ibs mixed!

Hi ellen39

I have been following this forum for a while now and resist answering many queries and questions, not because I don't want to, but due to my links with IBS and expertise may be mistaken for personal promotion.

However as you are young I feel it important that you seek advice. It is important to make some simple changes to improve your symptoms and know how to manage any recurrences throughout the rest of your life.

The changes you will benefit from significantly is by attending a specialist Dietitian trained in the Low FODMAP Elimination. I recommend this as from my experience many people attend my clinic who have tried the Elimination themselves and have ended up malnourished with limited success and been on it far to long. It is complex and the info on-line is conflicting and confusing. Carried out correctly however it will be easy and possibly you will achieve 90% symptom relief in 8 weeks.

Hope this helps

regards

Gillian @ 121 Dietitian

how do i go about seeing a dietitian trained in this???

Also see Coeliac Org UK for lots of advice to IBS and Coeliac sufferers.

Also see Coeliac Org UK for lots of advice to IBS and Coeliac sufferers.

Sorry for not being in touch sooner but I have been in bed so have not been on line. I have had this condition for 3 years now and I am at my wits end. I have had test after test and all is clear. I have had to ask time after time for a diagnosis and finally got one, which is extreme visceral hypersensitivity that in our language means my internal organs cannot bear the normal functions of the body without being in pain. A decision I do not agree with hence I am waiting for an appointment for a second opinion. Some of the symptoms are the same as ibs but there are no good days like there is with ibs, in my case it is just a lower level of a bad day. I have tried different diets liquid/ solid/I currently have a feed pipe inserted into my stomach. However, to sum it up life is just unbearable

Hi Ellen39

Sorry for not replying sooner.

You are best requesting a referral from your GP to a Dietitian trained in the Low FODMAP elimination diet in your local hospita/ area.

121 Dietitian

Insist on a referral asap to a Gastroenterologist....second opinions....persist!

You could also try "Talk to Us" via the Coeliac Org UK website. Try everything! Nothing to lose.

Good Luck.

hi thanks for the advice.i am not the greatest typest but i thought what the hell by joining this group i just might get some clues as to what it is that is wrong with me as i dont think the experts dont evan know.and i have nothing to lose

Exactly little mac. And you can ask the opinion of Coeliac UK by entering your symptoms and telling them exactly what you are going through via their Talk to Us link...well worth doing! They will help if they can, that I know! Give it a go - and Good Luck!

hi!

thank you for your advice. and i have to lose.

For info from Coeliac UK website:

"Keep eating gluten throughout the diagnosis process

If you think you may have coeliac disease, it’s essential to continue eating gluten until your doctor makes a diagnosis.

The diagnostic tests for coeliac disease look at how the body responds to gluten. Some people may start to reduce or eliminate gluten from their diet because they feel ill. Unfortunately this is very likely to cause an inaccurate result for both the blood test and the gut biopsy. Therefore, it’s very important to keep eating gluten throughout the diagnosis process.

If you've already reduced or eliminated gluten from your diet, you will need to reintroduce it to make sure you get the most accurate test results. While it may be difficult and uncomfortable, it’s essential for your long term health.

As a general guideline, the recommendation is to eat some gluten in more than one meal every day for at least six weeks before testing.

For children, you can mix wheat flour into foods such as yoghurt or baked beans to add more gluten into their diet.

If you are reintroducing gluten into your diet, you should discuss how best to manage your symptoms with your GP. Your GP will be able to arrange for you to be tested for coeliac disease as soon as it is appropriate.

We understand how hard it is to get diagnosed if you have started a gluten-free diet. Getting a medical diagnosis, however, is important to ensure you get the medical follow up and support that is recommended for people with coeliac disease. Unfortunately, there are no other tests that can diagnose coeliac disease other than the antibody blood test and the gut biopsy. These tests depend on people eating gluten."

"Irritable bowel syndrome:

Almost a quarter of people with coeliac disease had previously been told they had IBS or were treated for it before they were diagnosed with coeliac disease, according to recent research1. It is important that the NICE Guidelines are followed and that coeliac disease is screened for before a diagnosis of IBS is given".