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I am newer to IC and have been dealing with the pain since October 2017. I was diagnosed about a month ago after seeing 6 different doctors and pushing doctors to do different tests until I found a knowledgeable urologist who diagnosed me without me even mentioning IC. My urologist told me to try an IC diet and will go from there. I've been trying an IC diet for about two months while testing different acidic foods here and there to find my triggers. I have good days and bad (mostly bad) during this 8 months I have had two bad flares that have lasted a month and a half to two months just awful not one day of relief during thoughs times.
My question is has anyone tried Elmiron or any other medication and had any luck? At this point I have tried a couple natural remedies such as Marshmallow Root, Freeze Dried Aloe Vera, and Prelief on low acidic diet. Marshmallow Root gives me some relief when I am in mild pain but when I am in my worst pain mid flare it does little to nothing. Freeze Dried Aloe Vera (Desert Harvest brand) seemed to make me worse unfortunately as I was hopefully since it helped so many. It could have been something else since I only took it for a few day but that was the only thing I can pinpoint that changed in my diet at the time.
I am wondering if medication is worth suggesting at my next appointment or if it is also a hit or miss like these remedies?
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