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If it isn't one thing it's another!

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Allexie
Allexie

Just had my second check up after my P/E in January of this year. Heart echocardiogram & 3 day heart monitor shows everything has returned to normal....yay! During a discussion about changing from Warfarin to Rivaroxaban, (I'm going to be a 'lifer' on anticoags) I mentioned that my hair was thinning and falling out and that was the reason for requesting the change of meds as I was told hair loss could be a possible side effect of taking Warfarin. Further questions from the consultant re muscle weakness, joint pain, skin rashes - all of which I have had to some extent - and it turns out that I may have an auto immune disease rather than a reaction to Warfarin. So now waiting to be referred to a haematology specialist. Gawd! If it isn't one thing it's another. Anyhoo, about to change the medication and the consultant said to stop the Warfarin for a day before starting the Rivaroxaban but chemist says to change without a day free? Anyone any idea which is best? Also, is it usual to have a 'loading dose', 3 weeks of 15mg twice a day, then 20mg once a day from then on? Any advice/comments would be very welcome.

Thank you

0 likes, 17 replies

17 Replies

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  • Supertractorman
    Supertractorman Allexie

    Posted

    Sorry to hear of your problems getting started on the Rivaroxaban, just had a wasted journey myself to the Doctor who asked to see me, but as the computer was down, did not know what it was they wanted me for !!.  Only good thing for me is they are at long last going to look at the dosage of Rivaroxaban or change of drug.
  • Allexie
    Allexie

    Posted

    Wot a kerfuffle.  Now heard from GP and it was haemotology who rang the GP and gave the instruction to change the dosage!  It would be nice if they communicated with the patient....makes you feel rather incidental in the proceedings!  Anyhoo, got the Rivaroxaban now so will start it today without the loading dose .....*crosses fingers and waits for the investigations re autoimmune syndrome to begin.....big sigh!*

    Thanks everyone for your input

    Alex x

     

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