IBD help!!!!

Posted , 5 users are following.

Hey alll so cut a long story short I'm under investigation for IBD I have suffered for so many years and just want a diagnosis what ever it will be so I can get the right meds and start living my life! IM 27 mother of 4 and I'm always stuck in with a flare up or in pain bla bla!

Well since yesterday I have flared up and it's effecting my throat again it's so sore I can just about breath, I take tramadol for pain daily which normally only takes the edge off but when my throat is effected nothing else! , I'm just wondering if any 1 else suffers with this due to there IBD? And if so what's u do to help the pain and swelling? sad

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7 Replies

  • Posted

    Hi Maria, I think it is acid reflux too. Good with your test.rolleyes
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  • Posted

    Yea, could be bad reflux. I had it so bad that my teeth in the back rotted. The acid is so strong that it can damage anything. I was taking Protonix 40mg twice each day to control the acid. It seems to be a side effect of IBD. I am 48 and have had IBD my entire life, but it took years before they figured it out. When I was 38 I had a flare that was bad enough to give me anemia and I was so weak I went from work to the hospital. They scheduled a colonoscopy and found out I had pan colitis. That is UC of the entire colon. My doctor at the time told me I need to have my colon removed. I told him no way! Give me Prednisone and it should get better and it did. I still have my colon, but I am now looking to get on a new medicine as Pred isn't working well anymore. They want to put me on Entyvio and I am glad that they suggested it, so fingers crossed it will work. So as you can see, sometimes it takes a long time to get a diagnosis. I am sorry, but if they have not made one yet and you have had a few colonoscopies, then that means your IBD isn't super bad and that is good news. I hope you feel better soon.

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    • Posted

      Hey Craig thanx for you input, wow I have such a long road ahead then but they did say catching it early is the best! So fingers crossed it can only get better hey? Xx
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