Ibs with fibromyalgia

iam glad you have found away to help your self and yes to loose weight with your other condition is really good,

but i think it is all very personal , for me i have to leave all fruit alone the only veg i can manage is broc carrots cauliflower,green beans potatoes, i can have fried food but not everyday, i manage meat ok but eggs cripple me, i love nuts but they do the same

, and i so miss my curries,

salad gives me problems but only after i had a bout of shingles up till then i could eat it daily now i have to be carefull . its bloody nightmare, all we can do is trial and error

,gluten free made matters worse for me to . so there dose not seem to be any set pattern which is really annoying i am sure we all FM sufferers will agree.

all we can do is say what works for us and hope it helps someone else.

Hi Doris,

how do you replace fibre in your diet, I have read that going gluton free deprives you of essential vitamins.

I have ibsC so I am trying to balance my soluble and insoluble fibre, which is quite hard when  you have been used to a high fibre diet and could eat what you like, about 12months ago that changed and have been trying to find a diet that suits me.. My Dr has referred me to a dietitian but knowing the dear old NHS don't know how long that will take

is going gluton free healthy, would be interested to hear from you concerning that.

Cooking for two people also puts difficulty in the way.

Best Wishes

Pat

Hi Tina,

You certainly have been through the mill, it is a nightmare as you say, I thought you only went gluton free with if you were diagnosed with certain digestive complaints.

did not mean to moan about the P&P on the digestive drops just thought £3.95 was a bit steep, mind you they all do it.

just tried a peppermint oil capsule for abdominal pain I seem to get it every day no matter what I eat, think it's worrying about what to eat.

Ibam willing to try anything within reason, but hope to find a simple diet to suit me.

One day they mightv even find a cure for Fibromyalgia, surely in this day and age it should not be beyond the scientists who come up with cures for 

a lot of diseases.

Of to take my Laxido soon, oh what an interesting life we lead.

Best Wishes

Pat.

PS they say the weather is going cooler tomorrow, Hurrah.

 

Well, I only cook for myself so that's easy. I take some supplements that are supposed to help balance nervous system. I eat oats for fibre (they usually don't contain gluten, unless they're polluted with it), plenty of veg too. My blood test results show I'm in perfect health (ironically) so I'm not worried about vitamin deficiency.

i hope so luv its driving me mad, i agree with you the p&p is steep ,

but if your tummy kicks of or you have nausea i find they help , you can give them to children as well,  much kinder than imodeum ,

peppermint kills me see everyones differant,  i wouldnt hold my breath on a cure , theres no money init, big money in finding a cure for cancer,

thats where most of money is directed.

hope for cooler days, had to cancel my hairdressers appointment because its just been to hot for me to go out. feel faint if i get to hot.

you seem to be doing well, i hope it continues for you.

 what supplements do you take i take q10 and b12 and a multi vit in a oral spray,

I am doing well, after balancing everything (work, leasure, diet, relationships etc.). The supplement I take is designed to boost nervous system and contains (among other things which I cannot translate from my native language) selenium, vitamins E, B (all spectrum) and some fatty acids. I've been taking it for 2 weeks now and will yet wait to see any results. I started to take not because I felt any deficiencies, but to try something new that might help and doesn't seem to smell of snake oil.

well it sounds like a good all rounder, cant do any harm. iv brougt selenium in an oral spray as well havnt started it yet . because its sposed to be good for the nervous system .

has not cooled down here yet infact it seems hotter.

Still quite hot here as well, I know it's summer but I wish it go somewhere else for a while.

Just been to the Dentist, quite an ordeal, set my anxiety off which affected the ibs, feel exhausted.

i am finding I can't sit on hard seats and lying down in bed is getting difficult,

finding a comfortable place to settle. how do you get on with sleeping, I thank god for my sleeping tablet although that is not the answer really. but need them right now

There  is just no let up in this disease or snydrome, always feel like crap, achy and stiff, or in down right pain. The same every day.

i watch my neighbours doing the garden and normal  things and it just makes me want to cry, with thinking I was like that last year

Its really nice to hear from people with the same affliction, I know there are people with worse things but somehow it does not help.

Well it's nearly lunchtime so must go and find something that will not upset the tummy.

Bye for now,

Pat

.

 

i know how you feel i really do, i cant so stressed up when i have to go any where, esp doctors or dentists , iv only have to sit on a seem of clothing and when i stand up the pain is awful,

i find wearing a belt, or tight waistband or even a necklace will give me pain after a short while,

iv had no trouble sleeping since i started useing my new product rapid relief rhemotiod oil. i know what you mean about the heat i wish it would sod off, iv got a £700 two seater sofa that i cant sit on because its to firm, and my hand made bed that cost £1000 still needs a quality mattress topper so i can get comfortable, so your not mad ,

i find finding comfortable underware a chore with most ladies underware has expossed elastic around the leg or nast lace trim that rubs and makes my skin sore , i blister really easy,

iv got to have a back upper tooth out soon and i am absolutly dreading it in case i am left in permament pain, even having a filling will leave a constant ache for a couple of weeks, when i had my eye test they puffed the cold air in my eye i had a headach and a pain in my eye for 3 weeks.

no it dosent help knowing people  have worse conditions then us, so i dont no why i feel so guility for moaning when i hear about some of them. i get jealous as well theres a woman in her 30s that lives round the corner from me,

and she lost a leg in a car accident , but she lives in a bungalow  on her own she goes out with friends for drinks and meals and gets about on a mobility cart, and me i  cant drink going out for a meal is stress full and walking any distance in extrem empertures can lead me to having a fall or fainting. i swap with her in a flash . really would.although i am sure she has her problems .

Where do you get your rapid relief rhuematoid oil from, I found one site and it was £29 a bottle is that the one you get.

sounds about right ,i brought 6 bottles for £149 , i had already tried it before buying. but for me dont want to be with out now.

i buy oil from rheumatoid arthritis care dot com

I ordered a bottle of the oil last night to try .

It is much cooler here today, in fact it is rather cold what a change

I had a terrible night last night woke at 2.30 and could not get back to sleep so today feel like crap.

My appointment from Physotherapy came this morning, don't know whether to go, going through enough torture.

Graham my husband just won £2.70 on the Euro, that's about all we ever win. The first thing I would do is get Private Health Insurance,, the NHS takes for ever to get any thing done.

do you go to any groups? The one I go to is not much good,  but they do send transport for me otherwise would not go do you drive, miss it like hell.

must go have a terrific headache

pat

 

try the sad lamp , around £54 .99 .Amazon

i only use mine in winter when its dark days , but as we dont produce enough of the chemicals to produce proper sleep, we dont get proper rest and become fatigue,

so i am getting mine out of the cupboard and going to start using it daily  iv got feeling it will properly help a lot. because alot of people dont produce the chemicals in winter, but we dont do it all year round .

have you tried using eucliptise oil for head aches or something simuliar,

like headache roll on stuff . i hope your headache goes soon.

sensiable to order one bottle of oil ,hope it helps works. works wonders for me .at the moment.

have you tried the Belladonna pain patch that has been advertised on tv.

It is hot and humid here today, not as hot as previous but bad enough.

In have done a trek around Morrisons for the weekly shop, and feeling very fatigued in pain and very tired, then have to put everything away. Ugh!!!!

I really miss being able to drive, but this fibro fog and balance thing makes it impossible, Is there anything you can do for fibro fog, what causes it I wonder?

How are you today? 

Pat

,

 , if your fatigued you cant think staright concentrate etc, i e thats why junior doctors make mistakes lack of sleep. restful sleep . if you can think back before your illness ,and say you had a bad night, the next day would be hard work ,thinking and coordintaing even speech can be affected becoming slurred and memory laspses all caused thru lack of restful sleep. thats plain and simple memory fog caused by fatigue.which we suffer nearly all the time so hence the memory fog

i cant get round morrinsons without pain, i get half way, i am nackered,

so my husband used to do it, now i shop on line with sainsburys and asda, so much easeir, still got t put it all away though , hate that,

yes its humid today here as well we didnt have the cooler days like they promised on the weekend, dosent look like they are right this time either they said it was going to be cooler today and for the next few days no signs so far.