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ibd and fibro

Posted , 3 users are following.

kate21881
kate21881

I got diagnosed with ulcerative colitis just over a year ago and yesterday I got diagnosed with fibromyalgia I was just wondering how everybody else copes with there fibro. Thanks.

1 like, 11 replies

11 Replies

  • lee34449
    lee34449 kate21881

    Posted

    Hi Kate. I was officially diagnosed with fibro about 12 months ago. I have Arthritis as well & that seemed to have caused the fibro to go undiagnosed for a long while. I have struggled with the sensitivity to touch in certain points & the incredibly overwhelming tiredness. Unlike you, I can rest when I need to. It must be difficult coping with a young-un as well. I believe diet can help, but haven't looked into it. I wish I could help more, I will look up info on the web if it helps you. You seem to have a good "get on with it" attitude, which will help. Talk here or PM or e-mail if you like. Lee.

     

    • kate21881
      kate21881 lee34449

      Posted

      Hi Lee, thanks for replying. You must be in a lot of pain having both fibro and arthritis am struggling just having fibro. I don't know to pm.its the first time I've used this website. Kate.
    • lee34449
      lee34449 kate21881

      Posted

      Kate, please forgive my stupidity, old age & all that redface. I sent you a message intended for someone else. I did intend to message you though, so here I am now, full of appologies, sorry. It depends on your situation really. I am retired early due to health problems & have time to rest when the tiredness gets to me. I have other health issues, but the fibro affects me in 2 ways, the tiredness I already mentioned & the sensitivity to pain in certain spots. I haven't been given any meds for fibro, the ones I am taking already for other complaints seem to be all they can do. Get around when you can & rest when neccesary. I can't remember how to PM, as I have not been on here for 9 months. I would be happy for you to keep in touch here if you like. Lee.

       

    • kate21881
      kate21881 lee34449

      Posted

      Ha ha ha I was wondering how u new I had a young child 😂, does fibro get worse or does it stay the same.thanks lee
    • lee34449
      lee34449 kate21881

      Posted

      Fibro gives you magic powers too. winksmile. I have had flare ups, when it gets to you & is bad for an undetermined length of time. It's a muscle complaint really. The muscles get very weak & doing most tasks is very laborious & tiring. I have problems with my knees that require surgery, but they are loathe to do it, as my leg muscles are so weak I would still have mobility problems. I find it terrible difficult to get up out of a chair for instance. My knees hurt when I lie in bed on my side, so I have slept downstairs in a reclining chair since before Christmas. Deffinately see your GP & see what he/she says. Keep in touch. Lee.

       

    • lee34449
      lee34449 kate21881

      Posted

      Not much help really, sometimes it helps to talk. 

       

    • kate21881
      kate21881 lee34449

      Posted

      Yes it does especially when nobody really understands at home, am glad I've found this website.
  • Flowerlady
    Flowerlady kate21881

    Posted

    Morning Kate

    I were diagnosed nearly 4 years ago with our friend Fibro, and I just have to take each day as it comes. I am on Morphine, it takes the edge off. I also use heat pads as warmth on painful areas does help. Also movement helps too, I have short strolls as I am unable to walk fast these days.Sitting for long periods makes me stiffen up. Not alot else I can say. Hope you have a good day.biggrin

    • lee34449
      lee34449 Flowerlady

      Posted

      Hi Anne, Welcome to the "club" With all that I read about fibro, I am at least glad my specialist & my GP takes the complaint seriously, unlike some. My diagnosis was only recent, although I have had the symptoms for a long time & put it down to one of my other complaints. 

      I read about a thing called the "Spoons Theory" it's worth looking up as it helps us to try to explain to others how an illness that has no outward signs can affect someone so much. 

      I hope you & Kate are having good days today. Lee.

       

    • kate21881
      kate21881 Flowerlady

      Posted

      Hi Anne, Thank you for your reply. I'll try the heat pads. Thanks 😊
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