I went to the ER 2 weeks ago after about 5 days of feeling "off," with headaches &extremely spacey

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Then the next morning, I bent over slowly and then everything started spinning insanely fast and I couldn't focus on anything.  My breathing also became labored. 

After 7 hours in the ER, I was diagnosed with Vertigo and told to go to an ENT & a Neurologist.  The ENT wasn't very impressive, told me to do the Canalith Repositioning for a few days (which he did once in his office) and then I should be fine.  My husband has helped me to do the Canalith Repositioning a few times, but after I get up each morning, I'm back at square one, dizzy and kind of confused.

The Neurologist ordered an MRI of my brain (probably because of my memory loss).  He said that he wouldn't address the Vertigo, said that was the ENT's specialty.  

I'm thinking of going to a different ENT, but all I keep doing is spending money on Doctors!  My husband and I are both very worried about my memory problems along with my substituting the wrong words every now and then. 

Once in a while, my breathing is still labored.  I am tired most of the time and sleep at least 3 hours more each night than I have in years.  I can even take naps which I could never do unless I was really sick.   

My dizziness, headaches and nauseousness are better than they were the first week, but I still have such a hard time clearing my head, can't multi-task, have the memory problems and have such fatigue.  

The ENT basically trusted the ER doctor's diagnosis of Vertigo, but I'm wondering if it could be something more.

It's so hard to chase my 9 year old around when I get easily confused and have a hard time staying awakesad

Does anyone have experience with the same symptoms and what helped them get over it or lessen the severity?

 

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10 Replies

  • Posted

    I do have these symptoms ,but I have severe digestive issues like gastritis,low functioning gallbladder and gallstones. How good is your digestion ?
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  • Posted

    Vertigo is not a illness, it's a symptom. There's slot if things can cause it. A neurologist is a brain doc. He's gonna look for tumors, signs of stroke, blockages etc. If none are found he won't help you at all. The ENT can order the other testing associated with vertigo problems. They include a VNG,eng,caloric test, etc. This will help determine what's causing the vertigo. There's alot if things it can be. Menieres, silent migraines, etc etc. In most cases a ENT is limited as to what he treats. Very few get into the inner ear or vestibular system. Need to see a neurotologist. He deals with the vestibular system, inner ear, connections to the brain. It's a very drawn out process. It's very hard to diagnose these issues. They have to eliminate everything else first. With some this can take years or even decades. Good luck.

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  • Posted

    I would suggest to find an experienced physiotherapist in Epley maneuver, it could be a proper treatment. Good luck.
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  • Posted

    Did they give you meclinzine to help with dizziness?  Find a good neuro ent dr and a good neurologist and take it from there.  Neuro ent first.  Call GP and ask them to give you something.  Where do you live 
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  • Posted

    Look up Vestibular Neuritis.  If you have seen progress you should gradually get better.  Vestibular Neuritis, VN, usually takes 6 to 8 weeks to resolve.  You should be seeing an ENT that has an interest in inner ear issues.  Most ENTs only treat sinus type issues and cannot help in treating a vestibular issue.  The Canalith Repositioning procedure is for BPPV, which you probably don't have.  Things should continue to get better as you continue about your normal daily routine, or a good ENT may prescribe Vestibular Rehabilitation Therapy.  Your symptoms are normal for this condition.  I assume that the MRI was clear.

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  • Posted

    My experience was similar and it sure sounds like a problem with your vestibular system. There are exercises that depending on the reason for the problem, may help. The exercises improved my acute symptoms dramatically. Check out the website vestibular.org It is a wealth of data on vestibular symptoms, diagnosis, treatment etc. It took me two years and a couple of MRIs and finally meeting with an ENT Specialist to get a correct diagnosis. I will be getting ear surgery in 10 days to hopefully fix my problem. 

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  • Posted

    Waffalobill is spot on- vertigo is a symptom, not a diseases in and of itself. And everything he/she wrote is good advice.
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