Posted , 5 users are following.
Hi ladies. I have always had cold hands and feet but over the last few months my toes feel as cold as ice cubes. I can wear two pairs of socks and sit in front of a heater but it will remain cold. Also, lately the two smallest fingers on my left side twitches. Weird! Have any of you experienced these symptoms? Thanks.
0 likes, 15 replies
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Gillian1956 faz5503
Posted
you need to go to your doctors with this could be Raynes syndrome were the blood vessels don't open enough
pam90720 faz5503
Posted
could be raynauds syndrome.. i have it... try and get your core warm.. even if you need to put a heating bad around your tummy area...
pam90720
Posted
*pad
faz5503 pam90720
Posted
Thanks for the advice Pam. I will read up about this condition. Do you experience twitching in some of your fingers?
pam90720 faz5503
Posted
yvw❤i dont have the twitching...
i noticed the other symptoms with my hands about 10 years ago... the tips if a few of my hands turned white... hand warmers, heaters , socks wont help... it starts with your core and getting and keeping that warm... my sister has the same thing... she damn near burned off her toes with too many socks and i think she had them near a heater.... my toes act up too but not real bad... if i go into a grocery store or any store and if its a bit cold and im stressed it brings it on.... hang in there!!!!❤❤❤
notsure47790 pam90720
Posted
HI Pam,
at what age did your raynaud's first appear?
mine started a bit late at about 36-37.
pam90720 notsure47790
Posted
hi there... i believe i was 40.... i first noticed it at my daughters soccer game... it was cold and i was stressed about the game... i ended up having to go sit in the car with heat on full blast (i didnt know at the time what was going on ) when i got warm and blood returned to fingers,,, it hurts like hell..i dont think i have had it that bad since though... i think i have a mild case of it....
pam90720
Posted
there's raynauds syndrome and raynauds phenomenon.... some peoples hole fingers turn white... mine are mainly the tips(blotchy) on just a few of my fingers (and toes)
notsure47790 pam90720
Posted
I think that for now I also am having a mild case. It usually affects 1-2 fingers and it happens sometimes, not everyday. It makes me very worried every time though- which is wrong considering stress makes it worse. It is unpleasant:/
notsure47790 faz5503
Posted
OMG! I typed the longest new discussion about this and Raynaud's and never posted it. And now I read your post.
I started having Raynaud's about over a year ago. I am constantly cold- my toes and fingers freezing. I truly want to believe that it is part of peri and will go away but and starting to doubt it. I have a heater at work pointing straight at me......
I went to get checked for autoimmune conditions. Initial tests came back positive but the work up negative. I have no idea what is going on.
Check your thyroid! High TSH can also give you symptoms like that.
Sending well wishes!
faz5503 notsure47790
Posted
Thank you so much for sharing your experience with me. I'm having blood tests tomorrow and I've convinced myself that it's an autoimmune disease. I have had white spots in my mouth on/off for the last two years as well as an inflamed lower lip and my throat's swollen. Also, my glands have been swollen for the last two weeks causing head aches and neck pain. I knew something was wrong with me even though the doctors were unable to find anything. I think that they've been ordering the wrong blood test. Thanks and I hope that you're feeling better now.
notsure47790 faz5503
Posted
I am keeping my fingers crossed for you. I don't know what to wish for you because feeling unwell all the time with no clear cause is very tough, on the other hand I do not wish on anyone to have an autoimmune condition or any illness at all.
I read some about autoimmune diseases and all I found out that it is never straight forward and never the same with different people.
I have my symptoms on and off, sometimes too much ON. I am waiting on rheumatology to call me and follow up on my positive ANA test. No one in a rush since my specific markers came back negative. From what I read it takes years to diagnose.
I hope you are experiencing peri or meno and it will all magically disappear.
pam90720 faz5503
Posted
praying things come out ok!!! (((hugs)))
faz5503 pam90720
Posted
Thanks Pam and take care of yourself. Hugs and best wishes.
faz5503 notsure47790
Posted
Thank you and I appreciate all the information you've shared. The latest blood tests revealed that I'm definitely in menopause and that I don't have diabetes. They done more blood tests today because of the symptoms I'm experiencing such as the persistent neck pain, a lump on my wrist and the white spots in my mouth which I've had for the last few years. Yet another long wait before I get these results. All the best to you and kindest regards.