difficult. I used to stagger to school and nursery with them, leaning on my walking stick, then collapse onto the settee and rest until it was time to fetch them home. I did some correspondence courses at my own slow pace, to keep my brain ticking over. It hasn't been that bad all the time, but characterised by periodic relapses of up to 3 months.By 1994 I was able to take a (very) part-time job, and by 2001 I was able to work 12 hours a week, but I had to give up after 6 years due to a combination of CFS and depression. I'm retired now.

    • Patrickgeoffrey
      Patrickgeoffrey pixie22

      Posted

      I am 58, I do hold down a full time job only because I need the money, I have never been diagnosed with CFS, I don't suffer from fatigue or depression but I struggle to even walk 100 metres,it does seem to get worse as I get older, I do not suffer from muscle weakness and I do not get out of breath,my muscles get stiff I have to stretch them so I can keep moving my hands and arms as well,it seems more like post flu syndrome by the center for disease control criteria for CFS I don't met the required stroke but my condition seems related but different

  • GeorgiaS
    GeorgiaS Patrickgeoffrey

    Posted

    Yes, I've spoken to you before about sometimes getting flu like symptoms such as a sore throat that goes up to my ear and sneezing and feeling very fluey but it doesn't run it's course, just goes away the same day or the day after.

    I wonder if it's here all the time and when I get the symptoms my immune system starts working normally for a little while but it can't keep it up.

    A therapist said I have the Epstein Barr virus but I thought she'd just read about its connection to ME. Someone posted the other day about tests he's had and he was told that he has it. There's been research on it but nothing very conclusive.

    But there are some herbs and supplements that can supposedly fight it, like Passion Flower, which I sometimes use anyway, and I ordered something else that I can't rememer the name of. Anyway I think it's worth looking at.

    • Patrickgeoffrey
      Patrickgeoffrey GeorgiaS

      Posted

      Epstein–Barr virusThe Epstein–Barr virus, also called human herpesvirus 4, is one of eight known viruses in the herpes family, and is one of the most common viruses in humans. It is best known as the cause of infectious mononucleosis.

      mono is one of the diseases that has to be eliminated before a CFS diagnosis can be given

    • Patrickgeoffrey
      Patrickgeoffrey GeorgiaS

      Posted

      Epstein-Barr is the virus that causes mononucleosis. You might know this disease better by its nickname, "mono." It's also called the "kissing disease" because of one way you can spread it to someone else.

      Even though Epstein-Barr virus (EBV) isn't a household name, you've probably been infected without knowing it. Lots of people carry the virus but don't get sick.

    • GeorgiaS
      GeorgiaS Patrickgeoffrey

      Posted

      So could you carry it for years and not get sick, then something triggers it and it causes ME? Or contributes to it?

      I know no one can know for sure; I'm just wondering what you think from your own research and reading.

    • Patrickgeoffrey
      Patrickgeoffrey GeorgiaS

      Posted

      ME and CFS are actually names for a group of symptoms when all other possible diseases have been elongated,Epsrein Barr cause mono,it is a member of the herpes family of viruses and people can have relapses,it is one of the diseases that has to be eliminated to make a diagnosis of ME of CFS,there are many diseases that can causes the same symptoms
    • GeorgiaS
      GeorgiaS

      Posted

      But nobody reallly knows anything.

      I'm waiting for you to join in our ME Song.

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