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Idk if this is the right place for this, please help!

Posted , 3 users are following.

JustinLowe
JustinLowe

In 2012, I hit my head.

Let’s back up

Found out I had Chiari 1 Malformation and Syringomyelia

1998(13 y. o.) I had Chiari Decompression surgery to relieve Syringomyelia (that didn’t work) so, in 1999 I had a VP shunt placed (that worked).

I was fine before (stiff neck and scoliosis) and after the three surgeries. I lived a “normal” life. I had two jobs and went to school and partied on the weekends.

On my 28th Birthday, I hit my head on the floor and the next day I was slurring my speech.

I have been getting worse since 2012!

Currently, I am just laying on my bed or sometimes sitting on the couch in the living room (to watch TV), because I have fallen a lot and don’t want to fall anymore.

So, if anybody has a similar situations or any stories, let me know? I will most likely just be here laying on my bed, waiting.

Thanks for reading,

Justin

0 likes, 4 replies

4 Replies

  • mesilim
    mesilim JustinLowe

    Posted

    Hi Justin

    I have waiting for my operation.

    I have 11mm chiari, 40cm syrinx but almost zero symptoms. BECAUSE I MOVE, MOVE, MOVE ...

    I didn't move 2 weeks I lost half of my power I couldn't open a bottle.

    I am sure there are some exercise to help you seek for it.

    If you sit and wait things only get worse

    Wish you all the best

    • JustinLowe
      JustinLowe mesilim

      Posted

       Thanks for replying Mesilim

      I know, I’m not just sitting around. I wish I knew how many mm I was descended, before and after hitting my head, to see if that is the problem, but we’ll never know, now. Still curious though. 

  • KarinaM
    KarinaM JustinLowe

    Posted

    When you hit your head on the floor, could that have resulted in a concussion? And could you be suffering from post-concussion syndrome (PCS)? Depends on what symptoms you have been experiencing, but there are a 'constellation of symptoms' associated with PCS, and it can go on for a long time in about 15% of people.

    • JustinLowe
      JustinLowe KarinaM

      Posted

       I know, I thought about that,  some symptoms are the same and some, like “no balance“ are not.  So, I ruled the possibility of that out, but I will look into it more. Thanks. 
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