I would be pleased to receive feedback of the use of Der...
Posted , 5 users are following.
I would be pleased to receive feedback of the use of Dermavate. Is it really successful for LS? Has anyone experienced any problems with it? The leaflet says it is a steroid and there is a need to be careful of long term use due to thinning of the skin. Has anyone experienced thinning of the skin with its use? Does anyone use it regularly or just now and then. Has anyone used it for a long time with great success? Can they now stop using it and symptoms no longer return? Has anyone experienced LS stopping, never to return? Does anyone know at what stage it stops becoming a problem or is it forever?
Any feedback welcome please.
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0 likes, 13 replies
Guest
Posted
If it won't cure it ..which it won't ,then why do we have to risk thinning of the skin by using it .Surely this will give us more problems of the skin ?.I have been told by the hospital to use it everyday for 6 months ( my next appointment ) I am only going to use it IF I really HAVE to.I went to my GP and was told to use it for a couple of weeks and then leave it off and then use it after about a month.I have found that it stings me antway.
I have used KY jelly and just this week I've tried olive oil.
I think a lot of the burning comes from being too dry.
As for any mum or dad thet RUBS anything onto the area ...please DONT RUB !!.JUST PAT REALLY GENTLEY WITH COTTONWOOL.As fellow sufferes know it kills to rub it !and only makes it ich and burn more.
I have also noticed that if I eat peppers, in a meal, my anus stings like mad....this is why I tried the olive oil ...and it worked.
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Guest
Posted
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Guest
Posted
:idea: One of the links from the above NLSSG site is to New Zealand's dermatologists website. I found the section on topical steroids really good at www.dermnetnz.org/treatments/topical-steroids.html
Hope this helps
Marta
Helen
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Guest
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Guest
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Any feedback welcome please.
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Guest
Posted
The question asked here is one of the most frequently asked questions! I just do not know where the rumour started about being so afraid of steroid ointments. I have recently attended several medical conferences where the doctors say that Dermovate has a 90% (that is 9 out of 10 women) success rate in reducing symptoms and getting them under control, so surely its worth putting fear aside and giving it a try? I have been using it for 13 years and I have a complicated case of LS but Dermovate has been my salvation and has saved my sex life. It has helped so many of the women who contact NLSSG that I cannot tell you how many. In 10 years of running the group I estimate that well over a quarter of a million people have been in touch with NLSSG either via website, letter, email or phone and very few of them report thinning of the skin. I do hope this will help you and give everyone confidence to use their Dermovate.
Guest
Posted
But I am glad there is something out there, better than nothing I suppose.
AJ
Posted
skminney
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He is going to write to my GP and say that when I request a repeat prescription for cream, when the Dermovate I have is used up, they should prescribe something milder that will keep the symptoms at bay but has less steroid.
Hope that helps.
Sarah
scotbun1
Posted
Hope to speak more
from a very sore and itchy
Tracie
Guest
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Guest
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