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I haven't been involved in the discussions for a while, I was arrogant enough to believe that I was the one that would conquer SS, I didnt suffer the way most of you did, my pain was under control, the dryness was bearable and cured by drops and lotions. I smugly advised you all to take an assortment of vitamins that miraculously restored you to good health. I was so wrong and stupid and nieve. Ive just been diagnosed with ILD. 11% of those of us with SS will develop this and its fatal in most cases, I have 3 to 5 years. I had never heard of it till today, even on this forum no one ever mentioned it, or did I just miss it?
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