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  3. Polymyalgia Rheumatica and GCA

i wish i hadnt started prendisone

Posted , 13 users are following.

tuningup
tuningup

I was diagnosed with pmr dec 11 2014....i have tried to reduce from 20 to 17.5 with no sucess..i now am taking 19 and after 2 weeks im an emotional wreck...everything makes me cry....this is not like me...i have several pain issues such as arthritis and compressed spine...my pain is horrible...i can barely funtion in every day tings...making my bed is torture...i use a walker to vacume...it huts to sit down...i wish i had never agreed to start on prendisone and just suffered with the pmr...im getting injections this week for back issue but im losing hope...pmr is a lonely disease ...pain is a lonely place to be as people just dont know what to do and how to act around me...im 63 and overweight...if it were not for my cat i would be so alone...no i take that back i have God in my life but i feel overwhelmed at this point...is there anyone down the road that has anything encouraging to say? This is a long jourey but im in the race trying to finish...mmynday is mostly sitting to avoid the pain of moving..thanks everyone..sharon...ny in usa

4 likes, 20 replies

20 Replies

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  • Danrower
    Danrower tuningup

    Posted

    Sharon, sorry to hear of the ache. 

    65 yo male here, with PMR for about 1 year. Tapered down to 5 mg pred/day. My experience is that PMR will cause muscle and joint ache, with swelling. BUT, I have long term osteo and damaged joints, from years of hard use, sports, injuries, and osteoarthritis. The knees and back osteoarthritis aches are much more sensitive during a 'flare.' My Docs say I can take tylenol, which I do, but the pain/aches are the barometer for my pred taper, or in some cases, increase. You may have layered pain/ache sources. You are not alone.

  • pat38625
    pat38625 tuningup

    Posted

    Hi Sharon, I am so sorry to hear that you are still in pain.  Please take heart, things will get better and I know from my own experience that the pain I suffered was all consuming.  I believe I was one step away from a wheelchair.  When asked to describe on a scale of 0 to 10 (10 being the most painful) I would say a 15.  I was diagnosed 12th November last.  I am a good bit better and am on 12.5mg now.  I am not out of the woods yet and I try to take each day as it comes.  

    Please take heart (you cannot fall off the floor) the only way is up and there  is definitely light at the end of the tunnel and some tunnels aren't so long.  Please keep in touch with us.  People on this forum really do care.  Like yourself, I felt very alone even though I have a son living with me.  You are just at your lowest at present and I admire your honesty and you will get relief from your pain.  So hang on in there and keep in touch when you can.  Bless you and take care of you.  Regards Pat

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