Ideas for Care Package for Chiari Surgery

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My best friend has to do an emergency surgery for her Chiari in the next two weeks. Does anyone have any advice to offer support? I would also like to prepare a care package for her after her surgery. I would truly appreciate any advice on items that were beneficial before or after the surgery that would make her recovery easier! Thank you in advance!

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  • Posted

    My daughter had surgery a couple of years ago.  From what I remember, she couldn't look down for long periods of time, so watching T.V. was one of the things she would do a lot, I would suggest a dvd package of her favorite movies/tv shows.  Her next will be sore from the surgery for about a while, my daughter had one of those cone pillows.  Just visiting would be a nice thing to do, as she will be housebound for a couple of weeks for healing.  I hope her surgery goes well.


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    • Posted

      Hi, I am getting prepared to undergo this surgery for chiari malformation and saw the care package idea. Could you describe a cone pillow? All I found was a pillow shaped as an ice cream cone. Is that what you're talking about or is it something different and how do you use it? Thank you

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    • Posted

      Hi, thanks for getting back to me. So with this wedge pillow does the pointed part. Face your butt or shoulders? I'M 'll also see if I can find a picture on line. I think I want to try it once I've had my surgery. TY, have a great day

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  • Posted

    Hi Mary,

    I would get her an open front clothing/s (Pijama tops/any top/Front fastening bra) after surgery I felt for two months I would not be able to lift my arms and I felt really weeks on my neck and pain on the head for sometime.

    Get her also a bottle warmer its nice to put it underneath the pillow case supporting the head and neck.

    A bottle for putting the cold drink - make sure she drinks plenty of fluids.

    Magnesium spray - its good to spray when/where/ever it suppose to be good to relieve pain.

    Walking stick - is she still in a limbo (walking)

    Tiger Balm from any chemist - its also good when you feel sik just rubbing it around your nose, neck and forehead.

    Hand towel - so she can deep it into hot or cold water to dap it in her forehead.

    Ginger pastilles (get it from any Numark chemist) its about £1 , I used to suck that when I felt really sick (ginger its good to redue the nousea)

    Lovely lavender soap or any herbal soap of TK max..its smell delicious...

    IF she can't drink direct from the glass - get her a bottle with a straw (Pound Land sell it for £1)Its summer soon, she will be so sensitive - sun glasses if she has not got one - sandal so she an walk freely in the garden. 

    Hands & Body lotions as my skin became very dry and also so sensitive - I bought coconut oil from a health shop to rub each night in to my head (mostly the stiching part-after the stiched being removed)

    I think that is all I can tell you...I hope others will response to you..but ask her to be patiencce the first 2 months was hell for me.


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