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Idk if I have Lupus?

Posted , 4 users are following.

justin63oh
justin63oh

I'm really just looking for opinions. I don't know for sure of I have Lupus but I've seen ever specialist and the last one is a rheumatologist. I've been having these symptoms since May 2017. Lowgrade fever (when I wake up 97.6. by evening 99.8.), headaches, hair loss, fatigue, pain in muscles (mostly neck shoulder), lightheaded, sensitive to light, fave rash, swollen neck shoulders, anxiety (also because doctors thus far haven't diagnosed me with any thing), depression (had to step away from job because of symptoms), hard to attain water, insomnia, needes around 12 hours of sleep, high blood pressure

During last summer these symptoms were 10x. Also during the summer I had excessive sweating, night sweats, dizziness, hard time attaing fluids, swollen glands( neck ), fatigue, muscle pain, muscle swelling. Headache. Lightheaded, light sensitivity

I moved from IL, to AZ and didnt have these problems the first summer I was out here (Also didn't leave house much first summer). This past summer I got a job and was more active outside during day time.

Other:

25yrs old. My great grandmother on mother's side had lupus.

I am physically obese, little exercise ( more so since symptoms), in May I had an ear infection I was put on antibiotics. In June symptoms worsened, in July they seemes to be at a worst, and August just as bad. Not as bad sept, oct, Nov, Dec (fever stays constant and some other symptoms). In that time frame I've seen cardiologist, infec disease, hermatologist, Ent. My WBC was actually slightly during time frame.( getting updated blood work soon. Also wbc went normal with doxycycline after a 2 weeks worth). Ive also been on 4 types of antibiotics since may amoxy, cpak, a 2 week of doxy then a two month doese of doxy.

Please, I am waiting to see the specialist

0 likes, 11 replies

11 Replies

  • lilian05079
    lilian05079 justin63oh

    Posted

    Hi justin63oh

    Have you been tested for inflammation in the body? tests include ESR Erythrocite Sedimentation Rate blood test...CRP C-Reactive Protein blood test and ANA Anti-Neuclaic Antibody blood test also a dsDNA gene test which can indicate lupus... .i imagine you have had these tests if you were referred to a rheumatologist. It may me you have a thyroid problem..'hypothyroidism'..have you been tested for that? What tests have you had?...why were you referred yo Rheumatologist?..best wishes...

    • justin63oh
      justin63oh lilian05079

      Posted

      I have not had any of those tests. My Primary was looking for more bacteria/viral and infections which is why I stayed on those antibitoics for months. I was referred to the rheumatologist because she or any of the other specialist can't find a reason for my elevated Tempature and I took pictures of the rash on my face. Other wise when I have my dr apps in the morning the rash is not present or most the other symptoms. In the morning I feel my best almost normal by 3pm 4pm 5pm I feel the worse. Thank you for the info I'll ask about these tests!

    • justin63oh
      justin63oh lilian05079

      Posted

      Had a TSH panel everything good. My WBC was slightly high (why we thought infection).

      So HEP PANEL ACUTE,

      EBV PANEL,

      HEP B CORE Ab, TOTAL

      MUMPS VIRUS ANTIBODY IgM

      LYME

      COCCIDIOIDES

      ANGIOTENSIN I ENZYME

      THYROID PANEL

      CBC

      HEP B SURF

      TSH HIGH SENSITIVITY

      METABOLIC PANEL

      WEST NILE

      LIPID PANEL

      HEMOGLOBIN

      MRI OF NECK THYROID

      CHEST XRAY CAT SCANS

    • lilian05079
      lilian05079 justin63oh

      Posted

      Hi justin63oh

      Yes most those tests were for infections and thyroid. Go back to your doc and request the tests i have mentioned in my reply..my best wishes to you...

  • margaret22116
    margaret22116 justin63oh

    Posted

    It is like the symptoms of Lupus but problem is a lot of auto immune disorders have similar symptoms. How to pin it down is the problem. But I also think that full blood screening is necessary and include a look at vitamin b12. Even if borderline that can be very problematic.

    Also difficult is the fact that you can have these disorders and bloods can be unremarkable. Mine often are. Lots of doctors won't act under these circumstances. Hope for a good specialist who will monitor your symptoms properly.

    • justin63oh
      justin63oh margaret22116

      Posted

      Thank s for your reply. I hope so too. My mother has fibro and rheumatoid arthritis as well as he mother and so on. SIDE NOTE: one of my biggest problems is my ear on the left side feels full all the time I can get it to pop sometimes and its a major relief but it gets full right after again. When I suspect I am having a flare my ear wont pop at all. My right ear is perfect. The Ent said this isnt an ear problem which is why im questioning if maybe the inflammation in my neck is causing those problems. But like you said the question is what is causing the inflammation!
    • margaret22116
      margaret22116 justin63oh

      Posted

      Yes I too have had ear problems. I have a lot of inflammatiin in my sinuses and ears. Used to have neck pain but not any more.

      I had a long treatment which ridded me of some of my more troubling symptoms.

    • justin63oh
      justin63oh margaret22116

      Posted

      Im glad to hear your treatment helped!! I don't hope I have Lupus but it would be a relief to finally get diagnosed so I can begin a treatment plan. I feel like this might be the right direction because ive exhausted every other route.

    • margaret22116
      margaret22116 justin63oh

      Posted

      Yes you could be right. When other things are being crossed of the list something auto immune is usually the cause. Knowing is better. It is a positive step to potentially feeling much better. Understanding and treatment make a massive difference.
  • margarida67433
    margarida67433 justin63oh

    Posted

    I agree with everything being said in the comments above. I have mild lupus and hypothyroidism and all your symptoms are like mine. Prior to diagnosis I also had ear infections and was on antibiotics which caused Candida, etc. If your anti dsDna is not positive you should be tested for thyroiditis. However, you can also have lupus with negative dsDna. I am taking many supplements, but b12, but d3 and K, acid silic, coconut oil, went free from gluten, cow protein, sugar and I am recovering well. I also take plaquinil and prednisone. But beware of your thyroid levels because mine were in the range still I was not converting t4 into t3. I changed my medication since December and have not felt so good for decades. I take Natural Dissecated Thyroid. Good luck!
  • lilian05079
    lilian05079 justin63oh

    Posted

    Also get a B12 test and foli acid test...deficiency causes headaches, muscle pain and fatigue....best wishes...
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