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Ideas for self help with BPPV

Posted , 12 users are following.

Jac27
Jac27

Hello,

Have just come back from dioctor who has signed me off for a month because of my continuing vertigo which he says is BPPV. (have has symptoms since November). Being signed off for such a lenght of time has, I have to say, taken the wind out of my sails a bit.  When I aked if there was anything I could do to help with the symptoms he said to continue the exercises I was given following Epley treatment and continue taking the medication (Stemitol). Otherwise nothing but wait it out. I've had a CT scan and have been referred for physio and to an audilogist but I was just wondering if anyone out there has found ways that seemed to alliviate their symptoms or are happy to share their ways of coping. I find I'm able to do very litte at the moment without feeling dizzy and cannot walk at a normal pace or operate at a normal level for everyday activities. Sometimes I get dizzy even just sitting.

Thanks in advance smile

0 likes, 91 replies

91 Replies

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  • Gilly_flower
    Gilly_flower Jac27

    Posted

    My job is very physical , I work in a busy restaurant , and also we do B and B , so I start early , with breakfast , then do the rooms , it's a very busy place , and I just can't do it at moment , X 
    • kathie37110
      kathie37110 Gilly_flower

      Posted

      At least at my job I can sit most of the time.  I wish you luck Gilly flower. 
    • Jac27
      Jac27 kathie37110

      Posted

      I teach early years. The other week we had a situation and I got up quickly to run after a child without thinking and nearly fell. I'm my own health and safety hazard at the moment! 
  • mandy83
    mandy83 Jac27

    Posted

    Im watching your thread in hope of different ideas to aleviate the problems associated with having Bppv .... Im coming up to my 3rd year of being affected off and on with it ... Ive had a scan..ive had the treatment with ent and have the excersises to do , ive found that instead of sitting down after what i call an attack, i try to keep moving , ive tried everything ...i stopped smoking after being a smoker for 46yrs ...i no longer enjoy a drink cos thats how i feel nearly all the time 😊... I cut down on caffeine ... And here i am 3yrs after the first attack which i have to say was the worst..still looking for answers ...i feel for you no one seems to understand just how awful it is ...i wish you well and hope that you find some relief from it 
    • Jac27
      Jac27 mandy83

      Posted

      I know what you mean about drinking Mandy, that's how I explained it someone the other day. I can't even walk my dog at the moment but am going tart using a stick, I don't care what people say or think, Ijust want to ut. Haven't driven since before Christmas so feel a bit trapped at home which then gets me down a bit. But I will get there, will try keep moving like you say, see if it helps. It is hard as people look at you and most times you l;ook ok regardless how you feel, though  The Tribe (my children) can if I'm having a bad day by my eyes apparently! All the best to you.
    • Gilly_flower
      Gilly_flower Jac27

      Posted

      Hi , know what you mean about people looking at you , they think you look ok , have no idea what you feel , but like you my husband and sons can tell by my eyes that I'm not ok , they look so tired all the time , 
    • angiegirl
      angiegirl Jac27

      Posted

      What do they see in your eyes dose one eye flicker slightly and very fast ?
    • gillian76726
      gillian76726 angiegirl

      Posted

      Have you been chcked for any of  the different kinds of Nystagmus.  iF not,or even if you have tbh, google it with  VEDA in search as you will get a good description n of the condition.
    • Jac27
      Jac27 angiegirl

      Posted

      Apparently yes, they do flicker, my son says it's like it's darting all over the place, also they say tehy look quite blood shot at times.
    • angiegirl
      angiegirl Jac27

      Posted

      Do you think that ur eyes don't work togrther for a brief time and this sets yor vertigo and balance into kaos
    • gillian76726
      gillian76726 angiegirl

      Posted

      The ay i have   understood it Angie is that when the vestibular system goes awry as ours has done, the eyes take up a lot of the slack, for,obvious reasons,,to keep,us balanced, and they in themselves are having to make continuous  adjustments, so.will,probably suffer too. 
  • pacsac
    pacsac Jac27

    Posted

    I have been off work since Aug. I had severe vertigo. Numbness in arms and hands, off balance, sore muscles the list goes on....and still off now with backache. had tests...Try magnesium. Seriously your count may be good but what is normal for one is not exactly the norm for another. I have been taking it for 3 months and am not dizzy anymore. you can google the difiency hope it helps/
    • Jac27
      Jac27 pacsac

      Posted

      Thanks, I will do that, I used to take magnesium and zinc when I suffered from really bad migranes years ago.
    • Pupsicle
      Pupsicle Jac27

      Posted

      Since you have migraine (a neurological disease), have your doctors investigated to see if your vertigo (and head pain) is from that? Vestibular migraine can have vertigo during migraine episodes as well as between episodes. You may not be familiar with silent migraines, which skip the headache phase (third phase) of the migraine episode - many people think you have to have a headache during a migraine episode. Epley etc. won't help this vertigo since it is not caused by crystals in the ear.
    • Jac27
      Jac27 Pupsicle

      Posted

      I  haven't actually had a migrane for a couple of year now but I will mention them when I go back.
    • Pupsicle
      Pupsicle Jac27

      Posted

      Migraine is a lifelong disease; it doesn't go away and there is no cure. You can have 24/7 migraines, a migraine once in a blue moon, or anywhere in between.
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